# Does anyone have positive anti mag with their cidp? **URL:** \ **Category:** General CIDP Discussion\ **Created:** [August 10, 2013, 10:19pm UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406 "2013-08-10T22:19:16Z")\ **Posts on this page:** 7\ **Page:** 1
**Author:** ![nancy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nancy/32/226_2.png) [@nancy](https://forum.livingwithpolyneuropathy.org/u/nancy)\ **Post date:** [August 10, 2013, 10:19pm UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/1 "2013-08-10T22:19:16Z")
I have been diagnosed with positive anti mag along with the cidp. After being on ivig every other week for a year and a half it is no longer giving me the relief it used to. I was told by my neurologist this may be due to the positive anti mag and I may need to change to Rituxan. It is in the chemo family but only attacks the abnormal B cells. It is supposed to be a rare dx (anti mag) but we seem to be a rare group so I am hoping someone can talk to me about it. Thanks Peace Nancy ---
**Author:** ![Boomer](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/boomer/32/651_2.png) [@Boomer](https://forum.livingwithpolyneuropathy.org/u/Boomer)\ **Post date:** [August 12, 2013, 9:51pm UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/2 "2013-08-12T21:51:34Z")
Hi Nancy, I have also been dx'd with anti-Mag although I'm not familiar with the "positive" portion of your dx. My symptoms began about two yrs ago but was not dx'd till Jan this year. I was initially given one course of ivig (4 treatments)with no results. Recently I was put on 50mg prednisone and just finished another round of ivig. I also just started chemo with cyclophosphamide. It would appear they are taking a shotgun approach to my therapy. Currently Rituximab is not authoriised for cidp cases in British Columbia Canada, although it remains the only promising therapy for this variant of cidp. I hope you do well in your therapy and and if you get the rituximab, you have a total if not lengthy remission. If you google "neurotalk" you will find a small discussion on anti mag. It will give you an idea of other treatment people are receiving. cheers ---
**Author:** ![nancy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nancy/32/226_2.png) [@nancy](https://forum.livingwithpolyneuropathy.org/u/nancy)\ **Post date:** [August 13, 2013, 2:14am UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/3 "2013-08-13T02:14:41Z")
Thank you so much for making me feel as though I am not alone. My neurologist told me that steroids do not address the anti-mag, but another neurologist gave me a one time infusion of prednisone prior to my ivig, it gave me a little more energy for a couple of days but that was it. My neuro also mentioned Cellcept and Methotrexate as a possible treatment. It won't be for another month before I change treatment, but I will let you know if it helps. I will goggle "neurotalk" thanks for the suggestion. Please stay in touch with how your treatment is working for you, remission for all!!!!! Peace Nancy Boomer said: > Hi Nancy, I have also been dx'd with anti-Mag although I'm not familiar with the "positive" portion of your dx. My symptoms began about two yrs ago but was not dx'd till Jan this year. I was initially given one course of ivig (4 treatments)with no results. Recently I was put on 50mg prednisone and just finished another round of ivig. I also just started chemo with cyclophosphamide. It would appear they are taking a shotgun approach to my therapy. Currently Rituximab is not authoriised for cidp cases in British Columbia Canada, although it remains the only promising therapy for this variant of cidp. I hope you do well in your therapy and and if you get the rituximab, you have a total if not lengthy remission. If you google "neurotalk" you will find a small discussion on anti mag. It will give you an idea of other treatment people are receiving. > > cheers ---
**Author:** ![Boomer](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/boomer/32/651_2.png) [@Boomer](https://forum.livingwithpolyneuropathy.org/u/Boomer)\ **Post date:** [August 13, 2013, 9:05pm UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/4 "2013-08-13T21:05:31Z")
Hi Nancy Here are a few links for you to read [http://neurotalk.psychcentral.com/thread27197.html](http://neurotalk.psychcentral.com/thread27197.html) [tp://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag](http://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag) [http://www.pdn-info.co.uk/index.html](http://www.pdn-info.co.uk/index.html) Cheers ---
**Author:** ![nancy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nancy/32/226_2.png) [@nancy](https://forum.livingwithpolyneuropathy.org/u/nancy)\ **Post date:** [August 14, 2013, 12:42am UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/5 "2013-08-14T00:42:36Z")
Thank you so much for the links, Boomer. I just finished my ivig today, another infusion tomorrow. I am a little blurry eyed, but what I read was incredibly valuable. I really want to also read more about Rituximed to see if the side effects are so bad it would outweigh the benefits. I currently get infusions 4 times a month and I am always wasted the day after, my symptoms seem to be progressing, so I am hopeful there is a treatment more tolerable. It is a beautiful day here in the Pacific NW, I can look through the woods and see Oyster Bay, so all is not bad. I hope you find things that bring you happiness. Peace nancy Boomer said: > Hi Nancy > > Here are a few links for you to read > > [http://neurotalk.psychcentral.com/thread27197.html](http://neurotalk.psychcentral.com/thread27197.html) > > [tp://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag](http://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag) > > [http://www.pdn-info.co.uk/index.html](http://www.pdn-info.co.uk/index.html) > > Cheers ---
**Author:** ![Boomer](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/boomer/32/651_2.png) [@Boomer](https://forum.livingwithpolyneuropathy.org/u/Boomer)\ **Post date:** [August 31, 2013, 11:45pm UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/6 "2013-08-31T23:45:34Z")
nancy said: > Thank you so much for the links, Boomer. I just finished my ivig today, another infusion tomorrow. I am a little blurry eyed, but what I read was incredibly valuable. I really want to also read more about Rituximed to see if the side effects are so bad it would outweigh the benefits. I currently get infusions 4 times a month and I am always wasted the day after, my symptoms seem to be progressing, so I am hopeful there is a treatment more tolerable. It is a beautiful day here in the Pacific NW, I can look through the woods and see Oyster Bay, so all is not bad. I hope you find things that bring you happiness. Peace nancy > > Boomer said: > > > Hi Nancy > > > > Here are a few links for you to read > > > > [http://neurotalk.psychcentral.com/thread27197.html](http://neurotalk.psychcentral.com/thread27197.html) > > > > [tp://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag](http://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag) > > > > [http://www.pdn-info.co.uk/index.html](http://www.pdn-info.co.uk/index.html) > > > > Cheers ---
**Author:** ![nancy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nancy/32/226_2.png) [@nancy](https://forum.livingwithpolyneuropathy.org/u/nancy)\ **Post date:** [September 27, 2013, 2:43am UTC](https://forum.livingwithpolyneuropathy.org/t/does-anyone-have-positive-anti-mag-with-their-cidp/406/7 "2013-09-27T02:43:59Z")
Hi Boomer, I have an appointment with my hematologist/oncologist tomorrow. I have read as much as my mind can hold on Rituxamed and anti-mag and hopefully my list of questions will give me some answers. If you would like I can let you know how it goes. Peace Nancy Boomer said: > nancy said: > > > Thank you so much for the links, Boomer. I just finished my ivig today, another infusion tomorrow. I am a little blurry eyed, but what I read was incredibly valuable. I really want to also read more about Rituximed to see if the side effects are so bad it would outweigh the benefits. I currently get infusions 4 times a month and I am always wasted the day after, my symptoms seem to be progressing, so I am hopeful there is a treatment more tolerable. It is a beautiful day here in the Pacific NW, I can look through the woods and see Oyster Bay, so all is not bad. I hope you find things that bring you happiness. Peace nancy > > > > Boomer said: > > > > > Hi Nancy > > > > > > Here are a few links for you to read > > > > > > [http://neurotalk.psychcentral.com/thread27197.html](http://neurotalk.psychcentral.com/thread27197.html) > > > > > > [tp://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag](http://neurotalk.psychcentral.com/showthread.php?t=27718&highlight=anti-mag) > > > > > > [http://www.pdn-info.co.uk/index.html](http://www.pdn-info.co.uk/index.html) > > > > > > Cheers