# Prednisone and the tapering down

**URL:** <https://forum.livingwithpolyneuropathy.org/t/prednisone-and-the-tapering-down/3724>\
**Category:** General CIDP Discussion\
**Created:** [August 1, 2018, 7:53pm UTC](https://forum.livingwithpolyneuropathy.org/t/prednisone-and-the-tapering-down/3724 "2018-08-01T19:53:01Z")\
**Posts on this page:** 3\
**Page:** 1

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**Author:** ![donarne](https://avatars.discourse-cdn.com/v4/letter/d/958977/32.png) [@donarne](https://forum.livingwithpolyneuropathy.org/u/donarne)\
**Post date:** [August 1, 2018, 7:53pm UTC](https://forum.livingwithpolyneuropathy.org/t/prednisone-and-the-tapering-down/3724/1 "2018-08-01T19:53:01Z")

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I have been ramping down 1mil every 3 weeks from 10 mil. I knew from before I would have some side effect, buy I had no idea there would be so many! I thought from such a small amount to start with I would have no problem with the withdrawals. I had been taking it for about 4 years before a new DR\> told me he didn’t think I needed at all. He could have told me a little more about the side effects of the withdrawals or what might occur when even ramping down slowly. Any body else have anything like this happen before?

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**Author:** ![Williamts](https://avatars.discourse-cdn.com/v4/letter/w/258eb7/32.png) [@Williamts](https://forum.livingwithpolyneuropathy.org/u/Williamts)\
**Post date:** [August 1, 2018, 9:31pm UTC](https://forum.livingwithpolyneuropathy.org/t/prednisone-and-the-tapering-down/3724/2 "2018-08-01T21:31:36Z")

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I was on prednisone for a year and do not remember tapering off . We just stopped after a year when I needed to quit to save my marriage,my business and my mind. Roof rage was real and rood rage was scared for us. But I don’t remember withdrawal to be an issue.

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**Author:** ![mrobichek](https://avatars.discourse-cdn.com/v4/letter/m/977dab/32.png) [@mrobichek](https://forum.livingwithpolyneuropathy.org/u/mrobichek)\
**Post date:** [August 2, 2018, 11:06pm UTC](https://forum.livingwithpolyneuropathy.org/t/prednisone-and-the-tapering-down/3724/3 "2018-08-02T23:06:59Z")

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When I began taking Prednisone a couple weeks ago, I knew that the side effects list was longer than my arm. Since my CIDP diagnosis happened just a few weeks ago, I decided to visit the top CIDP specialist in my area. He was not convinced of my diagnosis and told me to stop taking the Prednisone immediately!

Since I had read the warnings about stopping Prednisone, I was leery, but the doctor assure me that being on the drug for only 2 weeks wasn’t a long enough time to worry about withdrawal side effects.

In addition, my neurologist stated that eventually, I would be weaned off of Prednisone, in favor of a non-steroidal immunosuppressant. Way fewer side effects…

Best of luck to both of us!