# General GBS Discussion **URL:** https://forum.livingwithpolyneuropathy.org/c/general/general-gbs-discussion/20.md [Latest](https://forum.livingwithpolyneuropathy.org/latest.md) · [Categories](https://forum.livingwithpolyneuropathy.org/categories.md) --- ## [About the General GBS Discussion category](https://forum.livingwithpolyneuropathy.org/t/about-the-general-gbs-discussion-category/1860)
**Author:** [@system](https://forum.livingwithpolyneuropathy.org/u/system)\ **Replies:** 0\ **Last updated:** [May 6, 2016, 6:51pm UTC](https://forum.livingwithpolyneuropathy.org/t/about-the-general-gbs-discussion-category/1860 "2016-05-06T18:51:24Z")
--- ## [Gotten The Covid Vaccine?](https://forum.livingwithpolyneuropathy.org/t/gotten-the-covid-vaccine/5431)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 38\ **Last updated:** [February 10, 2022, 12:19am UTC](https://forum.livingwithpolyneuropathy.org/t/gotten-the-covid-vaccine/5431 "2022-02-10T00:19:48Z")
I am wanting to find out if anyone has gotten the Covid vaccine yet and if so, did you have any reactions? I understand that everyone’s experience is different but I wanted to hear what others are doing who have had GBS … --- ## [Curious how everyone contracted GBS.....I contracted GBS after a stomach virus. How did you contract GBS?](https://forum.livingwithpolyneuropathy.org/t/curious-how-everyone-contracted-gbs-i-contracted-gbs-after-a-stomach-virus-how-did-you-contract-gbs/2363)
**Author:** [@Tammtbeach](https://forum.livingwithpolyneuropathy.org/u/Tammtbeach)\ **Replies:** 62\ **Last updated:** [February 1, 2022, 8:26pm UTC](https://forum.livingwithpolyneuropathy.org/t/curious-how-everyone-contracted-gbs-i-contracted-gbs-after-a-stomach-virus-how-did-you-contract-gbs/2363 "2022-02-01T20:26:59Z")
I have read that people contracted GBS from the flu shot and certain viruses. I amm curious how everyone on this site contracted GBS...thanks! --- ## [Stay away from Shingrix](https://forum.livingwithpolyneuropathy.org/t/stay-away-from-shingrix/5539)
**Author:** [@Spencer](https://forum.livingwithpolyneuropathy.org/u/Spencer)\ **Replies:** 4\ **Last updated:** [November 18, 2021, 8:36pm UTC](https://forum.livingwithpolyneuropathy.org/t/stay-away-from-shingrix/5539 "2021-11-18T20:36:47Z")
Shingles medication may cause GBS. --- ## [COVID in past GBS and CIDP survivors](https://forum.livingwithpolyneuropathy.org/t/covid-in-past-gbs-and-cidp-survivors/5541)
**Author:** [@Spencer](https://forum.livingwithpolyneuropathy.org/u/Spencer)\ **Replies:** 2\ **Last updated:** [September 7, 2021, 5:22pm UTC](https://forum.livingwithpolyneuropathy.org/t/covid-in-past-gbs-and-cidp-survivors/5541 "2021-09-07T17:22:13Z")
Has anyone here who had either GBS or CIDP in the past catch the COVID bug and suffered with severe symptoms? If so, what kind of symptoms were they? --- ## [Pfizer Covid Vaccine](https://forum.livingwithpolyneuropathy.org/t/pfizer-covid-vaccine/5366)
**Author:** [@Spencer](https://forum.livingwithpolyneuropathy.org/u/Spencer)\ **Replies:** 6\ **Last updated:** [March 7, 2021, 9:20pm UTC](https://forum.livingwithpolyneuropathy.org/t/pfizer-covid-vaccine/5366 "2021-03-07T21:20:50Z")
Since my GBS was not related to a flu shot, I’m leaning on taking the vaccine. What do you all think about taking the vaccine when its available? --- ## [Crawlings in face](https://forum.livingwithpolyneuropathy.org/t/crawlings-in-face/4768)
**Author:** [@RosaDe](https://forum.livingwithpolyneuropathy.org/u/RosaDe)\ **Replies:** 9\ **Last updated:** [December 30, 2020, 3:20pm UTC](https://forum.livingwithpolyneuropathy.org/t/crawlings-in-face/4768 "2020-12-30T15:20:21Z")
Hello everyone i have found sobhelpful info here that have helped me not to worry trough my healing process with GBS.I had total paralysis from neck down,my lungs and face were not afected.I started walking on day 7 afte… --- ## [Bottoms of my feet](https://forum.livingwithpolyneuropathy.org/t/bottoms-of-my-feet/2383)
**Author:** [@Rickyboby](https://forum.livingwithpolyneuropathy.org/u/Rickyboby)\ **Replies:** 35\ **Last updated:** [November 15, 2020, 6:50pm UTC](https://forum.livingwithpolyneuropathy.org/t/bottoms-of-my-feet/2383 "2020-11-15T18:50:27Z")
The bottoms of my feet feel like tiny "bubble wrap" packaging material. That may sound comforting but it is quite the opposite ! Barefoot in the shower is almost unbearable. Anyone else experience this sensation? --- ## [Cipro and GBS](https://forum.livingwithpolyneuropathy.org/t/cipro-and-gbs/1980)
**Author:** [@mstree07](https://forum.livingwithpolyneuropathy.org/u/mstree07)\ **Replies:** 2\ **Last updated:** [May 12, 2020, 4:26pm UTC](https://forum.livingwithpolyneuropathy.org/t/cipro-and-gbs/1980 "2020-05-12T16:26:50Z")
My doctor put me on Cipro yesterday for a severe kidney infection (I thought I had the flu, but it wasn't!). Reading up on it today, I saw several sites that linked Cipro with causing GBS. Does anyone know anything abo… --- ## [Does this sound like GBS?](https://forum.livingwithpolyneuropathy.org/t/does-this-sound-like-gbs/1976)
**Author:** [@danmanca](https://forum.livingwithpolyneuropathy.org/u/danmanca)\ **Replies:** 10\ **Last updated:** [January 26, 2014, 2:53am UTC](https://forum.livingwithpolyneuropathy.org/t/does-this-sound-like-gbs/1976 "2014-01-26T02:53:02Z")
About 6weeks ago had a sore throat, went to Dr and was diagnosed with Strep and took medication for it. After 2 weeks still tightness in throat. Started getting tingling in my fingers and toes. About a week later stiffne… --- ## [Professional Ignorance](https://forum.livingwithpolyneuropathy.org/t/professional-ignorance/4608)
**Author:** [@GBSSurvivor](https://forum.livingwithpolyneuropathy.org/u/GBSSurvivor)\ **Replies:** 6\ **Last updated:** [January 18, 2020, 8:33pm UTC](https://forum.livingwithpolyneuropathy.org/t/professional-ignorance/4608 "2020-01-18T20:33:43Z")
Just wanted to say that I was with a Nurse Practitioner that stated “GBS is a minor inconvenience” and that “Everyone recovers from it”. Needless to say I walked out and canceled all future appointments. This man should… --- ## [Disability](https://forum.livingwithpolyneuropathy.org/t/disability/2200)
**Author:** [@scott2](https://forum.livingwithpolyneuropathy.org/u/scott2)\ **Replies:** 12\ **Last updated:** [November 14, 2019, 11:52pm UTC](https://forum.livingwithpolyneuropathy.org/t/disability/2200 "2019-11-14T23:52:16Z")
Has anyone ever been to a disability hearing in front of an Administrative Judge in reference to GBS? --- ## [Eye sight impaired by GBS?](https://forum.livingwithpolyneuropathy.org/t/eye-sight-impaired-by-gbs/3867)
**Author:** [@Xstitcher](https://forum.livingwithpolyneuropathy.org/u/Xstitcher)\ **Replies:** 3\ **Last updated:** [March 10, 2019, 5:28pm UTC](https://forum.livingwithpolyneuropathy.org/t/eye-sight-impaired-by-gbs/3867 "2019-03-10T17:28:08Z")
Hi everybody, Its a long time since I’ve been here and things have been going pretty well. I still go to rehap training. Since the end of Nov 2018 I’ve had trouble with focusing and seeing double. The eye specialist s… --- ## [Tips and Tricks for GBS](https://forum.livingwithpolyneuropathy.org/t/tips-and-tricks-for-gbs/2338)
**Author:** [@seta](https://forum.livingwithpolyneuropathy.org/u/seta)\ **Replies:** 16\ **Last updated:** [January 30, 2019, 8:16pm UTC](https://forum.livingwithpolyneuropathy.org/t/tips-and-tricks-for-gbs/2338 "2019-01-30T20:16:25Z")
Tips and Tricks I learned living with GBS: -Crocs shoes are your friends. the light weight construction is perfect for people like us that drag feet, also super soft soles for people with hyper sensibility. I could not w… --- ## [After effects from GBS years down the road](https://forum.livingwithpolyneuropathy.org/t/after-effects-from-gbs-years-down-the-road/3267)
**Author:** [@Myron](https://forum.livingwithpolyneuropathy.org/u/Myron)\ **Replies:** 41\ **Last updated:** [January 30, 2019, 8:10pm UTC](https://forum.livingwithpolyneuropathy.org/t/after-effects-from-gbs-years-down-the-road/3267 "2019-01-30T20:10:59Z")
While going thru tests for my disability SSI, I was told I still had some issues left over from my GBS from 35± years ago. I compare my muscles to an electric motor that only gets 100 volts to run instead of 110/120. It … --- ## [Are relapses very common after recovering from GBS? What happens if you relapse?](https://forum.livingwithpolyneuropathy.org/t/are-relapses-very-common-after-recovering-from-gbs-what-happens-if-you-relapse/2359)
**Author:** [@Tammtbeach](https://forum.livingwithpolyneuropathy.org/u/Tammtbeach)\ **Replies:** 13\ **Last updated:** [January 29, 2019, 7:36pm UTC](https://forum.livingwithpolyneuropathy.org/t/are-relapses-very-common-after-recovering-from-gbs-what-happens-if-you-relapse/2359 "2019-01-29T19:36:58Z")
I was diagnosed July 2015. I worry I could get GBS again! It is very hard to find good information. About GBS. I am so glad I found this group ! --- ## [My wife recently diagnosed with GBS](https://forum.livingwithpolyneuropathy.org/t/my-wife-recently-diagnosed-with-gbs/3853)
**Author:** [@William](https://forum.livingwithpolyneuropathy.org/u/William)\ **Replies:** 6\ **Last updated:** [January 17, 2019, 1:08pm UTC](https://forum.livingwithpolyneuropathy.org/t/my-wife-recently-diagnosed-with-gbs/3853 "2019-01-17T13:08:30Z")
Hello everyone. I’m new to this site. Kind of looking for some insight, info…and a place to hopefully be put at ease about some of my concerns and frustrations. Fair warning, this will be long. My wife had been battling… --- ## [Depressed with GBS](https://forum.livingwithpolyneuropathy.org/t/depressed-with-gbs/3599)
**Author:** [@Love4doxies](https://forum.livingwithpolyneuropathy.org/u/Love4doxies)\ **Replies:** 42\ **Last updated:** [December 15, 2018, 4:20am UTC](https://forum.livingwithpolyneuropathy.org/t/depressed-with-gbs/3599 "2018-12-15T04:20:21Z")
I have had GBS for over 1.5 years and my recovery just seems to be so slow! I am walking with a walker and in physical therapy, but my muscles are so tight I can’t get into my new orthotics. And then the therapists said … --- ## [Feet on fire](https://forum.livingwithpolyneuropathy.org/t/feet-on-fire/3780)
**Author:** [@kel](https://forum.livingwithpolyneuropathy.org/u/kel)\ **Replies:** 5\ **Last updated:** [October 1, 2018, 5:08pm UTC](https://forum.livingwithpolyneuropathy.org/t/feet-on-fire/3780 "2018-10-01T17:08:45Z")
I am happy to say six and a half years later I am here I can walk . Thank God ! G.B.S. did not steal my life nor my ability to move. I still have some side effects like, faitige, tingling and burning feet and hand… --- ## [Flu Shot after GBS](https://forum.livingwithpolyneuropathy.org/t/flu-shot-after-gbs/2352)
**Author:** [@loislane](https://forum.livingwithpolyneuropathy.org/u/loislane)\ **Replies:** 30\ **Last updated:** [July 16, 2018, 1:54am UTC](https://forum.livingwithpolyneuropathy.org/t/flu-shot-after-gbs/2352 "2018-07-16T01:54:28Z")
Hi Everyone, Thanks for accepting me into the group. I was diagnosed on January 12 , 2015. I had good intervention and responded well to the infusions of imunoglobin. I was almost totally paralyzed from the neck down b… --- ## [Recovery of GBS AMAN](https://forum.livingwithpolyneuropathy.org/t/recovery-of-gbs-aman/2651)
**Author:** [@ryan\_w](https://forum.livingwithpolyneuropathy.org/u/ryan_w)\ **Replies:** 11\ **Last updated:** [June 28, 2018, 7:47pm UTC](https://forum.livingwithpolyneuropathy.org/t/recovery-of-gbs-aman/2651 "2018-06-28T19:47:39Z")
Hi, in March of 2015 I was diagnosed with GBS and later diagnosed with a variant Acute Motor Axonal Neuropathy or AMAN for short. My recovery has been very slow and very frustrating and I was wondering if any body who wa… --- ## [Mild form of GBS](https://forum.livingwithpolyneuropathy.org/t/mild-form-of-gbs/2315)
**Author:** [@daan](https://forum.livingwithpolyneuropathy.org/u/daan)\ **Replies:** 5\ **Last updated:** [June 28, 2018, 7:41pm UTC](https://forum.livingwithpolyneuropathy.org/t/mild-form-of-gbs/2315 "2018-06-28T19:41:56Z")
Hello everybody, First of all: my excuses for my english, I'm Dutch so I can't speak or write in English very well. I'm new on this forum and looking for some mental support and information :) 4 weeks ago it started with… --- ## [High Expectations](https://forum.livingwithpolyneuropathy.org/t/high-expectations/3602)
**Author:** [@Love4doxies](https://forum.livingwithpolyneuropathy.org/u/Love4doxies)\ **Replies:** 12\ **Last updated:** [May 25, 2018, 5:29pm UTC](https://forum.livingwithpolyneuropathy.org/t/high-expectations/3602 "2018-05-25T17:29:37Z")
Does anyone or did anyone have issues with other people believing you could do more physical activities than possible, or for longer periods of time than possible? I had to move back in with my parents and Im pushing mys… --- ## [Attack of the worries?](https://forum.livingwithpolyneuropathy.org/t/attack-of-the-worries/3298)
**Author:** [@Linne](https://forum.livingwithpolyneuropathy.org/u/Linne)\ **Replies:** 14\ **Last updated:** [May 9, 2018, 4:25am UTC](https://forum.livingwithpolyneuropathy.org/t/attack-of-the-worries/3298 "2018-05-09T04:25:22Z")
I have had GBS since 2007, I manage my pain with gabapentin, which doesn’t do it completely but helps, I was prescribed morphine but hated it so stopped. I had a long run up to my attack with various things happening. … --- ## [Aggressive form of GBS](https://forum.livingwithpolyneuropathy.org/t/aggressive-form-of-gbs/2355)
**Author:** [@Frank](https://forum.livingwithpolyneuropathy.org/u/Frank)\ **Replies:** 13\ **Last updated:** [March 16, 2018, 3:20pm UTC](https://forum.livingwithpolyneuropathy.org/t/aggressive-form-of-gbs/2355 "2018-03-16T15:20:53Z")
My son who is 26yrs old was diagnosed on Oct 28 2015. He received IVIG treatment right away and responded well. Left the hospital 6 days later under his own power to only have it come back 36hrs later and it has progress… --- ## [Nothing stops](https://forum.livingwithpolyneuropathy.org/t/nothing-stops/3415)
**Author:** [@Chris12](https://forum.livingwithpolyneuropathy.org/u/Chris12)\ **Replies:** 2\ **Last updated:** [January 18, 2018, 12:56pm UTC](https://forum.livingwithpolyneuropathy.org/t/nothing-stops/3415 "2018-01-18T12:56:02Z")
I was diagnosed with GBS 2 and half months ago and feel the same feelings and thoughts run through my mind. My wife and two kids had to move into her moms house due to financial hardships and I was the only one working d… --- ## [Gbs?](https://forum.livingwithpolyneuropathy.org/t/gbs/2204)
**Author:** [@TNGBS](https://forum.livingwithpolyneuropathy.org/u/TNGBS)\ **Replies:** 10\ **Last updated:** [January 1, 2018, 2:28pm UTC](https://forum.livingwithpolyneuropathy.org/t/gbs/2204 "2018-01-01T14:28:23Z")
Ok I just joined the forum. I have been reading through lots of different memebers stories. So after reading through lots and lots of them. l am wondering about my diagnosis. The reason is because I was said to have h… --- ## [My first moan](https://forum.livingwithpolyneuropathy.org/t/my-first-moan/3373)
**Author:** [@Xstitcher](https://forum.livingwithpolyneuropathy.org/u/Xstitcher)\ **Replies:** 7\ **Last updated:** [December 22, 2017, 8:15pm UTC](https://forum.livingwithpolyneuropathy.org/t/my-first-moan/3373 "2017-12-22T20:15:56Z")
5hBy 9I’m 77 and 2 1/2 Years in September before the flu jab out of a double medium to hard dose of GBS. I’m about 90% good now and really enjoy life. I go to physio twice a week. In September before the flu jab was a… --- ## [Recurring difficulties with Miller Fisher](https://forum.livingwithpolyneuropathy.org/t/recurring-difficulties-with-miller-fisher/2888)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 3\ **Last updated:** [October 2, 2017, 4:01pm UTC](https://forum.livingwithpolyneuropathy.org/t/recurring-difficulties-with-miller-fisher/2888 "2017-10-02T16:01:22Z")
My neurologist believes that I had the Miller Fisher Variant of GBS which occurred 2 & 1/2 years ago following a Tdap vaccine. Initially, I had a sharp persistent pain behind my right eye and numbness in my face which wa… --- ## [Feeling weempy](https://forum.livingwithpolyneuropathy.org/t/feeling-weempy/2300)
**Author:** [@kel](https://forum.livingwithpolyneuropathy.org/u/kel)\ **Replies:** 30\ **Last updated:** [September 6, 2017, 8:48pm UTC](https://forum.livingwithpolyneuropathy.org/t/feeling-weempy/2300 "2017-09-06T20:48:18Z")
i having a little numbness and tingling going on. my face is numb and tingling only on right side then i am having pin brick or bee sting feelings in face, neck, arms, muscle cramps along with burning and tingling in… [Next page](https://forum.livingwithpolyneuropathy.org/c/general/general-gbs-discussion/20.md?page=1)