excellent news!!! thank you for sharing. I hope there is continued improvements!!
That's great news Penny and lorac! Tell your love ones to continue the effort! Keep us posted.
That’s awesome continue to point these accomplishment out to him and keep telling him he is on his way to recovering. Keep us posted
Iorac, great news about your son! A little improvement each time really does help 
Send him our love.
My suster will be in rehab for an extended 6 weeks as she still cant walk but is attempting to use the slideboard.
Wish improvements werent so slow. 
I have been told that you recover starting at the top and it works it way down to the feet. It seemed longer in the torso but a little faster in the legs
My daughter can now feel me touching legs pain has subside quite bit not asking for her meds as much She stood on the standing machine for 12 minutes on Friday and was so excited
My daughter walked the parallel bars this week started with 6 step second time 10 steps the next day the full length Things are moving much faster.
that is great. My son has improved in the last week too. He is home because his care home coverage stopped, but he has a CNA for 8 hours a day. He is moving his hands and arms, although he can't grasp yet. He is in a lot of pain because of his nerves trying to recover. that is good news I understand--that is the healing taking place.
Penny said:
My daughter walked the parallel bars this week started with 6 step second time 10 steps the next day the full length Things are moving much faster.
My daughter experience so much pain. It seems the nerves as they heal it hurts. But means it is healing. Make sure you exercise him all the time
now that he is home he is getting much more therapy than in the care home.. Everyone who visits has to do their share of therapy. he is taking some sort of pain medicine which helps a lot
Penny said:
My daughter experience so much pain. It seems the nerves as they heal it hurts. But means it is healing. Make sure you exercise him all the time
I’m so happy to hear of the progress your daughter has Penny and your son, Lorac. My sister also took a few steps but nowhere as near as your daughter penny. My sister is 13 weeks in so it’s till early I suppose… She has physio every day and is improving slowly but standing up she finds exhausting and she can’t do it in her own from a sitting position. It has to be from
Her bed and dipped high. So happy to hear of the progress all our loved ones have made. And it seems Get Better Slowly is the most fitting statement for this awful syndrome.
All have a lovely day, may it be blessed.
Any progress is great. Keep pushing her my daughter is also totally exhausted but she wants out and come home she is determined. She walked with the walker with assistance and was so afraid she would collapse. But she pushed and walked 50 ft and struggled thru it she dressed herself also today. The problem is she is progressing that the May keep her another week. Which she thinks she will be home by the end of the week she will be crushed and I don’t want to break it to her
So excited Erin is coming home on Sunday. We still have a long way to go but she can walk with a walker and use the slide board just having her come to my home and nursing her back to health is a Hugh step she has been hospitalize since April 23rd. Still in pain but more bearable
We now have our son in our home. His benefits ran out and there was nowhere else for him to go. Since he is divorcing his wife in order to get any kind of medicare benefit, he can't live there any more. we are elderly (almost 80---ugh!!!) and know it is going to be hard to care for him. We eventually will get help from medicare since he is on disability but until that time we will have to care for him.. he can't feed himself (yet) and needs diapers and turning every couple of hours, but we will do our best. He is improving slowly--very slowly.
Penny said:
So excited Erin is coming home on Sunday. We still have a long way to go but she can walk with a walker and use the slide board just having her come to my home and nursing her back to health is a Hugh step she has been hospitalize since April 23rd. Still in pain but more bearable
lorac hang in there. Your son will get better but in the meantime you have to make sure you and your husband don't over do it. Both of you have to take care of yourselves too. May God Bless you and your family.
Aloha
lorac said:
We now have our son in our home. His benefits ran out and there was nowhere else for him to go. Since he is divorcing his wife in order to get any kind of medicare benefit, he can't live there any more. we are elderly (almost 80---ugh!!!) and know it is going to be hard to care for him. We eventually will get help from medicare since he is on disability but until that time we will have to care for him.. he can't feed himself (yet) and needs diapers and turning every couple of hours, but we will do our best. He is improving slowly--very slowly.
Penny said:So excited Erin is coming home on Sunday. We still have a long way to go but she can walk with a walker and use the slide board just having her come to my home and nursing her back to health is a Hugh step she has been hospitalize since April 23rd. Still in pain but more bearable
I’m so happy to read everyone’s relatives progress. My sister will be home next Wednesday, she has been in hospital and rehab since March the 13th.she has taken afew steps but that is amazing for her she is so happy as she thought she’d never walk again. She still can’t stand on her own from low but can when he bed is tilted. It’s been such an exhausting journey but from where she was 4 months ago, on a ventilator in a neurological crustal care unit to now, sitting up comfortably in a wheelchair and being mobile is such an amazing journos.
The CDC recommends GBS patients get the IVIG treatments... i don't believe insurances can deny him. They are very expensive ($5-10,000 each treatment) and he will need 5 initially with pretreatment of tylenol/benedryl and being well hydrated with lots of water. Its an IV treatment of immuno globulin which should assist in halting the immune system from attacking its bodys own nerves. Good luck on getting him IVIG treatments!!!!!
also, after the 5 initial treatments, a few weeks and/or months of more IVIg treatments may be needed. I hope your drs are on board, as it's everything to getting better.
Kathy Cooper said:
The CDC recommends GBS patients get the IVIG treatments... i don't believe insurances can deny him. They are very expensive ($5-10,000 each treatment) and he will need 5 initially with pretreatment of tylenol/benedryl and being well hydrated with lots of water. Its an IV treatment of immuno globulin which should assist in halting the immune system from attacking its bodys own nerves. Good luck on getting him IVIG treatments!!!!!