My goodness - you definitely had it a lot harder than many of us that had GBS. Were you able to type this - or did your wife have to type it for you. How paralized are you - can you move your arms at all. Just wondering. I was totally paralyzed, but did come out of it. Nebretta
Thanks for the shares, Nedetta, no he's not typing yet, but soon we hope. Mike the computer guy, so sorry for your ordeal, so far, someone has been able to be with him every day.
Dad is making progress everyday, moving arms and legs etc. They are turning off the vent a bit everyday, weaning him off it. We, too are learning lip reading, better than nothing, but hard to understand, I know it's frustrating for him (and us), but it's better than nothing. He's in good spirits considering, and we're quite hopeful that he keeps on heading in the right direction.
Hi,I haven't updated on my Dad for awhile. Last week, he was moved to a Specialist Hospital, that focuses on vent weaning. They have been lowering his dependence on vet, hope to have him fly solo Thursday. Luckily, he's not in pain, and is getting stronger.
Yesterday was 3 weeks, today he sat on the edge of his bed, with assistance. Can't wait till he gets trach out, and can speak. He tried to write his name, with unlimited success, but was able to play tic-tack-toe, I made the grid large, and let him be X' s, we'll work up to him being O' s, I think that would be harder.
Working on keeping his spirits up.
That is wonderful news, thank you for sharing. Things will be so much better without the vent, yeah!!!
I did not have bad dreams at all. I remember on one of the first nights sobbing - and the lady in the next bed said "it will be ok honey". Yes, I was paralyzed too - but I never was on a breathing machine. He will be ok in time, most everyone is ok, from what I have heard and experienced through the years. I do not recall what I thought - but I did know I was getting very good care. I remember some very bad leg cramps - probably because my legs could not move. Best wishes to him - seriously, by this time next year he will look back and this as a foggy memory. From start to recovery for me it was probably 5 months. Nebretta
I'm looking for advice again folks. Dads trach weaning was going well, bit longer, with less support every day. Then someone decided he was anxious, (he was working for sure, but breathing). They started him on Seroquil, also on Gabapentin. He has been knocked out and groggy, not working as hard, kinda giving up. We told them to dis-continue anxiety drugs. When we ask him if he wants this, he shrugs, or, if he is more with it, says no.
Question being, what are some experiences with weaning and drugs? He has always responded no to pain questions.