# New Articles and Research - CIDP **URL:** https://forum.livingwithpolyneuropathy.org/c/general/new-articles-and-research-cidp-discussion/14.md [Latest](https://forum.livingwithpolyneuropathy.org/latest.md) · [Categories](https://forum.livingwithpolyneuropathy.org/categories.md) --- ## [About the New Articles and Research - CIDP category](https://forum.livingwithpolyneuropathy.org/t/about-the-new-articles-and-research-cidp-discussion-category/20)
**Author:** [@system](https://forum.livingwithpolyneuropathy.org/u/system)\ **Replies:** 0\ **Last updated:** [May 6, 2016, 4:41pm UTC](https://forum.livingwithpolyneuropathy.org/t/about-the-new-articles-and-research-cidp-discussion-category/20 "2016-05-06T16:41:20Z")
--- ## [Hydroxychloroquine and IVIG in Treating CIDP](https://forum.livingwithpolyneuropathy.org/t/hydroxychloroquine-and-ivig-in-treating-cidp/5348)
**Author:** [@zeke](https://forum.livingwithpolyneuropathy.org/u/zeke)\ **Replies:** 4\ **Last updated:** [October 27, 2021, 6:51pm UTC](https://forum.livingwithpolyneuropathy.org/t/hydroxychloroquine-and-ivig-in-treating-cidp/5348 "2021-10-27T18:51:59Z")
I came across this article from the NIH; https://pubmed.ncbi.nlm.nih.gov/29194677/ I shared this article with my neurologist and decided to allow me to try this therapy. I wish there were a way to quantify the results … --- ## [Remyelination](https://forum.livingwithpolyneuropathy.org/t/remyelination/944)
**Author:** [@ultimax](https://forum.livingwithpolyneuropathy.org/u/ultimax)\ **Replies:** 1\ **Last updated:** [April 28, 2016, 5:16pm UTC](https://forum.livingwithpolyneuropathy.org/t/remyelination/944 "2016-04-28T17:16:44Z")
As we all know that the cause of inflammatory pain and damage of nerves that cut motor signals leading to paralysis on most cases is caused my demyelination, It happens when our auto-immune system attacks and damage the … --- ## [Depression Damages Parts of the Brain, Research Concludes](https://forum.livingwithpolyneuropathy.org/t/depression-damages-parts-of-the-brain-research-concludes/960)
**Author:** [@LD\_Williams](https://forum.livingwithpolyneuropathy.org/u/LD_Williams)\ **Replies:** 1\ **Last updated:** [April 28, 2016, 5:12pm UTC](https://forum.livingwithpolyneuropathy.org/t/depression-damages-parts-of-the-brain-research-concludes/960 "2016-04-28T17:12:16Z")
Not directly related but i think quite a few of us have been there at some point http://www.iflscience.com/health-and-medicine/depression-damages-parts-brain-research-concludes --- ## [YouTube Lecture by Dr. Kenneth Gorson](https://forum.livingwithpolyneuropathy.org/t/youtube-lecture-by-dr-kenneth-gorson/991)
**Author:** [@JonJ](https://forum.livingwithpolyneuropathy.org/u/JonJ)\ **Replies:** 4\ **Last updated:** [November 14, 2015, 3:14am UTC](https://forum.livingwithpolyneuropathy.org/t/youtube-lecture-by-dr-kenneth-gorson/991 "2015-11-14T03:14:05Z")
FYI, there is a lecture entitled "Managing Your CIDP (Sorting Out Your Diagnosis and Treatment)" recently posted on YouTube. The lecturer is Dr. Kenneth Gorson, who is associated with the CIDP/GBS Center of Excellence at… --- ## [Neutron diffraction shows how myelin gets on your nerves](https://forum.livingwithpolyneuropathy.org/t/neutron-diffraction-shows-how-myelin-gets-on-your-nerves/948)
**Author:** [@LD\_Williams](https://forum.livingwithpolyneuropathy.org/u/LD_Williams)\ **Replies:** 0\ **Last updated:** [June 29, 2015, 7:38am UTC](https://forum.livingwithpolyneuropathy.org/t/neutron-diffraction-shows-how-myelin-gets-on-your-nerves/948 "2015-06-29T07:38:18Z")
More research being done, will only add to the knowledge and our understanding hopefully http://phys.org/news/2014-12-neutron-diffraction-myelin-nerves.html#jCp --- ## [New study in Electrophysiological & Nerve Ultrasound Parameters in Distinguishing Acute-onset Chronic from Acute Inflammatory Demyelinating Polyneuropathy. European Neurological Review, a peer-reviewe](https://forum.livingwithpolyneuropathy.org/t/new-study-in-electrophysiological-nerve-ultrasound-parameters-in-distinguishing-acute-onset-chronic-from-acute-inflammatory-demyelinating-polyneuropathy-european-neurological-review-a-peer-reviewe/940)
**Author:** [@LD\_Williams](https://forum.livingwithpolyneuropathy.org/u/LD_Williams)\ **Replies:** 0\ **Last updated:** [June 19, 2015, 4:50pm UTC](https://forum.livingwithpolyneuropathy.org/t/new-study-in-electrophysiological-nerve-ultrasound-parameters-in-distinguishing-acute-onset-chronic-from-acute-inflammatory-demyelinating-polyneuropathy-european-neurological-review-a-peer-reviewe/940 "2015-06-19T16:50:39Z")
New study in Electrophysiological & Nerve Ultrasound Parameters in Distinguishing Acute-onset Chronic from Acute Inflammatory Demyelinating Polyneuropathy. http://www.prweb.com/releases/2015/05/prweb12748945.htm --- ## [New rules for UK Hosps and IVIG usage link](https://forum.livingwithpolyneuropathy.org/t/new-rules-for-uk-hosps-and-ivig-usage-link/903)
**Author:** [@LD\_Williams](https://forum.livingwithpolyneuropathy.org/u/LD_Williams)\ **Replies:** 1\ **Last updated:** [April 29, 2015, 7:33am UTC](https://forum.livingwithpolyneuropathy.org/t/new-rules-for-uk-hosps-and-ivig-usage-link/903 "2015-04-29T07:33:10Z")
http://www.ivig.nhs.uk/ new guidelines for health authorities in the UK, including a national database to be built up of usage --- ## [CIDP variants](https://forum.livingwithpolyneuropathy.org/t/cidp-variants/818)
**Author:** [@jobe](https://forum.livingwithpolyneuropathy.org/u/jobe)\ **Replies:** 4\ **Last updated:** [January 4, 2015, 11:20pm UTC](https://forum.livingwithpolyneuropathy.org/t/cidp-variants/818 "2015-01-04T23:20:59Z")
I ran across this page and found the description of the CIDP variants interesting and informative. http://www.uptodate.com/contents/chronic-inflammatory-demyelinating-polyneuropathy-etiology-clinical-features-and-diagnos… --- ## [But will it be read?](https://forum.livingwithpolyneuropathy.org/t/but-will-it-be-read/799)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 4\ **Last updated:** [November 30, 2014, 4:52pm UTC](https://forum.livingwithpolyneuropathy.org/t/but-will-it-be-read/799 "2014-11-30T16:52:45Z")
A great article that covers SO much about IvIgG. http://onlinelibrary.wiley.com/doi/10.1002/mus.24526/pdf It is encouraging to read that science is working the CIDP/MMM/GBS chemistry. Long story short: Article is saying … --- ## [Good genetic news](https://forum.livingwithpolyneuropathy.org/t/good-genetic-news/788)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 0\ **Last updated:** [November 1, 2014, 6:42pm UTC](https://forum.livingwithpolyneuropathy.org/t/good-genetic-news/788 "2014-11-01T18:42:49Z")
http://www.nature.com/gene/journal/vaop/ncurrent/full/gene201459a.html I'm assuming HSCT corrects the perforin, amino acid and nonsense transcriptions defects So many mice have valiantly given their lives for our cause! h… --- ## [Combinded plazmapharesis and ivig treatment](https://forum.livingwithpolyneuropathy.org/t/combinded-plazmapharesis-and-ivig-treatment/781)
**Author:** [@yomtov](https://forum.livingwithpolyneuropathy.org/u/yomtov)\ **Replies:** 0\ **Last updated:** [October 28, 2014, 3:25am UTC](https://forum.livingwithpolyneuropathy.org/t/combinded-plazmapharesis-and-ivig-treatment/781 "2014-10-28T03:25:48Z")
CIDP%20PEIVIg%20Neurology2004\_62-155%20%281%29.pdfi was just given a report showing relusts using this combination giving .4mg/kg ivig following each PEX for cases were neither trearment individualy helped or stopped hel… --- ## [Best summary of CIDP & PN](https://forum.livingwithpolyneuropathy.org/t/best-summary-of-cidp-pn/778)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 1\ **Last updated:** [October 27, 2014, 9:37am UTC](https://forum.livingwithpolyneuropathy.org/t/best-summary-of-cidp-pn/778 "2014-10-27T09:37:06Z")
http://www.clevelandclinicmeded.com/medicalpubs/diseasemanagement/neurology/peripheral-neuropathy/ After dealing with CIDP and PN for 2 years (or maybe 17), I find this to be the best summary of many aspects of CIDP I've… --- ## [Wildwest 3-D view of our defective nemesis and life-saving antibody; IgG](https://forum.livingwithpolyneuropathy.org/t/wildwest-3-d-view-of-our-defective-nemesis-and-life-saving-antibody-igg/763)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 0\ **Last updated:** [October 12, 2014, 8:04pm UTC](https://forum.livingwithpolyneuropathy.org/t/wildwest-3-d-view-of-our-defective-nemesis-and-life-saving-antibody-igg/763 "2014-10-12T20:04:51Z")
http://www.sciencecodex.com/read/under\_the\_electron\_microscope\_a\_3d\_image\_of\_an\_individual\_protein-84845 Our CIDP defect resides at the bottom, on the right side of the large photo, where the strands of green protein are… --- ## [Neurologist's guide to you](https://forum.livingwithpolyneuropathy.org/t/neurologists-guide-to-you/737)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 0\ **Last updated:** [September 19, 2014, 10:43pm UTC](https://forum.livingwithpolyneuropathy.org/t/neurologists-guide-to-you/737 "2014-09-19T22:43:00Z")
Everyone of us with CIDP is probably referenced here. \*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\* http://neuromuscular.wustl.edu/antibody/pnimdem.html#cidp \*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\*\* CIDP can't be cured by herbal teas, acupuncture, voo-doo or mumbo-jumbo… --- ## [A hero and a dancing mom](https://forum.livingwithpolyneuropathy.org/t/a-hero-and-a-dancing-mom/726)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 1\ **Last updated:** [September 15, 2014, 8:27am UTC](https://forum.livingwithpolyneuropathy.org/t/a-hero-and-a-dancing-mom/726 "2014-09-15T08:27:40Z")
CIDP is a world-wide disease. The man in the article is a hero and the woman is a testament to adaption and determination. But still, most people know little about this damned disease. http://www.chinapost.com.tw/taiwan… --- ## [Hsct](https://forum.livingwithpolyneuropathy.org/t/hsct/717)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 2\ **Last updated:** [September 8, 2014, 12:08am UTC](https://forum.livingwithpolyneuropathy.org/t/hsct/717 "2014-09-08T00:08:33Z")
My insurance covers it.... so? Good story, happy ending. http://www.stemcellresearchfacts.org/bryan-hinkle-the-comeback-kid/ --- ## [Size matters... with pictures](https://forum.livingwithpolyneuropathy.org/t/size-matters-with-pictures/715)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 0\ **Last updated:** [September 3, 2014, 2:05am UTC](https://forum.livingwithpolyneuropathy.org/t/size-matters-with-pictures/715 "2014-09-03T02:05:56Z")
With CIDP we are dealing with body constructs that are mico-meters, nano meters in size. Those axon that give us so much trouble are around 1 milimeter in my little finger to 2 meters long going to my toes (I'm tall). I… --- ## [Current CIDP Trials](https://forum.livingwithpolyneuropathy.org/t/current-cidp-trials/690)
**Author:** [@mabes](https://forum.livingwithpolyneuropathy.org/u/mabes)\ **Replies:** 1\ **Last updated:** [August 3, 2014, 4:21pm UTC](https://forum.livingwithpolyneuropathy.org/t/current-cidp-trials/690 "2014-08-03T16:21:15Z")
Good news, there seems to be quite a few. http://www.trialdetails.com/search/CIDP --- ## [Our nemesis in living color!](https://forum.livingwithpolyneuropathy.org/t/our-nemesis-in-living-color/666)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 0\ **Last updated:** [July 3, 2014, 6:18am UTC](https://forum.livingwithpolyneuropathy.org/t/our-nemesis-in-living-color/666 "2014-07-03T06:18:58Z")
http://www.med.upenn.edu/cullenlab/images.shtml Rats, pigs,kitty-kats... neurons all work the same way. And, neuron movies at the end of the page! By the way, one popcorn piece is about a BILLION times the size of a sin… --- ## [Clincal trial](https://forum.livingwithpolyneuropathy.org/t/clincal-trial/662)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 1\ **Last updated:** [June 29, 2014, 2:19am UTC](https://forum.livingwithpolyneuropathy.org/t/clincal-trial/662 "2014-06-29T02:19:13Z")
Clinical trial of 20% subcutaneous Ig: http://www.neuropathy.org/site/News2?page=NewsArticle&id=8699&security=1&news\_iv\_ctrl=1101 I'm out of the trial area. This treatment method would be SO much better than being strapp… --- ## [Clincal trial](https://forum.livingwithpolyneuropathy.org/t/clincal-trial/663)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 1\ **Last updated:** [June 26, 2014, 12:43pm UTC](https://forum.livingwithpolyneuropathy.org/t/clincal-trial/663 "2014-06-26T12:43:16Z")
Clinical trial of 20% subcutaneous Ig: http://www.neuropathy.org/site/News2?page=NewsArticle&id=8699&security=1&news\_iv\_ctrl=1101 I'm out of the trial area. This treatment method would be SO much better than being strapp… --- ## [CIDP video- neurologist speak about diagnosing, treatments and prognosis](https://forum.livingwithpolyneuropathy.org/t/cidp-video-neurologist-speak-about-diagnosing-treatments-and-prognosis/661)
**Author:** [@mabes](https://forum.livingwithpolyneuropathy.org/u/mabes)\ **Replies:** 3\ **Last updated:** [June 25, 2014, 10:43pm UTC](https://forum.livingwithpolyneuropathy.org/t/cidp-video-neurologist-speak-about-diagnosing-treatments-and-prognosis/661 "2014-06-25T22:43:11Z")
http://www.nerveandmuscle.org/index.php?option=com\_content&view=article&id=86:cidp&catid=18:videos&Itemid=145 --- ## [Required reading](https://forum.livingwithpolyneuropathy.org/t/required-reading/641)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 1\ **Last updated:** [June 10, 2014, 11:16am UTC](https://forum.livingwithpolyneuropathy.org/t/required-reading/641 "2014-06-10T11:16:47Z")
This is a great forum and would be even better if the following article was read and studied: http://emedicine.medscape.com/article/1172965-overview CIDP is an autoimmune disease. In CIDP, IgG is transcribed incorrectly … --- ## [Clinical Trials](https://forum.livingwithpolyneuropathy.org/t/clinical-trials/539)
**Author:** [@Rev\_Mark](https://forum.livingwithpolyneuropathy.org/u/Rev_Mark)\ **Replies:** 0\ **Last updated:** [February 25, 2014, 7:34pm UTC](https://forum.livingwithpolyneuropathy.org/t/clinical-trials/539 "2014-02-25T19:34:02Z")
This is a good site for those who want to follow clinical trials: http://www.clinicaltrials.gov/ct2/results?term=cidp&pg=1 Rev. Mark