# Symptoms - GBS **URL:** https://forum.livingwithpolyneuropathy.org/c/symptoms-treatments/symptoms-gbs-discussion/21.md [Latest](https://forum.livingwithpolyneuropathy.org/latest.md) · [Categories](https://forum.livingwithpolyneuropathy.org/categories.md) --- ## [About the Symptoms - GBS category](https://forum.livingwithpolyneuropathy.org/t/about-the-symptoms-gbs-discussion-category/1861)
**Author:** [@system](https://forum.livingwithpolyneuropathy.org/u/system)\ **Replies:** 0\ **Last updated:** [May 6, 2016, 6:51pm UTC](https://forum.livingwithpolyneuropathy.org/t/about-the-symptoms-gbs-discussion-category/1861 "2016-05-06T18:51:24Z")
--- ## [Antibody?](https://forum.livingwithpolyneuropathy.org/t/antibody/2369)
**Author:** [@cwilson1987](https://forum.livingwithpolyneuropathy.org/u/cwilson1987)\ **Replies:** 1\ **Last updated:** [August 5, 2025, 2:36pm UTC](https://forum.livingwithpolyneuropathy.org/t/antibody/2369 "2025-08-05T14:36:48Z")
Hi guys, Merry Christmas! Without getting into too much detail, I've been to many drs lately and was diagnosed with a connective tissue disease and POTS. They ran a blood test on me to make sure nothing else was going … --- ## [IViG skin reaction](https://forum.livingwithpolyneuropathy.org/t/ivig-skin-reaction/2354)
**Author:** [@Roo](https://forum.livingwithpolyneuropathy.org/u/Roo)\ **Replies:** 3\ **Last updated:** [March 6, 2023, 2:52am UTC](https://forum.livingwithpolyneuropathy.org/t/ivig-skin-reaction/2354 "2023-03-06T02:52:18Z")
Hi guys My husband had a bad reaction after his 7th IViG infusion. Started as a rash on his palms and soles of his feet almost like tiny blisters under the skin. Then they started severely peeling and cracking. Painful a… --- ## [Muscle Twitches](https://forum.livingwithpolyneuropathy.org/t/muscle-twitches/2086)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 21\ **Last updated:** [September 29, 2020, 10:28am UTC](https://forum.livingwithpolyneuropathy.org/t/muscle-twitches/2086 "2020-09-29T10:28:04Z")
I have had muscle twitches that started when this first came on in June and have continued intermittently since then. They had almost disappeared until I attempted to jog a little yesterday. I was a runner before this ha… --- ## [Relapse?](https://forum.livingwithpolyneuropathy.org/t/relapse/2161)
**Author:** [@A\_Mom\_on\_Spin](https://forum.livingwithpolyneuropathy.org/u/A_Mom_on_Spin)\ **Replies:** 24\ **Last updated:** [January 19, 2018, 5:14am UTC](https://forum.livingwithpolyneuropathy.org/t/relapse/2161 "2018-01-19T05:14:42Z")
Hello all, While I'm quite active myself on the Sjogren's Syndrom support page, this is my first time posting here. Unfortunately my three daughters and I are all affected with autoimmune issues. My youngest daughter was… --- ## [No abnormal EKG/NCS](https://forum.livingwithpolyneuropathy.org/t/no-abnormal-ekg-ncs/2124)
**Author:** [@rockthecasbah121](https://forum.livingwithpolyneuropathy.org/u/rockthecasbah121)\ **Replies:** 16\ **Last updated:** [November 20, 2017, 5:15am UTC](https://forum.livingwithpolyneuropathy.org/t/no-abnormal-ekg-ncs/2124 "2017-11-20T05:15:51Z")
I had an emg/ncs done today and the doctor who performed it stated that nothing stood out as abnormal. I'm about four weeks in and my legs and arms feel a lot better than they did. However, I still feel weakness, twitchi… --- ## [Muscle spasms in odd places](https://forum.livingwithpolyneuropathy.org/t/muscle-spasms-in-odd-places/2129)
**Author:** [@Dollywood](https://forum.livingwithpolyneuropathy.org/u/Dollywood)\ **Replies:** 22\ **Last updated:** [April 16, 2017, 11:47pm UTC](https://forum.livingwithpolyneuropathy.org/t/muscle-spasms-in-odd-places/2129 "2017-04-16T23:47:48Z")
I am 11 months out in my recovery from GBS and doing quite well. But I do have a question that I have not seen posted here. The question is has anyone else experienced muscle spasms during recovery. I am experiencing … --- ## [Mental issues](https://forum.livingwithpolyneuropathy.org/t/mental-issues/2417)
**Author:** [@OzGronk](https://forum.livingwithpolyneuropathy.org/u/OzGronk)\ **Replies:** 1\ **Last updated:** [April 26, 2016, 1:54am UTC](https://forum.livingwithpolyneuropathy.org/t/mental-issues/2417 "2016-04-26T01:54:59Z")
As part of my rehab since diagnosis 6 months ago, which included physio, occupational therapy etc I also was given a series of sessions with a psychologist, which I enjoyed as it helped me get over the initial impact of … --- ## [Urinary problems](https://forum.livingwithpolyneuropathy.org/t/urinary-problems/2340)
**Author:** [@2dogs3catsandthekids](https://forum.livingwithpolyneuropathy.org/u/2dogs3catsandthekids)\ **Replies:** 7\ **Last updated:** [April 15, 2016, 9:15pm UTC](https://forum.livingwithpolyneuropathy.org/t/urinary-problems/2340 "2016-04-15T21:15:57Z")
Hello! I am just beyond a year out from diagnosis. I initially had trouble with urination. I had to go every 2 hours, you could set the clock by it; even during the night. (I joked with my 19 year-old that getting up wit… --- ## [17 month old baby with PCB variant. Anyone else had?](https://forum.livingwithpolyneuropathy.org/t/17-month-old-baby-with-pcb-variant-anyone-else-had/2404)
**Author:** [@Paige\_s\_mum](https://forum.livingwithpolyneuropathy.org/u/Paige_s_mum)\ **Replies:** 0\ **Last updated:** [March 29, 2016, 7:34am UTC](https://forum.livingwithpolyneuropathy.org/t/17-month-old-baby-with-pcb-variant-anyone-else-had/2404 "2016-03-29T07:34:54Z")
Thanks for letting me join your group. My 17 month old baby has contracted what the doctors think is the PCB variant or pharyngeal cervical brachial. Her neck, swallow, and right arm have been affected. We are three week… --- ## [Tingling on bottom of feet](https://forum.livingwithpolyneuropathy.org/t/tingling-on-bottom-of-feet/2261)
**Author:** [@spike](https://forum.livingwithpolyneuropathy.org/u/spike)\ **Replies:** 8\ **Last updated:** [March 15, 2016, 9:53pm UTC](https://forum.livingwithpolyneuropathy.org/t/tingling-on-bottom-of-feet/2261 "2016-03-15T21:53:41Z")
it has been exactly one year and two weeks since they diagnosed me with GB I am slowly recovering with lots of exercise but my legs and hip area seems to get real tight. I am still not able to fully balance myself. botto… --- ## [Pain, pain and more pain](https://forum.livingwithpolyneuropathy.org/t/pain-pain-and-more-pain/2329)
**Author:** [@2dogs3catsandthekids](https://forum.livingwithpolyneuropathy.org/u/2dogs3catsandthekids)\ **Replies:** 4\ **Last updated:** [March 15, 2016, 9:12pm UTC](https://forum.livingwithpolyneuropathy.org/t/pain-pain-and-more-pain/2329 "2016-03-15T21:12:32Z")
When I was first hospitalized I had a neurologist who didn't diagnose me despite the pretty classic symptoms I had (I learned that later). I was so uncomfortable, I was miserable. It came on most in the evening and laste… --- ## [Nerve Sensitivity](https://forum.livingwithpolyneuropathy.org/t/nerve-sensitivity/2147)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 5\ **Last updated:** [February 18, 2016, 8:30pm UTC](https://forum.livingwithpolyneuropathy.org/t/nerve-sensitivity/2147 "2016-02-18T20:30:57Z")
Does anyone has nerve sensitivity below their knees in their calves? I am about 5 months out recovering from mild Guillain Barre. One of my lingering problems seems to be a strange sensitivity just below my knee cap th… --- ## [Setback with New Activity](https://forum.livingwithpolyneuropathy.org/t/setback-with-new-activity/2128)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 18\ **Last updated:** [February 18, 2016, 7:10pm UTC](https://forum.livingwithpolyneuropathy.org/t/setback-with-new-activity/2128 "2016-02-18T19:10:06Z")
I have been doing great four months into recovery. Some days now I actually feel so much like my old self that I forget about my limitations. Yesterday, I did the reduced workout on an exercise DVD. Last night, I strugg… --- ## [Stranger than normal nerve pain](https://forum.livingwithpolyneuropathy.org/t/stranger-than-normal-nerve-pain/2337)
**Author:** [@Lindsey](https://forum.livingwithpolyneuropathy.org/u/Lindsey)\ **Replies:** 0\ **Last updated:** [October 23, 2015, 9:54pm UTC](https://forum.livingwithpolyneuropathy.org/t/stranger-than-normal-nerve-pain/2337 "2015-10-23T21:54:52Z")
I was only diagnosed with GBS 7 months ago so I am not very far into the recovery process. I began outpatient physical therapy about 3 weeks ago and I am starting to have strange nerve pain in the bottom of my feet. I ha… --- ## [Vaccines and GBS](https://forum.livingwithpolyneuropathy.org/t/vaccines-and-gbs/2281)
**Author:** [@ramgbs](https://forum.livingwithpolyneuropathy.org/u/ramgbs)\ **Replies:** 4\ **Last updated:** [October 9, 2015, 4:31am UTC](https://forum.livingwithpolyneuropathy.org/t/vaccines-and-gbs/2281 "2015-10-09T04:31:22Z")
Vaccines and gbs see Bob's Story ramgbs.wordpress.com and vaccines gone bad Bob Martin62123 --- ## [Snoring / Fatigue](https://forum.livingwithpolyneuropathy.org/t/snoring-fatigue/2280)
**Author:** [@Deb2](https://forum.livingwithpolyneuropathy.org/u/Deb2)\ **Replies:** 25\ **Last updated:** [August 24, 2015, 2:22pm UTC](https://forum.livingwithpolyneuropathy.org/t/snoring-fatigue/2280 "2015-08-24T14:22:51Z")
A bit of background: I was diagnosed with GBS in Nov 2013 and have recovered by about 85%. I was completely paralyzed requiring ICU and two courses of IVIG. I still have some issues with numbness and nerve pain in my lo… --- ## [Tanking Out](https://forum.livingwithpolyneuropathy.org/t/tanking-out/2284)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 1\ **Last updated:** [July 20, 2015, 3:32pm UTC](https://forum.livingwithpolyneuropathy.org/t/tanking-out/2284 "2015-07-20T15:32:39Z")
Things are finally turning around for me this week after a 5 month reflare of symptoms. I seem to have some good hours in the morning (so thankful!!) until between about 2 and 5 pm depending on how much activity I have d… --- ## [Eyelids not closing..ulcer](https://forum.livingwithpolyneuropathy.org/t/eyelids-not-closing-ulcer/2268)
**Author:** [@Judy](https://forum.livingwithpolyneuropathy.org/u/Judy)\ **Replies:** 0\ **Last updated:** [June 19, 2015, 3:19pm UTC](https://forum.livingwithpolyneuropathy.org/t/eyelids-not-closing-ulcer/2268 "2015-06-19T15:19:03Z")
My daughter had the eyelids sutured on the outside of her eyes so she could still see out. Had an ulcer develop from not closing her eyelids for weeks. She closes them some of the time while sleeping but not all of the t… --- ## [Rectal nerve dysfunction from GBS?](https://forum.livingwithpolyneuropathy.org/t/rectal-nerve-dysfunction-from-gbs/2266)
**Author:** [@f2yang](https://forum.livingwithpolyneuropathy.org/u/f2yang)\ **Replies:** 1\ **Last updated:** [June 16, 2015, 11:05pm UTC](https://forum.livingwithpolyneuropathy.org/t/rectal-nerve-dysfunction-from-gbs/2266 "2015-06-16T23:05:00Z")
Hi everyone - I've been a member of the forum since a little after my initial onset of symptoms in February, but haven't posted as I've felt dumb complaining about my relatively mild, sensory form of GBS when so many her… --- ## [Brother diagnosed with GBS/MFS on Feb 13](https://forum.livingwithpolyneuropathy.org/t/brother-diagnosed-with-gbs-mfs-on-feb-13/2218)
**Author:** [@mpg](https://forum.livingwithpolyneuropathy.org/u/mpg)\ **Replies:** 4\ **Last updated:** [June 9, 2015, 1:33pm UTC](https://forum.livingwithpolyneuropathy.org/t/brother-diagnosed-with-gbs-mfs-on-feb-13/2218 "2015-06-09T13:33:17Z")
My brother was diagnosed with Miller Fisher Syndrome and GBS on Feb 13, 2015. He is being weaned from ventilator but it feels like we go 10 steps forward and 5 steps back. Does anyone have a relative or friend that has… --- ## [Recovering without IVIG](https://forum.livingwithpolyneuropathy.org/t/recovering-without-ivig/2244)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 5\ **Last updated:** [May 22, 2015, 6:35pm UTC](https://forum.livingwithpolyneuropathy.org/t/recovering-without-ivig/2244 "2015-05-22T18:35:44Z")
I'm currently experiencing a re-flare of symptoms following a sinus infection in February after what was believed to be a case of mild Guillain Barre. I am taking 100mg of Gabapentin to help with the racing heart at nigh… --- ## [Confusion](https://forum.livingwithpolyneuropathy.org/t/confusion/2245)
**Author:** [@katlego](https://forum.livingwithpolyneuropathy.org/u/katlego)\ **Replies:** 3\ **Last updated:** [May 7, 2015, 1:15pm UTC](https://forum.livingwithpolyneuropathy.org/t/confusion/2245 "2015-05-07T13:15:24Z")
HI everyone I am from South Africa, My mother was diagnosed with GBS 4 months ago ,she was on a ventilation machine for about a month. she is paralyzed from the neck down and currently still at the hospital. few weeks ag… --- ## [Headache, burning head and itchy head](https://forum.livingwithpolyneuropathy.org/t/headache-burning-head-and-itchy-head/2242)
**Author:** [@Hope](https://forum.livingwithpolyneuropathy.org/u/Hope)\ **Replies:** 6\ **Last updated:** [May 4, 2015, 1:23am UTC](https://forum.livingwithpolyneuropathy.org/t/headache-burning-head-and-itchy-head/2242 "2015-05-04T01:23:34Z")
Hello, I am new to the site and to GBS being diagnosed . I have experienced terrible headaches with burning in my scalp and itching. I have not been successfully with any of my many doctor's advising me what to do. They … --- ## [What does recovering really feel like?](https://forum.livingwithpolyneuropathy.org/t/what-does-recovering-really-feel-like/2119)
**Author:** [@Tarhealing](https://forum.livingwithpolyneuropathy.org/u/Tarhealing)\ **Replies:** 17\ **Last updated:** [May 1, 2015, 1:30am UTC](https://forum.livingwithpolyneuropathy.org/t/what-does-recovering-really-feel-like/2119 "2015-05-01T01:30:27Z")
I am in the so-called recovery phase after suffering from a possible case of mild Guillain Barre the middle of June. I know that everyone's GBS is different and so is their recovery phase. It started turning around for m… --- ## [GBS Symptoms - Arm, hand, and leg shaking](https://forum.livingwithpolyneuropathy.org/t/gbs-symptoms-arm-hand-and-leg-shaking/2217)
**Author:** [@aflynn](https://forum.livingwithpolyneuropathy.org/u/aflynn)\ **Replies:** 11\ **Last updated:** [April 27, 2015, 6:49pm UTC](https://forum.livingwithpolyneuropathy.org/t/gbs-symptoms-arm-hand-and-leg-shaking/2217 "2015-04-27T18:49:04Z")
My husband was diagnosed in December of 2014 with GBS. Although he has come a very long way in his recovery. His hands and arms were definitely hit the worst with paralysis and OT has certainly helped with this. My co… --- ## [Is it all from the GBS?](https://forum.livingwithpolyneuropathy.org/t/is-it-all-from-the-gbs/2230)
**Author:** [@Lily](https://forum.livingwithpolyneuropathy.org/u/Lily)\ **Replies:** 1\ **Last updated:** [April 12, 2015, 12:33am UTC](https://forum.livingwithpolyneuropathy.org/t/is-it-all-from-the-gbs/2230 "2015-04-12T00:33:41Z")
My GBS started in early July 2014, it was caught early and I was diagnosed and treated by day 8 of the symptoms presenting themselves. Symptoms were most evident in my arms and hands, I'm getting better steadily. In Octo… --- ## [Pain in legs](https://forum.livingwithpolyneuropathy.org/t/pain-in-legs/2214)
**Author:** [@TNGBS](https://forum.livingwithpolyneuropathy.org/u/TNGBS)\ **Replies:** 0\ **Last updated:** [March 21, 2015, 8:43pm UTC](https://forum.livingwithpolyneuropathy.org/t/pain-in-legs/2214 "2015-03-21T20:43:49Z")
Ok not trying to complain just look for some relief. Seems as though my calves are healing. I believe this because they have been hurting pretty good for the last two days. Not a cramp just a constant pain. I stretch… --- ## [Symtoms](https://forum.livingwithpolyneuropathy.org/t/symtoms/2207)
**Author:** [@TNGBS](https://forum.livingwithpolyneuropathy.org/u/TNGBS)\ **Replies:** 0\ **Last updated:** [March 9, 2015, 4:32pm UTC](https://forum.livingwithpolyneuropathy.org/t/symtoms/2207 "2015-03-09T16:32:46Z")
Firstsymptoms were numbness and tingling in my hands and feet. The next day it started to spread up my arms and legs. Then I started to get tingling or itching of over my body. Then about three days later the right side … --- ## [Recurrent Symptoms](https://forum.livingwithpolyneuropathy.org/t/recurrent-symptoms/2055)
**Author:** [@Jim2](https://forum.livingwithpolyneuropathy.org/u/Jim2)\ **Replies:** 10\ **Last updated:** [March 9, 2015, 4:12pm UTC](https://forum.livingwithpolyneuropathy.org/t/recurrent-symptoms/2055 "2015-03-09T16:12:13Z")
Hello I am new to the group and would like to get information from anyone that may have recurring symptoms.I started with original symptoms in late October 2013. Left leg weakness, left arm weakness, tremors of both hand… [Next page](https://forum.livingwithpolyneuropathy.org/c/symptoms-treatments/symptoms-gbs-discussion/21.md?page=1)