I have never seen a neurologist--can they help & how? Like you I have other issues--spinal stenosis. Hope you can deal with the PTSD. I too am a veteran but I was lucky to have not been in combat. Hope they can find a cure of sorts. I also was very active.& am a retired FDX courier. I began having my troubles 3 years after retiring. I just made it cause I could never do that work now in my present condition.
All the best to everyone!,
Ken
jnj2008 said:
PCM
Thanks for the encouragement. I will eventually accept and allow the help. To all you out there I am so proud of you and keep up the fight. There will be a cure found someday and we will all be helped. My neurosurgeon said they are making great strides toward finding at least better treatments for us. I just think we all just need to stick together and keep helping each other like we are doing here. I do totally appreciate the support to help me get used to my chair. It IS hard to go from and Ambulance/Fire Truck/Rescue Squad for so many years also raising Special needs foster children to all of a sudden I am the one in the chair and needing the care. I am getting closer and starting to accept it but I also have underlying problems of PTSD and Trigeminal Neuralgia. Again thanks for all the help and I am sorry for rambling but is how my brain works now days.
hi i am new to this i just recently found i cant walk far anymore also i cant jump or dodge or be usefull.
this is very hard to deal with for me the only way i keep going is knowing i am not alone thank you guys so very much. also thanx to the ppl hosting the site and dancermom and the mods
I so relate to not being able to walk or dance hop skip or run anymore; Used to run 5 miles a day until was in 30's. Didn't know I had CMT then but knew I was different and i fell allot and injured knees often. Age 40 was my diagnosis after breaking my Big toe on both feet twice trying to come down stairs. YOU are Not alone! This ia a fact. CMT is the most common inherited disease but the least known or understood! Awareness and advocacy is the key to making others know what they are dealing with! Stick together and encourage and support is our best help!
Reply to Bruce. You are not alone although sometimes you feel like you are. at times I even have to deal with depression and some family members don't understand because you look normal. Bless all of you struggling with this. Love all of you.
Hey bruce! So good to see you on the boards already! Welcome to the group! I'm the only one here who doesn't have CMT, but have several autoimmune diseases, so can still relate to having difficulty getting around!
My days of jumping and dodging are over as well, and am very limited in my time being up and around, this seems to keep diminishing over time!
The Ben's Friends groups are really a haven for us all, as we are able to gather, discuss, compare, vent and hold each other up! The flow of information is also very helpful!
Please make sure to catch the discussion on PXT3003. I'll get you the links!