# Still messed up physically!

**URL:** <https://forum.livingwithpolyneuropathy.org/t/still-messed-up-physically/1967>\
**Category:** General GBS Discussion\
**Created:** [December 26, 2013, 2:51am UTC](https://forum.livingwithpolyneuropathy.org/t/still-messed-up-physically/1967 "2013-12-26T02:51:01Z")\
**Posts on this page:** 4\
**Page:** 1

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**Author:** ![Heavenboundminister](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/heavenboundminister/32/1739_2.png) [@Heavenboundminister](https://forum.livingwithpolyneuropathy.org/u/Heavenboundminister)\
**Post date:** [December 26, 2013, 2:51am UTC](https://forum.livingwithpolyneuropathy.org/t/still-messed-up-physically/1967/1 "2013-12-26T02:51:01Z")

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I am still experiencing electric shock, tingling, extreme fatigue, speech motor skills, neuropathy, light memory loss, and sick all over feeling. I have stinging around my nose with dark spots under my eyes. I was diagnosed this year in February 2013. My question is I seem to be chronic and not much better from the original diagnoses. Is anyone else still home bound and disabled like me? Some people have some left over problems but I am concerned they may have missed diagnosed me because my illness is chronic and daily? Any answers for me?

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**Author:** ![ksmith](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/ksmith/32/1886_2.png) [@ksmith](https://forum.livingwithpolyneuropathy.org/u/ksmith)\
**Post date:** [January 7, 2014, 3:13am UTC](https://forum.livingwithpolyneuropathy.org/t/still-messed-up-physically/1967/2 "2014-01-07T03:13:34Z")

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I am brand new to the group. I joined because I also have lingering issues. I was diagnosed in May of 2013. It started in my arms and within a week to my legs. I was unable to walk for only 1 night and it never got worse. I still don't walk "normal" and often use a cane and require a walker for a longer day (ex: at a theme park). I get very fatigued with very little exertion. I fight to keep doing all that I have ever done. I joined for your reason as well. I feel like I am not much better and live with it pretty much every day. My husband says that I have improved since the beginning but I have gained a bunch of weight from meds and being unable to move as much. It sounds like so many of us are affected very differently.

So, while I don't have any answers, know that you are not alone in feeling discouraged.

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**Author:** ![Heavenboundminister](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/heavenboundminister/32/1739_2.png) [@Heavenboundminister](https://forum.livingwithpolyneuropathy.org/u/Heavenboundminister)\
**Post date:** [January 7, 2014, 9:27pm UTC](https://forum.livingwithpolyneuropathy.org/t/still-messed-up-physically/1967/3 "2014-01-07T21:27:19Z")

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Going to Mayo Clinic January 13th & 14th in Jacksonville Florida to one of the top specialist. I will post his diagnoses. Hope you feel better. Chronic illness is tough. Thank you for sharing your story! Richard

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**Author:** ![Bob\_Si](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/bob_si/32/1888_2.png) [@Bob\_Si](https://forum.livingwithpolyneuropathy.org/u/Bob_Si)\
**Post date:** [January 9, 2014, 8:32pm UTC](https://forum.livingwithpolyneuropathy.org/t/still-messed-up-physically/1967/4 "2014-01-09T20:32:10Z")

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I am also new to the group. I was diagnosed in 2011 and will have my 3 year anniversary next month. I still have many symptoms and have been reading that 30% of patients have symptoms for more the three years. I am functioning fine and have been for the around two years but am not anywhere near where I think I should be. I am retired and do not think I could work if I wanted to. Weakness, fatigue and shortness of breath are the worst symptoms.
