# New Member Check In

**URL:** https://forum.livingwithpolyneuropathy.org/c/welcome/new-member-check-in/27.md

[Latest](https://forum.livingwithpolyneuropathy.org/latest.md) · [Categories](https://forum.livingwithpolyneuropathy.org/categories.md)

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## [About the New Member Check In category](https://forum.livingwithpolyneuropathy.org/t/about-the-new-member-check-in-category/2543)

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**Author:** [@ModSupport](https://forum.livingwithpolyneuropathy.org/u/ModSupport)\
**Replies:** 5\
**Last updated:** [August 13, 2018, 12:03pm UTC](https://forum.livingwithpolyneuropathy.org/t/about-the-new-member-check-in-category/2543 "2018-08-13T12:03:50Z")

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New members, start your experience here. Introduce yourself and share your story. Let us welcome you

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## [Coming to terms with such a disease - CIDP](https://forum.livingwithpolyneuropathy.org/t/coming-to-terms-with-such-a-disease-cidp/843)

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**Author:** [@Michael1](https://forum.livingwithpolyneuropathy.org/u/Michael1)\
**Replies:** 18\
**Last updated:** [August 12, 2025, 12:37pm UTC](https://forum.livingwithpolyneuropathy.org/t/coming-to-terms-with-such-a-disease-cidp/843 "2025-08-12T12:37:10Z")

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Hi fellow CIDP's and supporters. Well it has taken over 14+ months for me to begin to accept that I have CIDP and Sarcoidisis (Both immune disorders). After many IVIG, drugs and MORE drugs, the fatigue, feeling so sick, …

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## [Muscle pain in legs](https://forum.livingwithpolyneuropathy.org/t/muscle-pain-in-legs/5797)

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**Author:** [@Jules1](https://forum.livingwithpolyneuropathy.org/u/Jules1)\
**Replies:** 5\
**Last updated:** [September 3, 2023, 8:24pm UTC](https://forum.livingwithpolyneuropathy.org/t/muscle-pain-in-legs/5797 "2023-09-03T20:24:55Z")

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Hi. I was diagnosed in July with CIDP. When I went into hospital I was almost paralysed but IVIG worked really well and I walked out a week later. I’ve just had a second round and due for a third next week. I have quite …

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## [New to the world of CIDP](https://forum.livingwithpolyneuropathy.org/t/new-to-the-world-of-cidp/1094)

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**Author:** [@RobF](https://forum.livingwithpolyneuropathy.org/u/RobF)\
**Replies:** 4\
**Last updated:** [January 4, 2021, 6:37pm UTC](https://forum.livingwithpolyneuropathy.org/t/new-to-the-world-of-cidp/1094 "2021-01-04T18:37:38Z")

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HI all, I'm very new down this journey - a journey that was definitely not on my bucket list. First, a little background on me. I'm a 45 yr old male living in Southern California and have always been very athletic sinc…

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## [New to CIDP...and this forum](https://forum.livingwithpolyneuropathy.org/t/new-to-cidp-and-this-forum/904)

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**Author:** [@skosbu](https://forum.livingwithpolyneuropathy.org/u/skosbu)\
**Replies:** 8\
**Last updated:** [September 6, 2020, 6:57pm UTC](https://forum.livingwithpolyneuropathy.org/t/new-to-cidp-and-this-forum/904 "2020-09-06T18:57:37Z")

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First of all, thank you all for the well wishes. I was just diagnosed with CIDP about a month ago, so I am still coming to terms with it, but it helps to know that there are support groups out there to help. My journey t…

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## [Newly diagnosed and have Q](https://forum.livingwithpolyneuropathy.org/t/newly-diagnosed-and-have-q/3506)

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**Author:** [@Wolfgar](https://forum.livingwithpolyneuropathy.org/u/Wolfgar)\
**Replies:** 4\
**Last updated:** [March 28, 2020, 9:22am UTC](https://forum.livingwithpolyneuropathy.org/t/newly-diagnosed-and-have-q/3506 "2020-03-28T09:22:19Z")

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I have recently been empirically diagnosed with CIDP. My journey started with a flu that would not go away. 4 weeks later I had pain in the deep muscle of my right leg and severe fatigue. This went on for about 2 months.…

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## [C I D P and shingles](https://forum.livingwithpolyneuropathy.org/t/c-i-d-p-and-shingles/4563)

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**Author:** [@howard\_w](https://forum.livingwithpolyneuropathy.org/u/howard_w)\
**Replies:** 0\
**Last updated:** [November 14, 2019, 2:30pm UTC](https://forum.livingwithpolyneuropathy.org/t/c-i-d-p-and-shingles/4563 "2019-11-14T14:30:07Z")

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Hi, this is my first post. I live in Wales, near the north Wales coastal town of Llandudno. 2 years ago I was diagnosed with C I D P and have been having IVIG sessions every 6 months… I have found that swimming and Nor…

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## [Frustrated Father](https://forum.livingwithpolyneuropathy.org/t/frustrated-father/3859)

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**Author:** [@Steveflorida](https://forum.livingwithpolyneuropathy.org/u/Steveflorida)\
**Replies:** 20\
**Last updated:** [February 27, 2019, 6:14pm UTC](https://forum.livingwithpolyneuropathy.org/t/frustrated-father/3859 "2019-02-27T18:14:17Z")

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Hi. First post here. Thanks for allowing me to join. Hope I don’t get asked to leave after this post. My daughter is 31. She has CIDP. It started as GBS 4 years ago. The nightmare of a lifetime begins. 3 months of being…

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## [Welcome Gerald from Ontario!](https://forum.livingwithpolyneuropathy.org/t/welcome-gerald-from-ontario/3690)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 1\
**Last updated:** [July 22, 2018, 7:23pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-gerald-from-ontario/3690 "2018-07-22T19:23:33Z")

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Hello, @geraldpotvin, and welcome to our community. Based on your bio, I can see that you have many experiences and it has not been an easy path thus far. I’m sorry to hear of your diagnosis and the difficult times you…

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## [Greetings Alice, newly diagnosed with GBS and in need of support](https://forum.livingwithpolyneuropathy.org/t/greetings-alice-newly-diagnosed-with-gbs-and-in-need-of-support/3702)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 2\
**Last updated:** [July 20, 2018, 12:47am UTC](https://forum.livingwithpolyneuropathy.org/t/greetings-alice-newly-diagnosed-with-gbs-and-in-need-of-support/3702 "2018-07-20T00:47:16Z")

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Hello, @ajett, and welcome to our community! We are glad you found us and I hope that you find our community and its members to be very warm, welcoming, and encouraging. After reading your bio, I see that you’ve had a …

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## [Welcome Nurse Jackie, an RN and caretaker](https://forum.livingwithpolyneuropathy.org/t/welcome-nurse-jackie-an-rn-and-caretaker/3705)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 18, 2018, 4:42pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-nurse-jackie-an-rn-and-caretaker/3705 "2018-07-18T16:42:05Z")

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Hello, @jjrn, and thank you for joining our community! It’s interesting to interact with caretakers and family members of patients. How did you hear about us, and were there any questions we can help answer for you? A…

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## [Welcome the spiritual and optimistic Vanessa from PA!](https://forum.livingwithpolyneuropathy.org/t/welcome-the-spiritual-and-optimistic-vanessa-from-pa/3704)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 18, 2018, 4:34pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-the-spiritual-and-optimistic-vanessa-from-pa/3704 "2018-07-18T16:34:36Z")

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Hi, @Vanna28, and welcome to our community! We are happy to have you and I hope you get the opportunity to browse the forums, meet our members, and read the stories from brave patients such as yourself. If you have any…

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## [Hello Roger, struggling with pain from CIDP](https://forum.livingwithpolyneuropathy.org/t/hello-roger-struggling-with-pain-from-cidp/3701)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 18, 2018, 4:00pm UTC](https://forum.livingwithpolyneuropathy.org/t/hello-roger-struggling-with-pain-from-cidp/3701 "2018-07-18T16:00:43Z")

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@Roger, welcome to our community. Thank you for joining us and I trust you will find it warm and welcoming, but hopefully not as humid as Florida. :sunny: I recognize that you have struggled with CIDP since being diagn…

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## [Hello Russ, recently diagnosed with CIDP and in good spirits](https://forum.livingwithpolyneuropathy.org/t/hello-russ-recently-diagnosed-with-cidp-and-in-good-spirits/3703)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 18, 2018, 4:14pm UTC](https://forum.livingwithpolyneuropathy.org/t/hello-russ-recently-diagnosed-with-cidp-and-in-good-spirits/3703 "2018-07-18T16:14:51Z")

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@Russ, thank you for joining our community! We are happy you’ve found us, and I trust that you will find our community to be warm and welcoming. I am glad to see that you’re in good spirits despite being diagnosed with…

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## [Welcome Joe, a former railroad engineer and wood turner!](https://forum.livingwithpolyneuropathy.org/t/welcome-joe-a-former-railroad-engineer-and-wood-turner/3694)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 16, 2018, 4:20pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-joe-a-former-railroad-engineer-and-wood-turner/3694 "2018-07-16T16:20:46Z")

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@JoeTN, thank you for joining our community. I am sorry to hear of your recent diagnosis, but based on your bio, it seems as though you’ve come a long way–much kudos to you for your resolve! We are happy to have such a…

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## [Greetings NP Kelly!](https://forum.livingwithpolyneuropathy.org/t/greetings-np-kelly/3693)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 16, 2018, 4:17pm UTC](https://forum.livingwithpolyneuropathy.org/t/greetings-np-kelly/3693 "2018-07-16T16:17:07Z")

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@kellytimmer, thank you for joining our community. We are happy to have you and hope that you receive support, meet new friends, and find our community to be warm and welcoming. Being in healthcare yourself, I am sure …

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## [Hello Julie from the Pacific North West!](https://forum.livingwithpolyneuropathy.org/t/hello-julie-from-the-pacific-north-west/3692)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 16, 2018, 4:13pm UTC](https://forum.livingwithpolyneuropathy.org/t/hello-julie-from-the-pacific-north-west/3692 "2018-07-16T16:13:31Z")

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@Jahowie, thank you for joining our community and sharing your story! Ben’s Friends is a collaborative, supportive community in which you will likely meet/interact with others with a similar story as yours. I am sorry …

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## [Greetings Robyn, mother of two from California!](https://forum.livingwithpolyneuropathy.org/t/greetings-robyn-mother-of-two-from-california/3691)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [July 16, 2018, 4:10pm UTC](https://forum.livingwithpolyneuropathy.org/t/greetings-robyn-mother-of-two-from-california/3691 "2018-07-16T16:10:51Z")

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@Sparrow, welcome to our community. Thank you for joining and sharing your story with us. I am sorry to hear of your recent diagnosis but glad an effective treatment plan is underway. It is important to know that you …

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## [Greetings Arnold with sudden onset CIDP](https://forum.livingwithpolyneuropathy.org/t/greetings-arnold-with-sudden-onset-cidp/3650)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 8\
**Last updated:** [July 1, 2018, 5:56pm UTC](https://forum.livingwithpolyneuropathy.org/t/greetings-arnold-with-sudden-onset-cidp/3650 "2018-07-01T17:56:08Z")

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@Agordon785, welcome to our community. I am sorry to hear of your sudden onset of CIDP, and I hope it is under control as best as possible. While I know this may be a difficult time for you, know that you have a strong…

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## [Hello Dot, supportive spouse of CIDP patient](https://forum.livingwithpolyneuropathy.org/t/hello-dot-supportive-spouse-of-cidp-patient/3652)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 1\
**Last updated:** [June 26, 2018, 12:55pm UTC](https://forum.livingwithpolyneuropathy.org/t/hello-dot-supportive-spouse-of-cidp-patient/3652 "2018-06-26T12:55:08Z")

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@Dot, thank you for joining our community. We are glad you found us and hopefully are helpful to both you and your spouse, who was recently diagnosed with CIDP four months ago. I’m sure you have your hands full, but if…

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## [Welcome the very active Judy from AL](https://forum.livingwithpolyneuropathy.org/t/welcome-the-very-active-judy-from-al/3653)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [June 22, 2018, 11:09pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-the-very-active-judy-from-al/3653 "2018-06-22T23:09:26Z")

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@Judy12, we are glad that you found us. Welcome to our community. Based on your profile, it looks like the last year has been difficult with your knee replacement and diagnosis of CIDP. With how active you are at chur…

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## [Welcome JPJ from Houston, and grandparent of 10 grandchildren!](https://forum.livingwithpolyneuropathy.org/t/welcome-jpj-from-houston-and-grandparent-of-10-grandchildren/3651)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [June 22, 2018, 10:50pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-jpj-from-houston-and-grandparent-of-10-grandchildren/3651 "2018-06-22T22:50:59Z")

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Hello, @JPJ, and welcome to our community! We are glad you found us and hope you find helpful resources, network with others in a similar situation with you, and learn more about CIDP in general. As a grandparent of 10…

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## [Meet Jim from PA](https://forum.livingwithpolyneuropathy.org/t/meet-jim-from-pa/3649)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [June 22, 2018, 10:08pm UTC](https://forum.livingwithpolyneuropathy.org/t/meet-jim-from-pa/3649 "2018-06-22T22:08:22Z")

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Welcome to our community, @coolper! I am sorry about your recent diagnosis and the subsequent toll it has taken on you. I am hoping you find our community supportive and helpful as you navigate this new life w/ CIDP. …

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## [Rj from Indiana just diagnosed with cidp](https://forum.livingwithpolyneuropathy.org/t/rj-from-indiana-just-diagnosed-with-cidp/3613)

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**Author:** [@Rayjay](https://forum.livingwithpolyneuropathy.org/u/Rayjay)\
**Replies:** 4\
**Last updated:** [June 2, 2018, 5:42am UTC](https://forum.livingwithpolyneuropathy.org/t/rj-from-indiana-just-diagnosed-with-cidp/3613 "2018-06-02T05:42:29Z")

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Hello my name is RJ and I have cidp. It all started back in January of 2018 with a tingling in my foot. Three days later I found myself almost completely paralyzed . I was diagnosed with GBS and given my first dose of i…

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## [CIDP and CFS](https://forum.livingwithpolyneuropathy.org/t/cidp-and-cfs/3616)

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**Author:** [@Leoquarius](https://forum.livingwithpolyneuropathy.org/u/Leoquarius)\
**Replies:** 1\
**Last updated:** [May 28, 2018, 1:20am UTC](https://forum.livingwithpolyneuropathy.org/t/cidp-and-cfs/3616 "2018-05-28T01:20:26Z")

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Hi guys…I am new to the forum . As i read through the remarks etc…i see a common denominator…i.e. pain . I have been living with CIDP and CFS since 2014 . Some days bad…some days less bad…but having been a person always …

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## [Unique CIDP! Help](https://forum.livingwithpolyneuropathy.org/t/unique-cidp-help/3031)

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**Author:** [@Lili](https://forum.livingwithpolyneuropathy.org/u/Lili)\
**Replies:** 11\
**Last updated:** [May 16, 2018, 11:14am UTC](https://forum.livingwithpolyneuropathy.org/t/unique-cidp-help/3031 "2018-05-16T11:14:37Z")

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Hi. I'm new here. I've had CIDP for over 5 years, caused by my Mixed Connective Tissue disorder. It attacked my brain, and the Peripheral Nerves leaving me with muscle weakness and sensory problems. I have tried many di…

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## [Newbie looking for guidance](https://forum.livingwithpolyneuropathy.org/t/newbie-looking-for-guidance/3498)

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**Author:** [@socny](https://forum.livingwithpolyneuropathy.org/u/socny)\
**Replies:** 10\
**Last updated:** [May 12, 2018, 5:04pm UTC](https://forum.livingwithpolyneuropathy.org/t/newbie-looking-for-guidance/3498 "2018-05-12T17:04:17Z")

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Hi, I’m a new member that is struggling to understand my current condition and looking for guidance in this new journey that is in front of me. I recently went thru a life changing episode that started with something as…

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## [Welcome Michelle from Texas!](https://forum.livingwithpolyneuropathy.org/t/welcome-michelle-from-texas/3541)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 5\
**Last updated:** [April 12, 2018, 7:48pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-michelle-from-texas/3541 "2018-04-12T19:48:23Z")

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Hi @Mjariz and welcome to our community! We are glad you found us and hope you will benefit by connecting with others, utilizing published resources, or simply reading stories of those that can relate to you with CIDP. …

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## [Welcome Kim from Ohio!](https://forum.livingwithpolyneuropathy.org/t/welcome-kim-from-ohio/3539)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 1\
**Last updated:** [April 6, 2018, 12:52pm UTC](https://forum.livingwithpolyneuropathy.org/t/welcome-kim-from-ohio/3539 "2018-04-06T12:52:32Z")

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Hello @Kim10, and welcome to our community! We are happy you’ve found us and hope that we can help in some way. There are many resources available, and if you haven’t already, you may want to check out the FAQ section …

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## [Hello Jack from California!](https://forum.livingwithpolyneuropathy.org/t/hello-jack-from-california/3542)

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**Author:** [@Brandon\_BFIntern](https://forum.livingwithpolyneuropathy.org/u/Brandon_BFIntern)\
**Replies:** 0\
**Last updated:** [April 6, 2018, 2:15am UTC](https://forum.livingwithpolyneuropathy.org/t/hello-jack-from-california/3542 "2018-04-06T02:15:00Z")

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@Buster, thank you for joining and here’s a big welcome to you! The last several years seem to have been difficult for you, and I’m sorry that so many life changes have had to be made. Since your diagnosis two years ag…

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