This article is typical of what can be found using refined internet searches. If you don’t know how ask someone here. They would be glad to help! (SEE NOTE AT BOTTOM) "Chronic inflammatory demyelinating polyneuropathy (CIDP) is the most common chronic autoimmune neuropathy. Despite clinical challenges in diagnosis—owing in part to the existence of disease variants, and different views on how many electrophysiological abnormalities are needed to document demyelination—consensus criteria seem to have been reached for research or clinical practice. Current standard of care involves corticosteroids, intravenous immunoglobulin (IVIg) and/or plasmapheresis, which provide short-term benefits. Maintenance therapy with IVIg can induce sustained remission, increase quality of life and prevent further axonal loss, but caution is needed to avoid overtreatment. Commonly used immunosuppressive drugs offer minimal benefit, necessitating the development of new therapies for treatment-refractory patients. Advances in our understanding of the underlying immunopathology in CIDP have identified new targets for future therapeutic efforts, including T cells, B cells, and transmigration and transduction molecules. New biomarkers and scoring systems represent emerging tools with the potential to predict therapeutic responses and identify patients with active disease for enrollment into clinical trials. This Review highlights the recent advances in diagnosing CIDP, provides an update on the immunopathology including new target antigens, and discusses current treatments, ongoing challenges and future therapeutic directions. " n.b.though we may not be able to understand everything in this article, it is clear that a tremendous amt. of work is being done to refine the diagnosis of CIDP AS WELL DEVELOP MORE PATIENT SPECIFIC TREATMENTS giving younger CIDP pts. much hope that better and more effective treatments will be here soon!
MAY GOD HEARS YOU, AND AGREE!
Geepster said:
This article is typical of what can be found using refined internet searches. If you don't know how ask someone here. They would be glad to help! (SEE NOTE AT BOTTOM) "Chronic inflammatory demyelinating polyneuropathy (CIDP) is the most common chronic autoimmune neuropathy. Despite clinical challenges in diagnosis—owing in part to the existence of disease variants, and different views on how many electrophysiological abnormalities are needed to document demyelination—consensus criteria seem to have been reached for research or clinical practice. Current standard of care involves corticosteroids, intravenous immunoglobulin (IVIg) and/or plasmapheresis, which provide short-term benefits. Maintenance therapy with IVIg can induce sustained remission, increase quality of life and prevent further axonal loss, but caution is needed to avoid overtreatment. Commonly used immunosuppressive drugs offer minimal benefit, necessitating the development of new therapies for treatment-refractory patients. Advances in our understanding of the underlying immunopathology in CIDP have identified new targets for future therapeutic efforts, including T cells, B cells, and transmigration and transduction molecules. New biomarkers and scoring systems represent emerging tools with the potential to predict therapeutic responses and identify patients with active disease for enrollment into clinical trials. This Review highlights the recent advances in diagnosing CIDP, provides an update on the immunopathology including new target antigens, and discusses current treatments, ongoing challenges and future therapeutic directions. " n.b.though we may not be able to understand everything in this article, it is clear that a tremendous amt. of work is being done to refine the diagnosis of CIDP AS WELL DEVELOP MORE PATIENT SPECIFIC TREATMENTS giving younger CIDP pts. much hope that better and more effective treatments will be here soon!
Thanks Greepster!
YOU WROTE & HOW TRUE THIS IS: "I find myself feeling better when I exercise and stay active."
I looked into HVS and the complexities certainly get complex:
http://onlinelibrary.wiley.com/doi/10.1002/ajh.10325/pdf
Geepster said:
If this is your first, I would advise against home infusion till done under more supervised conditions because the side effects , if they occur, will be in the first couple of sessions. After you know whether or not you will have any side effects, then you can start talking about home therapy. Remember there are some nasty side effects which most of us have avoided but are still possibilities. They are: clotting due to the hyper viscosity of the Ig; renal, heart and brain problems from the same causes - thus the requirement for hyper hydration beforehand to dilute the infused solution. I welcome and bless you as you begin what is most certainly to be a long haul. Many have helped me here, they will help you too. Good Luck Always. Remember stay active in your care and don't stop researching your condition and treatment, then share the good stuff with
spellbound said:Neuroboy, I like that, says they'll do IV fluids before and after and they'll be coming to my home,, I drink so much water as it is I'm surprised I don'have gills, guess the prednisone or gabapentin bring that on. Thanks.
I would suggest that you do a face to face with the doctor’s and hospital’s office’s accounts receivable dept. Explaining your financial situation. Nearly all will establish a payment plan no matter how small, that will be mutually satisfactory to both of you. It shows good faith on your part and patience on theirs when faced with patients that have fallen on hard times, a problem commonly seen these days. I, personally don’t respond to online solicitations for donations.
Thanks, guess I typed something I wasn't supposed to in that last post, it got edited, oops :) sorry won't happen again. Been a rough week, Dr making me go see him tomorrow.
I do solu medrol 1 gram iv once a month at home I’m lucky my wife is a nurse doesn’t help the nerve damage to my feet anf legs but seems to keep the other nasty symptoms at bay with minimal side effects