# Symptoms and Treatments **URL:** https://forum.livingwithpolyneuropathy.org/c/symptoms-treatments/49.md [Latest](https://forum.livingwithpolyneuropathy.org/latest.md) · [Categories](https://forum.livingwithpolyneuropathy.org/categories.md) --- ## [About the Symptoms and Treatments category](https://forum.livingwithpolyneuropathy.org/t/about-the-symptoms-and-treatments-category/5335)
**Author:** [@Ben\_Munoz](https://forum.livingwithpolyneuropathy.org/u/Ben_Munoz)\ **Replies:** 0
Share to us the treatments that had helped you resolve your symptoms. --- ## [Antibody?](https://forum.livingwithpolyneuropathy.org/t/antibody/2369)
**Author:** [@cwilson1987](https://forum.livingwithpolyneuropathy.org/u/cwilson1987)\ **Replies:** 1\ **Last updated:** [August 5, 2025, 2:36pm UTC](https://forum.livingwithpolyneuropathy.org/t/antibody/2369 "2025-08-05T14:36:48Z")
Hi guys, Merry Christmas! Without getting into too much detail, I've been to many drs lately and was diagnosed with a connective tissue disease and POTS. They ran a blood test on me to make sure nothing else was going … --- ## [IViG skin reaction](https://forum.livingwithpolyneuropathy.org/t/ivig-skin-reaction/2354)
**Author:** [@Roo](https://forum.livingwithpolyneuropathy.org/u/Roo)\ **Replies:** 3\ **Last updated:** [March 6, 2023, 2:52am UTC](https://forum.livingwithpolyneuropathy.org/t/ivig-skin-reaction/2354 "2023-03-06T02:52:18Z")
Hi guys My husband had a bad reaction after his 7th IViG infusion. Started as a rash on his palms and soles of his feet almost like tiny blisters under the skin. Then they started severely peeling and cracking. Painful a… --- ## [Gbs adverse event of covid vaccine](https://forum.livingwithpolyneuropathy.org/t/gbs-adverse-event-of-covid-vaccine/5534)
**Author:** [@Jess](https://forum.livingwithpolyneuropathy.org/u/Jess)\ **Replies:** 9\ **Last updated:** [December 25, 2021, 2:28pm UTC](https://forum.livingwithpolyneuropathy.org/t/gbs-adverse-event-of-covid-vaccine/5534 "2021-12-25T14:28:53Z")
I was diagnosed with GBS twice. The first one was 9 years ago and the second one was just a month ago. It happened 5 days after my 2nd shot of the covid vaccine. The same symptoms I felt were the numbness of the tip of t… --- ## [Today marks my 8th year GBS Anniversary](https://forum.livingwithpolyneuropathy.org/t/today-marks-my-8th-year-gbs-anniversary/5468)
**Author:** [@Spencer](https://forum.livingwithpolyneuropathy.org/u/Spencer)\ **Replies:** 12\ **Last updated:** [November 14, 2021, 9:22pm UTC](https://forum.livingwithpolyneuropathy.org/t/today-marks-my-8th-year-gbs-anniversary/5468 "2021-11-14T21:22:56Z")
It’s been 8 years since I was stricken with this disorder. Though I have not fully recovered 100%, I’m just thankful for what God has given me back. He has strengthen my faith in him and thankful and not take my health … --- ## [CIDP Treatment](https://forum.livingwithpolyneuropathy.org/t/cidp-treatment/5542)
**Author:** [@j-dog](https://forum.livingwithpolyneuropathy.org/u/j-dog)\ **Replies:** 1\ **Last updated:** [September 19, 2021, 3:17pm UTC](https://forum.livingwithpolyneuropathy.org/t/cidp-treatment/5542 "2021-09-19T15:17:52Z")
Had a nice chat with a visiting Anaesthesiologist from Michigan who treats CIDP down there. He’s using very low dose Procytox or Imuran. Not his patient and wrong country…but anyone else with experience with drugs like… --- ## [Shortness of breath](https://forum.livingwithpolyneuropathy.org/t/shortness-of-breath/668)
**Author:** [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Replies:** 23\ **Last updated:** [April 23, 2021, 5:04pm UTC](https://forum.livingwithpolyneuropathy.org/t/shortness-of-breath/668 "2021-04-23T17:04:17Z")
I have shortness of breath that effects only one lung, my left lung. I've assumed it was CIDP, and brought about by demeylinaiton of the phernic nerve, that being the common denominator with CIDP. Do you have SOB in one … --- ## [Skin peeling](https://forum.livingwithpolyneuropathy.org/t/skin-peeling/1089)
**Author:** [@Faith2](https://forum.livingwithpolyneuropathy.org/u/Faith2)\ **Replies:** 6\ **Last updated:** [December 6, 2020, 3:17pm UTC](https://forum.livingwithpolyneuropathy.org/t/skin-peeling/1089 "2020-12-06T15:17:03Z")
I was diagnosed with GBS in Aug. 2013. I moved to another state where I was rediagnosed with CIDP in Sept. 2015. I'm having dry blotches on my body which started with the palm of my hands skin beginning to peel off and a… --- ## [Tight band around ribcage](https://forum.livingwithpolyneuropathy.org/t/tight-band-around-ribcage/688)
**Author:** [@dalaxna31](https://forum.livingwithpolyneuropathy.org/u/dalaxna31)\ **Replies:** 25\ **Last updated:** [November 10, 2020, 5:27pm UTC](https://forum.livingwithpolyneuropathy.org/t/tight-band-around-ribcage/688 "2020-11-10T17:27:24Z")
Hi I am starting this discussion in hopes that someone has had a similar issue. I have had a tight band around my ribcage that has been there for 3 months or so. None of my doctors have any thought to what it could be,… --- ## [Muscle Twitches](https://forum.livingwithpolyneuropathy.org/t/muscle-twitches/2086)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 21\ **Last updated:** [September 29, 2020, 10:28am UTC](https://forum.livingwithpolyneuropathy.org/t/muscle-twitches/2086 "2020-09-29T10:28:04Z")
I have had muscle twitches that started when this first came on in June and have continued intermittently since then. They had almost disappeared until I attempted to jog a little yesterday. I was a runner before this ha… --- ## [Struggling with CIDP](https://forum.livingwithpolyneuropathy.org/t/struggling-with-cidp/4692)
**Author:** [@Wolfgar](https://forum.livingwithpolyneuropathy.org/u/Wolfgar)\ **Replies:** 6\ **Last updated:** [April 1, 2020, 4:38pm UTC](https://forum.livingwithpolyneuropathy.org/t/struggling-with-cidp/4692 "2020-04-01T16:38:06Z")
I was struggling with Chronic Inflammatory Demylenating Polyneuropathy. This started about 3 years ago when I was 50 and I got an upper respiratory cold… this cold lasted longer than normal with a cough that went on for … --- ## [Loss of sexual function](https://forum.livingwithpolyneuropathy.org/t/loss-of-sexual-function/583)
**Author:** [@Robert\_M](https://forum.livingwithpolyneuropathy.org/u/Robert_M)\ **Replies:** 12\ **Last updated:** [March 22, 2020, 9:07am UTC](https://forum.livingwithpolyneuropathy.org/t/loss-of-sexual-function/583 "2020-03-22T09:07:50Z")
I have a question? Has anyone experience loss of sexual function from CIDP . I have been as healthy and active as a prize bull. Until CIDP set in then well to put it frankly . Where's the beef ?? Is there any help for th… --- ## [Tinnitus... has anyone experienced it?](https://forum.livingwithpolyneuropathy.org/t/tinnitus-has-anyone-experienced-it/572)
**Author:** [@BelenL](https://forum.livingwithpolyneuropathy.org/u/BelenL)\ **Replies:** 12\ **Last updated:** [March 18, 2020, 9:35am UTC](https://forum.livingwithpolyneuropathy.org/t/tinnitus-has-anyone-experienced-it/572 "2020-03-18T09:35:10Z")
Hi everybody! My name is Belén and I was diagnosed with CIDP back in 2010. I'm in remission now since that year. I've experienced pain sometimes since then, though, and the paralysis in my face didn't really go away bu… --- ## [Ivig how long will i need it?](https://forum.livingwithpolyneuropathy.org/t/ivig-how-long-will-i-need-it/4560)
**Author:** [@robbyj](https://forum.livingwithpolyneuropathy.org/u/robbyj)\ **Replies:** 11\ **Last updated:** [November 18, 2019, 12:52am UTC](https://forum.livingwithpolyneuropathy.org/t/ivig-how-long-will-i-need-it/4560 "2019-11-18T00:52:43Z")
been on it for 4 years every 3 weeks 2 days each infusion --- ## [Thankful and grateful for life](https://forum.livingwithpolyneuropathy.org/t/thankful-and-grateful-for-life/3987)
**Author:** [@Snuffywife](https://forum.livingwithpolyneuropathy.org/u/Snuffywife)\ **Replies:** 3\ **Last updated:** [May 16, 2019, 1:30pm UTC](https://forum.livingwithpolyneuropathy.org/t/thankful-and-grateful-for-life/3987 "2019-05-16T13:30:45Z")
I first want to thank this group for caring and supporting people like me who live with polyneuropathy. My name is Cynthia and I ask for prayers for healing and ability to function better. I recently took on teaching t… --- ## [Weather Conditions](https://forum.livingwithpolyneuropathy.org/t/weather-conditions/632)
**Author:** [@Mwanzagal](https://forum.livingwithpolyneuropathy.org/u/Mwanzagal)\ **Replies:** 21\ **Last updated:** [March 11, 2019, 12:34pm UTC](https://forum.livingwithpolyneuropathy.org/t/weather-conditions/632 "2019-03-11T12:34:46Z")
Does anyone else feel a change in their leg conditions when a storm is brewing??? I have intense throbbing and tingling when there is a storm coming and wonder if it would be related? I have CIDP and finished my round … --- ## [Foot Drop](https://forum.livingwithpolyneuropathy.org/t/foot-drop/848)
**Author:** [@raven7](https://forum.livingwithpolyneuropathy.org/u/raven7)\ **Replies:** 11\ **Last updated:** [March 7, 2019, 3:53am UTC](https://forum.livingwithpolyneuropathy.org/t/foot-drop/848 "2019-03-07T03:53:49Z")
Does anyone have foot drop with CIDP that resolved itself? I was my first symptom. I have had 2 round of IVIG of 4 days and have had a significant strength improvement in my legs and less pain grateful for that,,,but foo… --- ## [Allergic reaction to IVIG](https://forum.livingwithpolyneuropathy.org/t/allergic-reaction-to-ivig/1051)
**Author:** [@Papa\_Ray](https://forum.livingwithpolyneuropathy.org/u/Papa_Ray)\ **Replies:** 16\ **Last updated:** [March 3, 2019, 6:36am UTC](https://forum.livingwithpolyneuropathy.org/t/allergic-reaction-to-ivig/1051 "2019-03-03T06:36:17Z")
At 4:58pm on January 3, 2016, \[\]Papa Ray said… I had four days of IVIG treatments the end of November and had the usual side effects, a headache for about four days and body cramps (can we call them Charlie Horses) thro… --- ## [Accupuncture and CIDP](https://forum.livingwithpolyneuropathy.org/t/accupuncture-and-cidp/331)
**Author:** [@Madonnart](https://forum.livingwithpolyneuropathy.org/u/Madonnart)\ **Replies:** 5\ **Last updated:** [October 18, 2018, 9:17pm UTC](https://forum.livingwithpolyneuropathy.org/t/accupuncture-and-cidp/331 "2018-10-18T21:17:17Z")
I have heard a lot about the benefit of accupuncture in CIDP. Has any one used it and has it helped? --- ## [7 Centers of Excellence for CIDP/GBS in the World](https://forum.livingwithpolyneuropathy.org/t/7-centers-of-excellence-for-cidp-gbs-in-the-world/80)
**Author:** [@jennyg](https://forum.livingwithpolyneuropathy.org/u/jennyg)\ **Replies:** 14\ **Last updated:** [July 29, 2018, 11:52pm UTC](https://forum.livingwithpolyneuropathy.org/t/7-centers-of-excellence-for-cidp-gbs-in-the-world/80 "2018-07-29T23:52:24Z")
I would encourage anyone to check these centers out (by searching) and see if one is close enough to travel to for them. These drs are top notch. I won't mention which one I go to, but it was certainly a life saver, so t… --- ## [TENS AND EMS: has any body regularly use it?](https://forum.livingwithpolyneuropathy.org/t/tens-and-ems-has-any-body-regularly-use-it/318)
**Author:** [@ultimax](https://forum.livingwithpolyneuropathy.org/u/ultimax)\ **Replies:** 5\ **Last updated:** [July 6, 2018, 8:38pm UTC](https://forum.livingwithpolyneuropathy.org/t/tens-and-ems-has-any-body-regularly-use-it/318 "2018-07-06T20:38:13Z")
I do and felt signs of improvement on pain management on my lower back down to my soles. TENS (Transcutaneous electrical nerve stimulation) and EMS (Electrical muscle stimulation) have helped me go through the daily disc… --- ## [Does smoking marijuana effect CIDP?](https://forum.livingwithpolyneuropathy.org/t/does-smoking-marijuana-effect-cidp/432)
**Author:** [@Heather\_R](https://forum.livingwithpolyneuropathy.org/u/Heather_R)\ **Replies:** 26\ **Last updated:** [July 3, 2018, 10:12pm UTC](https://forum.livingwithpolyneuropathy.org/t/does-smoking-marijuana-effect-cidp/432 "2018-07-03T22:12:47Z")
I was looking for anyone that may smoke marijuana... Does it have a positive or negative effect on people that smoke it. I have read a lot of research that it does help some people with some diseases but cannot find anyt… --- ## [Has anyone been misdiagnosed with CIDP to find out you had POEMS? similar symptoms](https://forum.livingwithpolyneuropathy.org/t/has-anyone-been-misdiagnosed-with-cidp-to-find-out-you-had-poems-similar-symptoms/1082)
**Author:** [@fitzp](https://forum.livingwithpolyneuropathy.org/u/fitzp)\ **Replies:** 7\ **Last updated:** [June 29, 2018, 8:25pm UTC](https://forum.livingwithpolyneuropathy.org/t/has-anyone-been-misdiagnosed-with-cidp-to-find-out-you-had-poems-similar-symptoms/1082 "2018-06-29T20:25:54Z")
Have any of you ever been diagnosed with CIDP and then find out you actually had POEMS? I'm a multiple myeloma patient (blood cancer) and have been diagnosed by my neurologist with CIDP. This week I see my oncologist and… --- ## [Symptoms - Just Checking](https://forum.livingwithpolyneuropathy.org/t/symptoms-just-checking/1053)
**Author:** [@Panthers12](https://forum.livingwithpolyneuropathy.org/u/Panthers12)\ **Replies:** 12\ **Last updated:** [May 28, 2018, 8:48pm UTC](https://forum.livingwithpolyneuropathy.org/t/symptoms-just-checking/1053 "2018-05-28T20:48:46Z")
Hello all. I'm new to this forum having just received a CIDP diagnosis a few months ago. I've been dealing with symptoms for a number of years, but wanted to touch base with people who are more knowledgeable than me ab… --- ## [Neurologist in Bay area, California: for GBS](https://forum.livingwithpolyneuropathy.org/t/neurologist-in-bay-area-california-for-gbs/3383)
**Author:** [@Greenpea](https://forum.livingwithpolyneuropathy.org/u/Greenpea)\ **Replies:** 6\ **Last updated:** [March 5, 2018, 3:48am UTC](https://forum.livingwithpolyneuropathy.org/t/neurologist-in-bay-area-california-for-gbs/3383 "2018-03-05T03:48:03Z")
Hello all I am interested to get a second opinion for my diagnosis of GBS, normal EMG/ NCV except for one distal nerve with chronic nerve damage. Any suggestions for a neurologist? We have Stanford and UCSF , academi… --- ## [My holistic approach](https://forum.livingwithpolyneuropathy.org/t/my-holistic-approach/3422)
**Author:** [@OTwithCIDP](https://forum.livingwithpolyneuropathy.org/u/OTwithCIDP)\ **Replies:** 5\ **Last updated:** [January 22, 2018, 6:32pm UTC](https://forum.livingwithpolyneuropathy.org/t/my-holistic-approach/3422 "2018-01-22T18:32:03Z")
I am convinced that the root cause of CIDP (or any other autoimmune disease for that matter) is multifaceted and should be treated holistically. In my case, and in many other cases that I’ve read or heard about, stress a… --- ## [Relapse?](https://forum.livingwithpolyneuropathy.org/t/relapse/2161)
**Author:** [@A\_Mom\_on\_Spin](https://forum.livingwithpolyneuropathy.org/u/A_Mom_on_Spin)\ **Replies:** 24\ **Last updated:** [January 19, 2018, 5:14am UTC](https://forum.livingwithpolyneuropathy.org/t/relapse/2161 "2018-01-19T05:14:42Z")
Hello all, While I'm quite active myself on the Sjogren's Syndrom support page, this is my first time posting here. Unfortunately my three daughters and I are all affected with autoimmune issues. My youngest daughter was… --- ## [No abnormal EKG/NCS](https://forum.livingwithpolyneuropathy.org/t/no-abnormal-ekg-ncs/2124)
**Author:** [@rockthecasbah121](https://forum.livingwithpolyneuropathy.org/u/rockthecasbah121)\ **Replies:** 16\ **Last updated:** [November 20, 2017, 5:15am UTC](https://forum.livingwithpolyneuropathy.org/t/no-abnormal-ekg-ncs/2124 "2017-11-20T05:15:51Z")
I had an emg/ncs done today and the doctor who performed it stated that nothing stood out as abnormal. I'm about four weeks in and my legs and arms feel a lot better than they did. However, I still feel weakness, twitchi… --- ## [Over the counter relief?](https://forum.livingwithpolyneuropathy.org/t/over-the-counter-relief/815)
**Author:** [@Anne1](https://forum.livingwithpolyneuropathy.org/u/Anne1)\ **Replies:** 24\ **Last updated:** [October 26, 2017, 11:52am UTC](https://forum.livingwithpolyneuropathy.org/t/over-the-counter-relief/815 "2017-10-26T11:52:28Z")
I am recently diagnoised with CIDP by my spine specialist. I have to wait until the 14th of January to see the Neurologist, The spine specialist didn't change any medications, my GP hasn't suggested anything; they are a… --- ## [Allergic skin reaction to IVIG?](https://forum.livingwithpolyneuropathy.org/t/allergic-skin-reaction-to-ivig/298)
**Author:** [@quilter1](https://forum.livingwithpolyneuropathy.org/u/quilter1)\ **Replies:** 38\ **Last updated:** [October 2, 2017, 6:58am UTC](https://forum.livingwithpolyneuropathy.org/t/allergic-skin-reaction-to-ivig/298 "2017-10-02T06:58:10Z")
During my second full five day session on the IVIG, I developed some kind of a skin reaction. I could not start my third session until I got a skin biopsy. I did so and it showed that it was caused by a drug reaction. H… [Next page](https://forum.livingwithpolyneuropathy.org/c/symptoms-treatments/49.md?page=1)