# Scared

**URL:** <https://forum.livingwithpolyneuropathy.org/t/scared/2524>\
**Category:** Blog\
**Created:** [May 5, 2015, 1:03am UTC](https://forum.livingwithpolyneuropathy.org/t/scared/2524 "2015-05-05T01:03:16Z")\
**Posts on this page:** 2\
**Page:** 1

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**Author:** ![girlofgullianbarre](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/girlofgullianbarre/32/2145_2.png) [@girlofgullianbarre](https://forum.livingwithpolyneuropathy.org/u/girlofgullianbarre)\
**Post date:** [May 5, 2015, 1:03am UTC](https://forum.livingwithpolyneuropathy.org/t/scared/2524/1 "2015-05-05T01:03:16Z")

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I went to ot and pt today and my strength went way down:( my hands are becoming numb again. today the ot asked when I go back to the dr because of my strength decreasing so much! I haven't been to ot and pt for two weeks because I was sick! I had got gullian barre full blown august of last year and im only 23 years old I was placed on a ventilator because I died 3 times and had a stomach tube and then a trach I was in the hospital for 6 months! I don't wanna get this horrible disease back! I need advice

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**Author:** ![LanceB](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/lanceb/32/1744_2.png) [@LanceB](https://forum.livingwithpolyneuropathy.org/u/LanceB)\
**Post date:** [May 5, 2015, 11:24pm UTC](https://forum.livingwithpolyneuropathy.org/t/scared/2524/2 "2015-05-05T23:24:11Z")

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It sounds like it may be morphing into CIDP, which is the chronic form of GBS. I recommend getting back to your doctor as soon as possible, because if that's the case, a course of IVIG would be helpful to start as soon as possible. Sorry to hear about the worsening condition, and wish you the best!
