Hi everyone I hope everyone is doing well. I wanted to give a little update on my husband. We still don't have a firm diagnosis, but he is on two new meds. One is for nerve pain and the other is Nuvigil for his tiredness. So far they seem to be working. The pain in his legs is less intense and he is able to work 8hr days. At this time we are staying with same doctor because we can not afford any more new doctor bills. I hope everyone had a good holiday.
Hi Tamara. I am so glad that things seem to have improved for you both. I hope that you get a diagnosis soon. I had lots of buzzing in my legs and feet when I was in hospital with GBS a year ago. Now I have numbness and tingling in my feet,and numbness in my left arm and the left side of my face. I am lucky not to have pain and so I am off all the meds. I get IVIG once a month. Hang in there. I have found it it useful to check out information online from the CIDP/GBS Foundation International Org. Keep learning all you can about these neurological diseases and it will help.
Tamara said:
Hi everyone I hope everyone is doing well. I wanted to give a little update on my husband. We still don't have a firm diagnosis, but he is on two new meds. One is for nerve pain and the other is Nuvigil for his tiredness. So far they seem to be working. The pain in his legs is less intense and he is able to work 8hr days. At this time we are staying with same doctor because we can not afford any more new doctor bills. I hope everyone had a good holiday.
Hi,
I have to agree with everybody to see the right medical care. I wish I would have been at the Mayo Clinic 6 months earlier. I would be still walking. I feel so frustrated with Dr.'s that don't refer to the right specialists. I hope everything is going well for you! Please keep us posted.
Hi Michael, im new hear and im just curious how many weeks your symptoms lasted before they thought you had CIDP as opposed to GBS.
Michael Williams said:
I forgot to add that’s the first thing she did was get her calendar and count how many weeks I had had symptoms.
being treated for GBS only offered relief
I was told that if you continue to get worse after 6 weeks it is more likely to have CIDP. GBS supposely peeks at 4 to 6 weeks. But if you don't have any real medical care until 8 weeks into it who knows..... I was diagnosed with GBS by a neurologist with a 5 point EMG at 8 weeks after the first symptoms. I had 3 days of IVIG afterwards to get a little better. 4 months later I was diagnosed by a real neurologist at the mayo clinic with CIDP as I had thought myself, because the loss of more bodily functions. I guess it is so important to see someone that knows all about CIDP. There are too many dablers out there that think they know something....
Jewels said:
Hi Michael, im new hear and im just curious how many weeks your symptoms lasted before they thought you had CIDP as opposed to GBS.
Michael Williams said:I forgot to add that's the first thing she did was get her calendar and count how many weeks I had had symptoms. being treated for GBS only offered relief