# Treatment tomorrow **URL:** \ **Category:** General CIDP Discussion\ **Created:** [March 14, 2017, 12:07am UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976 "2017-03-14T00:07:18Z")\ **Posts on this page:** 13\ **Page:** 1
**Author:** ![Bwuk](https://avatars.discourse-cdn.com/v4/letter/b/71c47a/32.png) [@Bwuk](https://forum.livingwithpolyneuropathy.org/u/Bwuk)\ **Post date:** [March 14, 2017, 12:07am UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/1 "2017-03-14T00:07:18Z")
Hey all. I am back for another round of ivig this morning 14th march. My dr told me at the end of the last lot we are going to extend my treatment to every 8 weeks, from every 6 weeks. So I agreed and away we went… well this is week 7… good heavens I’m bad. Very weak and wobbly. Feet, which are my main issue, are super numb and painful. My hands, which are normally ok, are terrible can’t feel my left at all. They are also very weak and have dropped a lot!!! Oh well hopefully all will go with no issues and help ease things a bit. Hope everyone is ok… Bazza. ---
**Author:** ![CanadianGirl](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/canadiangirl/32/1088_2.png) [@CanadianGirl](https://forum.livingwithpolyneuropathy.org/u/CanadianGirl)\ **Post date:** [March 15, 2017, 10:06pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/2 "2017-03-15T22:06:09Z")
Hey Bazza, I hope the treatment went well and that you are starting to feel better today! ---
**Author:** ![Bwuk](https://avatars.discourse-cdn.com/v4/letter/b/71c47a/32.png) [@Bwuk](https://forum.livingwithpolyneuropathy.org/u/Bwuk)\ **Post date:** [March 20, 2017, 5:22am UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/3 "2017-03-20T05:22:13Z")
Hi Canadian girl… Sorry for delay. Has been a bit of a poo few days. Treatment all done. Hands are feeling better, still numbness but better. Legs and feet are awful still. Kept me awake last few days. On a positive note… almost headache free during treatment. ---
**Author:** ![jim3](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/jim3/32/1152_2.png) [@jim3](https://forum.livingwithpolyneuropathy.org/u/jim3)\ **Post date:** [March 20, 2017, 7:49pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/4 "2017-03-20T19:49:14Z")
Doesn’t sound good…I have CIDP-MGUS and IVIG didn’t help. I take 800mg of gabapentin and it controls the pain to a tolerable limit. Pray you will get some relief ---
**Author:** ![CanadianGirl](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/canadiangirl/32/1088_2.png) [@CanadianGirl](https://forum.livingwithpolyneuropathy.org/u/CanadianGirl)\ **Post date:** [March 21, 2017, 2:19pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/5 "2017-03-21T14:19:27Z")
Hey Bwuk, small victories eh? Hoping things turn around for you, do you have anything that helps you sleep? Spring has finally arrived in Calgary, it is supposed to get up to 10 today! After the bitter cold winter we had, the warmth is so welcoming. CG ---
**Author:** ![Bwuk](https://avatars.discourse-cdn.com/v4/letter/b/71c47a/32.png) [@Bwuk](https://forum.livingwithpolyneuropathy.org/u/Bwuk)\ **Post date:** [March 21, 2017, 7:19pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/6 "2017-03-21T19:19:11Z")
Thanks Jim. Appreciate that. Ivig doesn’t make me better… it stops me getting worse so far. Hey Canadia girl… wow as warm as that… get those shorts out hehe. How cold does your winter get? No I don’t like to take things like that. Sleep feels forced… ---
**Author:** ![Jokhere](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/jokhere/32/1013_2.png) [@Jokhere](https://forum.livingwithpolyneuropathy.org/u/Jokhere)\ **Post date:** [March 22, 2017, 4:51am UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/7 "2017-03-22T04:51:12Z")
My doctor suggested extending my IVIG from four weekly to six weekly “to see what happens”. I said, “let’s not!” I know I get worse the closer I get to the infusion date, and was not interested in making it longer. I’ve found the titration rate significantly affects whether I’ll wind up with a headache. The nurses are now all over this, and all is okay (well … as okay as it can be). ---
**Author:** ![CanadianGirl](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/canadiangirl/32/1088_2.png) [@CanadianGirl](https://forum.livingwithpolyneuropathy.org/u/CanadianGirl)\ **Post date:** [March 22, 2017, 2:10pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/8 "2017-03-22T14:10:38Z")
This winter was particularly cold, we had 26 days below -20 (degrees Celsius that is, so -4 Fahrenheit). You would think after that cold ten degrees would feel like shorts weather! ---
**Author:** ![CanadianGirl](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/canadiangirl/32/1088_2.png) [@CanadianGirl](https://forum.livingwithpolyneuropathy.org/u/CanadianGirl)\ **Post date:** [March 22, 2017, 2:12pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/9 "2017-03-22T14:12:06Z")
Hey Jokhere that is good advice. And good for you for standing up for yourself. ---
**Author:** ![Bwuk](https://avatars.discourse-cdn.com/v4/letter/b/71c47a/32.png) [@Bwuk](https://forum.livingwithpolyneuropathy.org/u/Bwuk)\ **Post date:** [March 22, 2017, 2:26pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/10 "2017-03-22T14:26:37Z")
Same with the rate. I have the drip machine set to 100. Anymore and my head is horrendous. WOW… Now that’s flaming cold. I can’t imagine cold like that. I thought our winters were cold… def not… ---
**Author:** ![Jokhere](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/jokhere/32/1013_2.png) [@Jokhere](https://forum.livingwithpolyneuropathy.org/u/Jokhere)\ **Post date:** [March 25, 2017, 8:26am UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/11 "2017-03-25T08:26:50Z")
Thanks CanadianGirl for the feedback. It can be pretty hard at times when you feel that no one understands and even the GP has to continually look up CIDP. ---
**Author:** ![Bwuk](https://avatars.discourse-cdn.com/v4/letter/b/71c47a/32.png) [@Bwuk](https://forum.livingwithpolyneuropathy.org/u/Bwuk)\ **Post date:** [March 25, 2017, 9:50am UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/12 "2017-03-25T09:50:50Z")
Are you in the UK bud? ---
**Author:** ![Jokhere](https://sea1.discourse-cdn.com/flex019/user_avatar/forum.livingwithpolyneuropathy.org/jokhere/32/1013_2.png) [@Jokhere](https://forum.livingwithpolyneuropathy.org/u/Jokhere)\ **Post date:** [March 25, 2017, 8:27pm UTC](https://forum.livingwithpolyneuropathy.org/t/treatment-tomorrow/2976/13 "2017-03-25T20:27:33Z")
No … other side of the world - Australia☺