# Heat with GBS

**URL:** <https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023>\
**Category:** Symptoms - GBS\
**Created:** [May 14, 2014, 3:57am UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023 "2014-05-14T03:57:48Z")\
**Posts on this page:** 8\
**Page:** 1

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**Author:** ![Spencer](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/spencer/32/2614_2.png) [@Spencer](https://forum.livingwithpolyneuropathy.org/u/Spencer)\
**Post date:** [May 14, 2014, 3:57am UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/1 "2014-05-14T03:57:48Z")

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Last year I came down with GBS and was paralyzed from the neck down, For the first 3 months I experienced extreme heat. I had to have my wife or nurse wipe me down with a rag soaked in cold water. I had an ice bag placed under my neck, had the thermostat turned way down and had a fan blowing on me 24/7. On the 4th month the heat subsided. Did any of you experience this too?

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**Author:** ![Nebretta](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nebretta/32/1891_2.png) [@Nebretta](https://forum.livingwithpolyneuropathy.org/u/Nebretta)\
**Post date:** [May 15, 2014, 3:07am UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/2 "2014-05-15T03:07:49Z")

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**I did not experience any heat problem. Nebretta**

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**Author:** ![Debi26](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/debi26/32/1703_2.png) [@Debi26](https://forum.livingwithpolyneuropathy.org/u/Debi26)\
**Post date:** [May 15, 2014, 3:58am UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/3 "2014-05-15T03:58:31Z")

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Yes....I had ice packs all around me in bed.

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**Author:** ![Nannyjo](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/nannyjo/32/1836_2.png) [@Nannyjo](https://forum.livingwithpolyneuropathy.org/u/Nannyjo)\
**Post date:** [May 15, 2014, 12:24pm UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/4 "2014-05-15T12:24:27Z")

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Three years ago I had GBS and had similar issues. I would be so hot that it was awful. Like you I kept the A/C up. Worse than any "hot flashes" I had ever had. Finally, after months it seemed to subside.

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**Author:** ![Gammy522](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/gammy522/32/1931_2.png) [@Gammy522](https://forum.livingwithpolyneuropathy.org/u/Gammy522)\
**Post date:** [May 15, 2014, 6:19pm UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/5 "2014-05-15T18:19:21Z")

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Yes, my sister did. I thought it was from the ivig.

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**Author:** ![MissMolly](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/missmolly/32/1929_2.png) [@MissMolly](https://forum.livingwithpolyneuropathy.org/u/MissMolly)\
**Post date:** [May 18, 2014, 6:44pm UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/6 "2014-05-18T18:44:09Z")

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Yes, I had to have a fan on me at all times during icu and intermittent icu (when I went to rehab at about 4 weeks later, I had no issues with being too hot. Before GBS I was always hot, now I am opposite, always on the cold side.

Gammy522@yahoo.com said:

> Yes, my sister did. I thought it was from the ivig.

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**Author:** ![Dave\_Noel\_S](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/dave_noel_s/32/1864_2.png) [@Dave\_Noel\_S](https://forum.livingwithpolyneuropathy.org/u/Dave_Noel_S)\
**Post date:** [May 23, 2014, 10:45am UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/7 "2014-05-23T10:45:55Z")

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My sweet Lord I knew one day you would come.

Not only did I experience this, but my temp was deadly high. They had an electric cooling blanket with ice coild water runing through it.. To this day i cannot tolerate temperatures much above 65. There is no heat in my room, I must ALWAYS have fans blowing on me (I suspect this may be, at least in part, a result of the psychological trauma of so many many months on a respirator.) I have an air conditioner in the winter. Every day, as I get to the point wheer fatigue is about to take me my final warning is copious- no flooding- of perspiration pours off of my head.

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**Author:** ![Magaly\_C](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/magaly_c/32/1962_2.png) [@Magaly\_C](https://forum.livingwithpolyneuropathy.org/u/Magaly_C)\
**Post date:** [June 13, 2014, 4:33am UTC](https://forum.livingwithpolyneuropathy.org/t/heat-with-gbs/2023/8 "2014-06-13T04:33:22Z")

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How many months on the ventilator? How many?
