What is Livingwithpolyneuropathy.org?
Livingwithpolyneuropathy.org is a dedicated patient-to-patient support community for families affected by Polyneuropathy.Livingwithpolyneuropathy.org is powered by BensFriends.org, patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Polyneuropathy. Specifically all though there are many forms of Polyneuropathy, we concern ourselves here primarily with Guillian-barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and Charcot-Marie-Tooth (CMT). As these diseases have much in common with each other and with Polyneuropathy in general there is much that can be shared to help all Polyneuropathy sufferers.
Who can join Livingwithpolyneuropathy.org?
If your family has been affected by Polyneuropathy, consider Livingwithpolyneuropathy.org your second home. Livingwithpolyneuropathy.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.
What is BensFriends.org?
In 2007, Ben Muñoz suffered a rare form of stroke caused by an AVM. He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.
BensFriends.org is a network of patient communities for people living with rare diseases. Launched in November 2007, BensFriends.org provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives.