Just wondering if anyone has looked into or knows of anyone with CMT who has gone through IVF to avoid passing on CMT to their children.
My husband and I have been considering it for awhile and would love to chat to others who have been through it or are considering it…
Hi Carmen! Not only do I work at the National CMT Resource Center, but I recently spoke to my doctor about this as well! You will need to talk to your doctor about PGD. It's also very helpful if you know what kind of CMT you have. Email me at ■■■■■■■■■■■■■■■■■■. I am going to pull up some articles I have for you.
Thanks for your reply Laura. We’ve been looking into IVF for the last six months and we’ve had all the tests. We’re actually ready to go ahead with it. It’s just the financial side holding us back. We’re in Australia and it’s very expensive here for IVF on it’s own so once you add in PGD it becomes ridiculous. That’s why we’re struggling to make the decision. Everyone I’ve spoken to it has taken them a minimum of 2 cycles to fall pregnant. We can only just afford one so it’s a lot of money to put in if it won’t be successful.
I’ll email you 
Laura said:
Hi Carmen! Not only do I work at the National CMT Resource Center, but I recently spoke to my doctor about this as well! You will need to talk to your doctor about PGD. It’s also very helpful if you know what kind of CMT you have. Email me at laura@hnf-cure.org. I am going to pull up some articles I have for you.
yea I know exactly what you mean.. will insurance cover any of it? looking forward to your email.. -Laura (laura@hnf-cure.org)
OMG what is IVF? Never heard about it, fill me in. Thanks and Happy New Year!
I have X-Linked CMT, and actually have been thru the IVF process with PGD as others have mentioned. Our son is now 19 months and FREE of CMT!! Our insurance covered some of the cost... We had to pay approx $10,000. We had two eggs inserted, we lost one :(. We are planning to do IVF/PGD again this August. I will be putting two eggs in again. I would recommend doing acupuncture, I really believe it helped.
Oaps sorry guys and gals...IVF Hello!!!!!!!!!! I guess I was thinking it was something to do with CMT that I had never heard of. My apologies !
Carm said:
OMG what is IVF? Never heard about it, fill me in. Thanks and Happy New Year!