Thank you very much for your advice. Very sorry to hear your situation. But let me ask you something. Why didn’t you get the IVIG treatment on time? My brother has been getting the right treatments and still remains paralyzed. We only pray to the Lord that this is a bad dream. By the way. My bother contracted GBS because of the flu shot but before that he had a stomach infection caused by food poisoning.
Did he get plasmapheresis?
Also, I know this may sound nuts, but after I went to an Iridologist who diagnosed me by looking into my iris, he also taught me a bit about the "Thymus". Research all about it yourself!! It is not an organ we need at all after our teenage years. It still produces some hormones, but causes no harm whatsoever taking it out. It is responsible for causing autoimmune diseases and blood cancers because it tells the immune system what to attack and what to not attack... related to TCells and antigens and antibodies, etc. Hemagtologists and Oncologists (blood and cancer Drs) are the experts at that. The thymus can be removed much simpler than ever before. It is useless, like the appendix is once an adult. It turns into a bunch of fatty globules. The thymus is interconnected with the immune system, a pathway of these little trails that have bean shaped gland like things. The thymus still carries the TCells marking and causing our bodies to fight against itself like as in GBS. I think if it was my brother, I'd insist they take out the thymus. You can read where Myesthineus Gravis is cured once the thymus is removed. Myesthineus Gravis can also cause a persons lungs to stop working and paralysis... read all about that too. Good luck. God am I so lucky that my GBS didnt advance that fast. I'll pray for you and your brother. Let me know how that goes after you study a bit. Chatty Kat
I will research that option. Thank you for the tip. My brother is progressing but very slowly. Thank you for your prayers. Magaly
Why did they check the NA and K daily? What will happen if my neurologist doesn't know this? I have an appt tomorrow with him and I'd like to speak to this if necessary. I have had NO education whatsoever about GBS by any Dr here. I feel I should get it. UHGGGG
Magaly Carrillo said:
Hey Chandan,
I spoke to my brother's Doctor and she said that she had talked to the neurology Doctor that diagnosed GBS on my bro back in March. The neurology Doctor said that they had given doses of IVIG for the first five days he was at the hospital and of course based on his weight. My brother didnt make any improvement. And to make matters worse he still is on the ventilator. Anyway on Saturday 6-7-14 the Doctor started the doses of IVIG for three days. Doctor said that if we dont see any progress in two weeks, my bro is going back to the hospital for another treatment. (plasmapheresis). He is also in gabapentin and hydrocodone for pain.
Thank you for your concern.
Chandan said:Hey Magaly,
IVIG is to be given based on the body weight of patient. In some cases doctors recommends "Plasmapheresis" treatment instead of IVIG. My wife has been given total 135 grams (25+35+25+25+25) IVIG doses in initial 5 days. After then till one month she was under observation of doctors & then has given some tablets like Gabapentin 300mg BD, Tab Adesam 400mg OD etc. During observation they were checking Na & K level daily. I think way of treatment may be varies from patient to patient & based on type of GBS.
What doses of IVIG per day will be given till 6 months to your bro by his doctors? After knowing this, you may consult the details with some other specialists for second opinion & if required you may go for third opinion as well. There is no harm in this rather it will make you understand the things clearly.
All the best & Hope for his fast recovery.
Chandan