# Headaches?

**URL:** <https://forum.livingwithpolyneuropathy.org/t/headaches/2133>\
**Category:** Symptoms - GBS\
**Created:** [October 23, 2014, 7:08pm UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133 "2014-10-23T19:08:01Z")\
**Posts on this page:** 13\
**Page:** 1

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**Author:** ![rockthecasbah121](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/rockthecasbah121/32/2022_2.png) [@rockthecasbah121](https://forum.livingwithpolyneuropathy.org/u/rockthecasbah121)\
**Post date:** [October 23, 2014, 7:08pm UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/1 "2014-10-23T19:08:01Z")

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Did anyone else have headaches during the plateau and recovery phase of their GBS? I keep getting frequent headaches that aren’t too painful but enough to notice. I’d say I probably get close to everyday in the afternoon during work and have occassionally woken up with a slight headache near the front of my head. My MRI was perfect. Is it possible it could also be the neurontin?

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**Author:** ![bwebster](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/bwebster/32/2034_2.png) [@bwebster](https://forum.livingwithpolyneuropathy.org/u/bwebster)\
**Post date:** [October 24, 2014, 11:11am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/2 "2014-10-24T11:11:28Z")

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# **Gabapentin/Neurontin**

[http://www.nlm.nih.gov/medlineplus/druginfo/meds/a694007.html](http://www.nlm.nih.gov/medlineplus/druginfo/meds/a694007.html)

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**Author:** ![rockthecasbah121](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/rockthecasbah121/32/2022_2.png) [@rockthecasbah121](https://forum.livingwithpolyneuropathy.org/u/rockthecasbah121)\
**Post date:** [October 24, 2014, 12:43pm UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/3 "2014-10-24T12:43:04Z")

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The side effects for this drug can be worse than the pain. My headaches don’t always correspond to when I take the neurontin though.

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**Author:** ![Nebretta](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nebretta/32/1891_2.png) [@Nebretta](https://forum.livingwithpolyneuropathy.org/u/Nebretta)\
**Post date:** [October 25, 2014, 4:38pm UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/4 "2014-10-25T16:38:01Z")

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I did not get headaches. Hope you get this one figured out. I do recall feeling about 20% out of it from the medication I was taking. Nebretta

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**Author:** ![Tally](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/tally/32/1994_2.png) [@Tally](https://forum.livingwithpolyneuropathy.org/u/Tally)\
**Post date:** [October 25, 2014, 4:55pm UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/5 "2014-10-25T16:55:48Z")

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I also have headaches daily. Wake up with them too. Had Ivig in May of this year.

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**Author:** ![rockthecasbah121](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/rockthecasbah121/32/2022_2.png) [@rockthecasbah121](https://forum.livingwithpolyneuropathy.org/u/rockthecasbah121)\
**Post date:** [October 26, 2014, 2:14am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/6 "2014-10-26T02:14:25Z")

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What do you think causes your headaches?  
  
  
  
  
Tally said:

> I also have headaches daily. Wake up with them too. Had Ivig in May of this year.

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**Author:** ![Tally](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/tally/32/1994_2.png) [@Tally](https://forum.livingwithpolyneuropathy.org/u/Tally)\
**Post date:** [October 26, 2014, 3:34am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/7 "2014-10-26T03:34:16Z")

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Iam not sure. I can’t find a doctor to help me. I know after the 5 days of Ivig. I get more headaches had horrible nightmares   
  
  
  
rockthecasbah121 said:

> What do you think causes your headaches?  
>    
>   
>   
>   
> Tally said:
> 
> > I also have headaches daily. Wake up with them too. Had Ivig in May of this year.

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**Author:** ![Ivy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/ivy/32/2050_2.png) [@Ivy](https://forum.livingwithpolyneuropathy.org/u/Ivy)\
**Post date:** [November 17, 2014, 2:28pm UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/8 "2014-11-17T14:28:07Z")

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I had headaches before I was diagnosed, during and after treatment until the day before I was discharged from the hospital

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**Author:** ![Steph](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/steph/32/2045_2.png) [@Steph](https://forum.livingwithpolyneuropathy.org/u/Steph)\
**Post date:** [November 18, 2014, 1:39am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/9 "2014-11-18T01:39:48Z")

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I had headache too, my dr said maybe its muscle pain from lying down too much since i was hospitalize with dengue two weeks prior total of 3 weeks.

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**Author:** ![Nojabold](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nojabold/32/2019_2.png) [@Nojabold](https://forum.livingwithpolyneuropathy.org/u/Nojabold)\
**Post date:** [December 2, 2014, 1:58am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/10 "2014-12-02T01:58:26Z")

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I had/have tension headaches now, never really had a headache in my life before this. I'd get a pressure each side of my head above my ears, like a clamp was on my head.

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**Author:** ![Ivy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/ivy/32/2050_2.png) [@Ivy](https://forum.livingwithpolyneuropathy.org/u/Ivy)\
**Post date:** [December 2, 2014, 2:18am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/11 "2014-12-02T02:18:05Z")

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I know the feeling. I don’t want to ever have that headache again. It was driving me nuts  
  
  
  
Nojabold said:

> I had/have tension headaches now, never really had a headache in my life before this. I’d get a pressure each side of my head above my ears, like a clamp was on my head.

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**Author:** ![Nojabold](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nojabold/32/2019_2.png) [@Nojabold](https://forum.livingwithpolyneuropathy.org/u/Nojabold)\
**Post date:** [December 2, 2014, 2:22am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/12 "2014-12-02T02:22:23Z")

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In terms of what causes the headaches - and I'm only speculating here I'm not a doctor - I had bad problems with my blood pressure. Once when I happened to be in the GP's office and told him I felt a bit funny, he took my blood pressure which was down to 70/42.

After that I kept a good eye on it, I never really had high blood pressure, just low and it would wax and wane. I ate a lot of salt, carrying bags of peanuts round with me to munch on to try and boost my blood pressure.

I believe that the tension headaches were a symptom of the blood pressure fluctuating. Again, I have no evidence of this other than a hunch, but if you're having headaches perhaps you should get that checked?

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**Author:** ![Ivy](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/ivy/32/2050_2.png) [@Ivy](https://forum.livingwithpolyneuropathy.org/u/Ivy)\
**Post date:** [December 2, 2014, 2:42am UTC](https://forum.livingwithpolyneuropathy.org/t/headaches/2133/13 "2014-12-02T02:42:12Z")

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I have not gotten a headache for a few weeks thank God  
  
  
  
Nojabold said:

> In terms of what causes the headaches - and I’m only speculating here I’m not a doctor - I had bad problems with my blood pressure. Once when I happened to be in the GP’s office and told him I felt a bit funny, he took my blood pressure which was down to 70/42.
> 
> After that I kept a good eye on it, I never really had high blood pressure, just low and it would wax and wane. I ate a lot of salt, carrying bags of peanuts round with me to munch on to try and boost my blood pressure.
> 
> I believe that the tension headaches were a symptom of the blood pressure fluctuating. Again, I have no evidence of this other than a hunch, but if you’re having headaches perhaps you should get that checked?
