# Support **URL:** https://forum.livingwithpolyneuropathy.org/c/support/28.md?page=1 [Latest](https://forum.livingwithpolyneuropathy.org/latest.md) · [Categories](https://forum.livingwithpolyneuropathy.org/categories.md) **Page:** 2 --- ## [Guilliane barre syndrome](https://forum.livingwithpolyneuropathy.org/t/guilliane-barre-syndrome/2192)
**Author:** [@Donna1](https://forum.livingwithpolyneuropathy.org/u/Donna1)\ **Replies:** 10\ **Last updated:** [February 16, 2015, 7:45pm UTC](https://forum.livingwithpolyneuropathy.org/t/guilliane-barre-syndrome/2192 "2015-02-16T19:45:51Z")
My mum has been told she has guillain barre syndrome . She was admitted to hospital 6 days ago as she fell when her body just wouldn't let her stand anymore . She has lost all feelings in arms and legs and had pins and n… --- ## [Suicide Hotline Numbers](https://forum.livingwithpolyneuropathy.org/t/suicide-hotline-numbers/1660)
**Author:** [@Ben\_Munoz](https://forum.livingwithpolyneuropathy.org/u/Ben_Munoz)\ **Replies:** 1\ **Last updated:** [February 9, 2015, 7:15pm UTC](https://forum.livingwithpolyneuropathy.org/t/suicide-hotline-numbers/1660 "2015-02-09T19:15:46Z")
USA : 1800-784-8433 ; 1800-784-2433 ; 1800-273-8255 Argentina : 54-0223-493-0430 Austria : 01-713-3374 Australia Lifeline Crisis: 13 11 14 24-hours Australian Kids Helpline Crisis: 1-800-55-1800 24-hours Australian Su… --- ## [Great timing](https://forum.livingwithpolyneuropathy.org/t/great-timing/2123)
**Author:** [@mallory](https://forum.livingwithpolyneuropathy.org/u/mallory)\ **Replies:** 2\ **Last updated:** [November 16, 2014, 9:37pm UTC](https://forum.livingwithpolyneuropathy.org/t/great-timing/2123 "2014-11-16T21:37:27Z")
Hi everyone, I was talking to my daughter in Colorado today and just balling, because I miss her and my three grandsons and I would give anything to go home but I cant . in my email this morning I got a friend request. t… --- ## [What now](https://forum.livingwithpolyneuropathy.org/t/what-now/2110)
**Author:** [@smitty](https://forum.livingwithpolyneuropathy.org/u/smitty)\ **Replies:** 5\ **Last updated:** [September 24, 2014, 8:42am UTC](https://forum.livingwithpolyneuropathy.org/t/what-now/2110 "2014-09-24T08:42:07Z")
Im on the tail end of this syndrome and it hascompletely changed everything in my life, its been a year and i dont know if ill ever be the same or feel the same about the world. I dont know if i can make anyone ever unde… --- ## [Knowing when to say](https://forum.livingwithpolyneuropathy.org/t/knowing-when-to-say/368)
**Author:** [@calaart](https://forum.livingwithpolyneuropathy.org/u/calaart)\ **Replies:** 4\ **Last updated:** [September 7, 2014, 1:41pm UTC](https://forum.livingwithpolyneuropathy.org/t/knowing-when-to-say/368 "2014-09-07T13:41:35Z")
I am so frustrated! I feel like people without this condtion don't really understand what it means to really not have the energy needed to do things and that some of us have such limited energy, we have to measure every … --- ## [Post traumatic stress and GBS](https://forum.livingwithpolyneuropathy.org/t/post-traumatic-stress-and-gbs/2101)
**Author:** [@Gayleen](https://forum.livingwithpolyneuropathy.org/u/Gayleen)\ **Replies:** 4\ **Last updated:** [September 7, 2014, 12:17am UTC](https://forum.livingwithpolyneuropathy.org/t/post-traumatic-stress-and-gbs/2101 "2014-09-07T00:17:11Z")
Just went for physio for the first time after waiting 7 weeks to get in and ended up in tears as all of my family are sick of me "being sick and still having GBS". The physio didn't want to treat me because of my emotion… --- ## [So nervous](https://forum.livingwithpolyneuropathy.org/t/so-nervous/2092)
**Author:** [@Deana\_A](https://forum.livingwithpolyneuropathy.org/u/Deana_A)\ **Replies:** 4\ **Last updated:** [September 4, 2014, 6:05pm UTC](https://forum.livingwithpolyneuropathy.org/t/so-nervous/2092 "2014-09-04T18:05:23Z")
I was diagnosed with GBS June 23rd, 2014. I came home July 16th only to return five days later. I spent nearly another month hospitalized being discharged on August 19th. To be honest I don't think they knew what was wro… --- ## [Wee pines 4 moss later](https://forum.livingwithpolyneuropathy.org/t/wee-pines-4-moss-later/2078)
**Author:** [@Gayleen](https://forum.livingwithpolyneuropathy.org/u/Gayleen)\ **Replies:** 35\ **Last updated:** [August 25, 2014, 3:15pm UTC](https://forum.livingwithpolyneuropathy.org/t/wee-pines-4-moss-later/2078 "2014-08-25T15:15:43Z")
I'm on the mend and am walking on my own now but find when I receive verbal well wishes " about how awful it must have been" I end up in tears. As a result I don't want to go out in case I encounter these well meaning we… --- ## [Realizing I'm not as strong as I was](https://forum.livingwithpolyneuropathy.org/t/realizing-im-not-as-strong-as-i-was/678)
**Author:** [@mistylynn81](https://forum.livingwithpolyneuropathy.org/u/mistylynn81)\ **Replies:** 11\ **Last updated:** [August 11, 2014, 9:37am UTC](https://forum.livingwithpolyneuropathy.org/t/realizing-im-not-as-strong-as-i-was/678 "2014-08-11T09:37:40Z")
earHi ladies and gents.. so I was diagnosed last y They said I may have hCIDP but didnt wanna do any treatment yet. Well now fast forward a year and all my symptoms are back, plus some I didnt have and I'm so frustrated.… --- ## [CIDP and family](https://forum.livingwithpolyneuropathy.org/t/cidp-and-family/629)
**Author:** [@Doda](https://forum.livingwithpolyneuropathy.org/u/Doda)\ **Replies:** 16\ **Last updated:** [June 8, 2014, 12:42pm UTC](https://forum.livingwithpolyneuropathy.org/t/cidp-and-family/629 "2014-06-08T12:42:29Z")
My daughter has cidp. I want to know how do you getting throughout with yours family members, friends .., because I feel so helpless and feel like I have to do something more...I would like to be on her place. It's not r… --- ## [Disbelief by others](https://forum.livingwithpolyneuropathy.org/t/disbelief-by-others/608)
**Author:** [@Robert\_M](https://forum.livingwithpolyneuropathy.org/u/Robert_M)\ **Replies:** 7\ **Last updated:** [May 15, 2014, 11:39pm UTC](https://forum.livingwithpolyneuropathy.org/t/disbelief-by-others/608 "2014-05-15T23:39:15Z")
One of the more difficult mentally things to deal with is people that hunk you are faking. I have a thirty year old daughter and her response was you know dad it's fraud to go on SSDI when you aren't really hurt. : ( I t… --- ## [I am beyond devastated and really don't want to live but i must](https://forum.livingwithpolyneuropathy.org/t/i-am-beyond-devastated-and-really-dont-want-to-live-but-i-must/612)
**Author:** [@joe](https://forum.livingwithpolyneuropathy.org/u/joe)\ **Replies:** 6\ **Last updated:** [May 8, 2014, 2:18am UTC](https://forum.livingwithpolyneuropathy.org/t/i-am-beyond-devastated-and-really-dont-want-to-live-but-i-must/612 "2014-05-08T02:18:36Z")
Folks, I have had the benevolent fortune to have been married the most wonderful woman inside and out that an ugly old cuss such as myself didn't deserve. We were married for 40 wonderful years. Several years ago, she d… --- ## [Wow-- I'm so mad right now](https://forum.livingwithpolyneuropathy.org/t/wow-im-so-mad-right-now/543)
**Author:** [@Jessica\_C](https://forum.livingwithpolyneuropathy.org/u/Jessica_C)\ **Replies:** 3\ **Last updated:** [March 26, 2014, 4:34am UTC](https://forum.livingwithpolyneuropathy.org/t/wow-im-so-mad-right-now/543 "2014-03-26T04:34:13Z")
I think I might have said this before-- but my mother's support for me with CIDP is nearing zero. Tonight she really outdid herself-- Her statement was "you use your CIDP as an excuse to be lazy and not help me" I just a… --- ## [UPDATE Genetic Blood Test/Weight Gain/Little Urination](https://forum.livingwithpolyneuropathy.org/t/update-genetic-blood-test-weight-gain-little-urination/558)
**Author:** [@Muppet](https://forum.livingwithpolyneuropathy.org/u/Muppet)\ **Replies:** 2\ **Last updated:** [March 13, 2014, 6:31pm UTC](https://forum.livingwithpolyneuropathy.org/t/update-genetic-blood-test-weight-gain-little-urination/558 "2014-03-13T18:31:27Z")
I try to laugh and remain positive. My energy is low. I am full of fear. --- ## [Help I could use someone to talk to](https://forum.livingwithpolyneuropathy.org/t/help-i-could-use-someone-to-talk-to/489)
**Author:** [@jeffrey](https://forum.livingwithpolyneuropathy.org/u/jeffrey)\ **Replies:** 14\ **Last updated:** [December 22, 2013, 4:35pm UTC](https://forum.livingwithpolyneuropathy.org/t/help-i-could-use-someone-to-talk-to/489 "2013-12-22T16:35:00Z")
I am looking for someone that can listen to me and help me sort through some things. Let me start out with something about me, I am 48 years old, I am madly in love with my wife of 25 years and proud of my four ki… --- ## [Exhausted](https://forum.livingwithpolyneuropathy.org/t/exhausted/94)
**Author:** [@Shelley66](https://forum.livingwithpolyneuropathy.org/u/Shelley66)\ **Replies:** 3\ **Last updated:** [March 23, 2012, 12:17am UTC](https://forum.livingwithpolyneuropathy.org/t/exhausted/94 "2012-03-23T00:17:22Z")
Depressed Yes! It is so hard not being able to do the things I used to do even as simple as making dinner. Things are getting worse everyday for past 2 months. I have swallowing problems now I aspirate into my lung when … --- ## [Something to lift your spirits! Make the troubles irrelevant](https://forum.livingwithpolyneuropathy.org/t/something-to-lift-your-spirits-make-the-troubles-irrelevant/62)
**Author:** [@Alli\_W](https://forum.livingwithpolyneuropathy.org/u/Alli_W)\ **Replies:** 1\ **Last updated:** [February 2, 2012, 6:41pm UTC](https://forum.livingwithpolyneuropathy.org/t/something-to-lift-your-spirits-make-the-troubles-irrelevant/62 "2012-02-02T18:41:48Z")
If something is troubling you, or doesn’t agree with you, don’t fight it. Instead, make it irrelevant. Create so much goodness in your life that it more than offsets the difficulties. Rather than fighting against the t… [Previous page](https://forum.livingwithpolyneuropathy.org/c/support/28.md)