I understand and share your problem, I too have the same urgency now along with the pain. I was sent to an urologist who tried to put me on yet another drug, like I need another drug. I believe it is from the CIDP as it is affecting my autonomic functions. I also had renal failure this summer which is another indication of advanced CIDP. I also receive IvIG every three weeks like you, maybe it is the frequency of our infusions?
I am willing to discuss any CIDP symptoms or issues you would like, it is nice to share with someone who understands.
Hi I am also on Privigen for CIDP and just got off of Bactrum for UTI and it has now come back with a vengence ! Can't hold my urine either! I know my new nurse told me to hydrate the day before days of and days after treatments. I don't like to drink and it is very hard for me. Maybe that is the problem but I agree with you!
Wow, I am really glad I caught this post! I just started Privigen last week. I am doing half a day, 2 days in a row every 3 weeks. I had been on Gammaked, then GamunexC. They both gave me a very ugly, itchy rash, even with Prednisone and Benedryl. If I continue to stay on Privigen,this is something that I will be aware of if I start having any effects. Thank you all for your postings and awareness!
Must say I’m so very glad that I have This site!! So an update on myself. I do not hydrate myself before treatments anymore. Yes I know I risk the chance of headaches. But I would rather deal with them then peeing the bed at night. But I do agree with everyone I beleive cidp affects alot more then the doctors know. So I’m glad to have a great bunch of people that can relate to the issues at hand!! Remember we go get through all this one step at a time!! Hope everyone is doing well!!