My GP has heard of it, but he told me he had only seen two people with it in 25 yrs of practice. It took visits to 4 neurologists for me, because I also have diabetes, and it was the simpler explanation for the early symptoms, As things got worse, no one could decide what it was, but would always say "no" if I asked about CMT (was in the family).
Eventually I looked at the family history more closely (I only knew of 3 for a long time, then I found 14. Now it's up to 20).
Anyway, finally a genetic test was ordered and what I kept telling them was verified. Took a long time.