# This new drug called rituxan **URL:** \ **Category:** General CIDP Discussion\ **Created:** [October 1, 2014, 1:08am UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745 "2014-10-01T01:08:01Z")\ **Posts on this page:** 10\ **Page:** 1
**Author:** ![firecracker](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/firecracker/32/889_2.png) [@firecracker](https://forum.livingwithpolyneuropathy.org/u/firecracker)\ **Post date:** [October 1, 2014, 1:08am UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/1 "2014-10-01T01:08:01Z")
Is any one receiving the new treatment called rituxan,my Dr wants to add this drug along with my ivig treatments but I'm scared of it just because it is a component of chemo. ---
**Author:** ![Mceagle](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/mceagle/32/830_2.png) [@Mceagle](https://forum.livingwithpolyneuropathy.org/u/Mceagle)\ **Post date:** [October 2, 2014, 9:23am UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/2 "2014-10-02T09:23:59Z")
My comments back on page 8 - August 12. ---
**Author:** ![estaban](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/estaban/32/2611_2.png) [@estaban](https://forum.livingwithpolyneuropathy.org/u/estaban)\ **Post date:** [October 2, 2014, 10:02pm UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/3 "2014-10-02T22:02:04Z")
[http://www.livingwithcidp.org/forum/topics/rituximab-possible-new-cidp-treatment-option](http://www.livingwithcidp.org/forum/topics/rituximab-possible-new-cidp-treatment-option) ---
**Author:** ![jakespa](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/jakespa/32/838_2.png) [@jakespa](https://forum.livingwithpolyneuropathy.org/u/jakespa)\ **Post date:** [October 3, 2014, 5:21pm UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/4 "2014-10-03T17:21:16Z")
Hello, I had 2 Rituxan treatments but they were both almost 5 years ago. I was given the option to try this treatment when I really started having nerve problems following Chemo for Hodgkin's. My Hemo doctor at City of Hope suggested it and I went ahead and tried it. I had two treatments and as I remember it they were about a week or so apart and lasted all day. I was told at the time that I may or may not get any results and if I did they may only be temporary. My neuropathy was advancing up to my knees at the time and I had a lot of pain when I walked. The Rituxan DID work and significantly reduced the numbness and pain. It seemed to push it all down to the bottoms of my feet AT THE TIME. It's now been a little over 4 years and my neuropathy has returned, AMOST as it was at the time of the Rituxan treatment. I guess I'm one of those who received only temporary results. I do not remember anything bad from the treatment. YES I would do it again if it were offered. I do not remember it being as bad as chemo at all. I am thankful for those comparatively better years. I have now started IVIg. I hope my story helps. All the best to you and yours. ---
**Author:** ![firecracker](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/firecracker/32/889_2.png) [@firecracker](https://forum.livingwithpolyneuropathy.org/u/firecracker)\ **Post date:** [October 5, 2014, 10:49pm UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/5 "2014-10-05T22:49:32Z")
Thanks so much I'm on ivig and will also have rituxan once a month for 4 months you have been so helpfull! ---
**Author:** ![system](https://us1.discourse-cdn.com/flex019/uploads/ben_polyn/original/2X/e/e30900c8db9e7859445c45df1a93b72099e1b777.png) [@system](https://forum.livingwithpolyneuropathy.org/u/system)\ **Post date:** [October 8, 2014, 6:13pm UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/6 "2014-10-08T18:13:36Z")
**Thanks for mentioning the Rituxan. Sorry, but I have not heard of that drug. Yesterday, I cut back on my dose of Cellcept, per my Neurologist; and in a month, I'll be off Cellcept. Then, depending on the results of a genetic test result for APBD (i.e., if it's negative or positive), I may start on a chemotherapy pill. I hope, if I go on a chemotherapy drug, the side effects are manageable. Good luck to you!** firecracker said: > Thanks so much I'm on ivig and will also have rituxan once a month for 4 months you have been so helpfull! ---
**Author:** ![Bonzo](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/bonzo/32/902_2.png) [@Bonzo](https://forum.livingwithpolyneuropathy.org/u/Bonzo)\ **Post date:** [October 23, 2014, 10:07pm UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/7 "2014-10-23T22:07:17Z")
I've been on Rituxan. It was prescribed by my Rheumatologist for my Lupus and CIDP, to take along with IVIg. I ended feeling worse, then got a UTI and a fever of 103.6. After a course of antibiotics, I got a second UTI and a fever of 104. Needless to say I quit and have never had another UTI. Keep in mind that we are all different and that is why we should try, keep good records, and make sure we have a doctor available. ---
**Author:** ![SteveK](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/stevek/32/887_2.png) [@SteveK](https://forum.livingwithpolyneuropathy.org/u/SteveK)\ **Post date:** [October 28, 2014, 4:41am UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/8 "2014-10-28T04:41:54Z")
I'm going to my neurologist tomorrow and will ask about Rituxan! I'll pass on what he say's. ---
**Author:** ![SteveK](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/stevek/32/887_2.png) [@SteveK](https://forum.livingwithpolyneuropathy.org/u/SteveK)\ **Post date:** [November 21, 2014, 4:35pm UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/9 "2014-11-21T16:35:25Z")
I talked with my Neurologist about Rituxan treatments and he said as long I was doing well on my IVIG treatments, he wouldn't recommend it! ---
**Author:** ![Catherine\_H](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/catherine_h/32/782_2.png) [@Catherine\_H](https://forum.livingwithpolyneuropathy.org/u/Catherine_H)\ **Post date:** [November 30, 2014, 11:29am UTC](https://forum.livingwithpolyneuropathy.org/t/this-new-drug-called-rituxan/745/10 "2014-11-30T11:29:36Z")
Our daughter is 14yo & has cidp for which she was been having ivig treatment for 2 years. Her neuro is in the process of getting approval for Rituxan. He says some patients only need 1 treatment, some once a year and some a bit more frequently but it will definitely be less often than the 5 weekly ivig. She will continue to have the ivig for the first few months then go off the ivig & see how it goes.