Hi, I got GBS in Sept 2014 and I have been left with numbed feet which I take Lyrica and Tramadol for the pains and discomfort.
My feet swell up , are burning and I take a water tablet daily. I have made good progress but the feet are only 50% of what they used to be prior to the GBS in 2014.
Yes Iāve really come along well thanks. Yesterday because we were going out I wore sandals with no problem, so for the time being Iāll just save them "for good"
The feeling in my toes has returned but the rest of my foot is still weird. It usually feels like itās wrapped up in a lot of bandages. The tingling in my hands is 99.99999% gone and only a wee bit returns when Iām tired.
I take Gabapentin for my feet but no water pills.
Comfort first by all means! Iām sure after the first āoutingā in your shorts, and seeing that nobody gives you a second glance, will send all self conscienceness flying away. We do tend to look at ourselves as we āthinkā others see us and quite often we find out to our great relief we get it wrong.
Good luck with the socks shopping. I was looking for the opposite type of socks that you want on the Internet and came across a lots of knee socks in the sports socks sections.
There is still progress, yes. Slow with extended plateaus but progress is always good. During hot and humid weather I still have feet swelling issues and burning as you mentioned, also numbness. I use ice packs on bad days and do get some relief from that. My feet are very painful in the mornings and difficult to weight bare on⦠certainly better than before but still I havenāt had a pain free day since it all began.
It is all slowly getting better and that leaves me optimistic⦠hmmm⦠not always patient but still optimistic.
What other residual issues are you dealing with?
Hi Meta
Good to hear that you are making slow progress. You have to be patient although it can get you down some days I bet.
I take Furosemide for my swollen feet and that is a water tablet which is helpful to control the swelling.
Yes walking is difficult with the numbness and I take Lyrica as well as Tramadol which all heps to get me through the day Meta.
Keep your spirits up , you have come this far now so well done and I will keep you in mind ok Meta
Hello,
I am two years in recovery. I just started walking my second year. At first my feet were so sensitive I could let anything touch them. It is so much better. I still have days that my feet feel like they are sunburned on the bottoms. Hang in there. Our experiences are similar yet different. Physical therapy has been the key for me.
Renee
My feet are very similar. Pain when walking burning when sitting or laying down. Pain never stops and itās been 5 yrs. I try to wear very cushiony running shoes. Hokaās great for softness, but quite high so with crappy balance falling was an issue. I always wear shoes with as many insoles as I can fit into them for more cushion. Feet are very sensitive to cold floors. And today itās -20 C here and I canāt get my feet warm. Even though Iām inside. Really sucks
I know this is an older post but wanted to share my empathy with you all. My feet are the worse part of my condition too. I wear running shoes to work, comfy shoe in the house and thinking of use sperrys in the shower. Walking on the floor without some type cushion makes for some really sore feet the next couple days. As we recover, do they feet feel better? I miss being active.
I think in my experience you just get used to the foot pain.
For me the pain limits the amount of time I can be on my feet, if I over do it I suffer for the next couple of days.
In winter I suffer with feet and more particularly my toes feel like I have my feet in pure ice baths. This causes a different type of intense pain and discomfort. Be careful too with injuries to your feet as you may not feel the injury which sounds weird to say when you feel such intense pain that you donāt feel when you have cut your foot open for example.
Also any injuries scratches cuts etc just take a much longer time to heal. Pun not intended.
Anyway I hope that my experiences which may be different to yours might help answer your question.
In my 2 months of hospital stay when the GBS rendered me I a quadriplegic, the hospital put on these compression boots that would message my feet. I donāt suffer from severe foot pain like some of other posters, but only have slight numbness on both feet. I wonder if wearing those compression boots made any difference?
Hi, I have neuropathy in both feet and am out 19 years August 5th! I ask someone to put this lotion on my feet daily and it name is Aquaphilic Ointment. I get it in a 16 Oz jar and it last 3-4 months and itās over the counter.
I hope this helps.
Scott
P.S. if you get a chance read my story @ www.aboutgbs.com. I am known as SURVIVOR48 and Iām Page 2 on left hand side!
Wonderful job! I hope that the sensations get much better! I find it interesting that the strengthening contributes to better feeling of your limb. Do you also do work with textures and training feeling, or do you mainly focus on strengthening yourself and becoming more active?
Crocs. That is all I can wear on most days, as they have a large toe box. I just cannot wear socks most of the time, even during Minnesota winters. Keen Newport sandals also have the toe space.
Iāve used sketchers shoes with the memory foam also. It changes from day to day, even hour by hour what I can wear on my feet.
But my go-to footwear is usually the Crocs, itās a good thing they are so attractive. My daughter (now 21) in her teens was always so proud to be seen with me in public.
Crocs for me donāt work. They have ridges on the inside where your foot rests on NO!! Shoes have to be baby skin smooth or I canāt stand the sensation. Go to shoes now are the New Balance Fresh foam Propel. Awesome cushion. Wide flat sole for great stability