What should I do?

General General CIDP Discussion
21


Thank you so much for the information! I have listed all of things you mentioned to talk to my Neurologist about. I haven't even heard of the t cells vs. B cells. I was really feeling like I was going crazy. I have no idea why my body needs treatments so frequently. it's nice to know that it isn't considered normal even for the range of accepted normalcy of CIDP.
tperri said:

PS - Receiving PE once every seven days is not okay. It is indicative that it is not working for your disease, not that you may have the wrong diagnosis.
22

CIDP varies with each individual, as does treatment. Accept that you have a chronic disease first of all. Some treatment will work, it just takes time and patience to find the right one.

Start building up muscles to counteract the 24/7/365 CHRONIC condition. Weakness will come, as this is the major effect of CIDP over time. Pain comes because the sensory nerves can't understand/act upon the lack of muscle voltage-potentials (strength).