# Feeling sad and scared

**URL:** <https://forum.livingwithpolyneuropathy.org/t/feeling-sad-and-scared/2312>\
**Category:** Emotional Support  GBS Discussion\
**Created:** [September 2, 2015, 9:34pm UTC](https://forum.livingwithpolyneuropathy.org/t/feeling-sad-and-scared/2312 "2015-09-02T21:34:42Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![glightcap](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/glightcap/32/2229_2.png) [@glightcap](https://forum.livingwithpolyneuropathy.org/u/glightcap)\
**Post date:** [September 2, 2015, 9:34pm UTC](https://forum.livingwithpolyneuropathy.org/t/feeling-sad-and-scared/2312/1 "2015-09-02T21:34:42Z")

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I’m going to see my doctor tomorrow. My condition has deteriorated so much since the last time I saw him. I am using a walker now. My legs are numb from the knees down. Probably could be in a wheelchair. I think the 1st round of ivig didn’t do much and he’s probably going to send me to have another round. The hospital is 2-3 hours away from my home which was ok last time because I thought I was going to come out better but this time I know it might not work again. I’m worried I’m going to have the chronic form. I hate not being able to do anything for my family. My youngest son is 21 and had Duchenne muscular dystrophy and I was his primary caregiver. Just feeling so bad, having a real pity party here.first time since this started! Whew!

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**Author:** ![Charlotte](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/charlotte/32/2348_2.png) [@Charlotte](https://forum.livingwithpolyneuropathy.org/u/Charlotte)\
**Post date:** [March 23, 2016, 5:34am UTC](https://forum.livingwithpolyneuropathy.org/t/feeling-sad-and-scared/2312/2 "2016-03-23T05:34:53Z")

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Nightcap

I'm fairly new to the group, and I know it's been some time since you shared this post, but I was wondering how you were doing? I am hoping you have been on the road to recovery.

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**Author:** ![glightcap](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/glightcap/32/2229_2.png) [@glightcap](https://forum.livingwithpolyneuropathy.org/u/glightcap)\
**Post date:** [March 23, 2016, 12:20pm UTC](https://forum.livingwithpolyneuropathy.org/t/feeling-sad-and-scared/2312/3 "2016-03-23T12:20:32Z")

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Actually getting ready to leave sub-acute rehab on Friday. My diagnosis was changed to CIDP in September. I was admitted to Johns Hopkins in the beginning of October. I was moved to sub-acute right before Christmas. Right now I can walk with a walker or Canadian crutches. I do intend to make a full recovery.  
Thank you for asking 🙂  
You?

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**Author:** ![Charlotte](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/charlotte/32/2348_2.png) [@Charlotte](https://forum.livingwithpolyneuropathy.org/u/Charlotte)\
**Post date:** [March 25, 2016, 5:25am UTC](https://forum.livingwithpolyneuropathy.org/t/feeling-sad-and-scared/2312/4 "2016-03-25T05:25:44Z")

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I am so glad to hear you got a correct diagnosis and are headed to full recovery!

When I read your post my heart broke for you. I was young, no marriage or children yet, when first diagnosed. I can't imagine trying to go through those first couple of years of recovery while also worrying about my family. You must be an incredibly strong person.

Life for me is good, I deal with the long term pain and paralysis without too much difficulty these days, and I pretty much do everything I want to do.

I hope your recovery continues, it quick, uneventful and complete. You sound in much better spirits too. Stay positive and be well!
