CMT Survivors, Friends and Family,
We hope this message finds you well with high spirits and inner joy. We’re happy to inform you that our Charcot Marie Tooth (CMT) community continuously been growing. And as always, we’re here to give strength and support.
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IN THIS ISSUE
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2. Give the Gift of Support Through The Indiegogo Campaign
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Welcome New Members
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No obstacle in life is too great, as long as you have the love and support of caring friends and family members. As always, we are here 24/7 to provide encouragement and support to patients who experience challenges in life. You, your family and friends are more than welcome to be a part of this loving group. Feel free to share your thoughts, and reach out to the other members who are always willing to give you the kind of support you need. Consider this amazing community as your second home, as it is also the home of our 88 members (and still growing!)
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Give the Gift of Support to Patients with Rare Diseases Through The Indiegogo Campaign
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Many projects at Ben’s Friends have turned into reality – thanks to the support from members, volunteers, and donors. Despite the many milestones we have reached, there is still a longer distance we have to go. Many patients with rare diseases still do not have a community to support them. We constantly receive e-mails that request for a support group for a certain rare disease. However, we cannot accommodate all those requests.
Help us make this happen. We want to continue support patients and create more communities that will make everyone with rare diseases feel that they are not alone. Thus, we would like to invite donations from friends, family members, and everyone who believes in our cause.
This month, we’ve begun our annual sponsorship drive at Indiegogo.com.
If you are on Facebook, please ask your friends to share the link with a little note. If you’re not on Facebook, an email also works. Businesses are encouraged to purchase a sponsorship.
Here is the link: http://www.indiegogo.com/Bens-Friends-Builds-Support-Groups-for-Patients-With-Rare-Diseases
We will truly appreciate any donations you can give. We want to sustain the support and friendship we give. With your help, we know we always can.
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Community Stats
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As of today, we have 88 members, 251 total monthly visits to site, 154 unique visitors and 950 monthly page views. Kudos to everyone!
Warmest Regards,
Your Community Moderators