I have had neuro problems for 8 months with no diagnosis in sight. I've had 2 MRI 2 lumbar punctures 2 nerve conduction studies and numerous blood tests. My problems started in Dec 2011 with flu and a chest infection and polyneuropathy. I had IvIg in Jan cos at that time my neurologist suspected Guillian Barre although my walking and strength improved, in March I had a relapse and went quite a long way back. This happened again in May and most recently in July. I noticed my sight was getting worse and a sight test confirmed this in June so I had 2 new pairs of glasses one for reading and one for distance but 6 weeks later it had deteriorated again! Seeing 2 neurologists one NHS the other private neither of whom seem to know what's going on. The NHS neuro suggested CIDP but my most recent nerve conduction study in April came back "normal".
Hpwever when I went to see her in July she told me that I have positive oligoclonal bands. What I'd like to know is have any of you guys had this result from a lumbar puncture? Going to see my private neurologist tomorrow who specialises in MS. I'm feeling very confused with this whole process and it seems that in the USA you get a diagnosis quite quickly or am I wrong?
I know the frustration that you are feeling!! If it's ANY help to you most of us have gone through this lonngggg process until we finally came to that cross road and found our diagnosis. I'm going to tell you some of what I went through so you can see that you're not alone!
In 2007, I was diagnosed with Optic Neuritis in my right eye. Optic Neuritis is damage to the optic nerve and caused almost total blindness (overnight) in my eye. It is also usually the first sign of MS. So off to the Neurologist I was sent for an MRI. Of course, that came back normal so I was also sent to see a Rheumatologist to look for Lupus, Sjogren's syndrome etc. EVERYTHING kept coming back normal so my Neuro sat me down and gave me my prognosis....he said that I had a 40% chance of developing MS in 14 years so I would have MRI's every six months. As time marched on I started to notice things like fatigue, numbness, tingling and generally feeling yucky. They kept doing tests and the tests were all normal .......no answers ! I got to the point that I stopped going to the doctor and decided to deal with it and things would just get better on there own.
Last summer I was painting my living room and my foot went numb...I got scared and called my Neuro. He left his practice so I was referred to another MS specialist. She told me to go to the ER, so I did. She was sure that MS was finally showing itself so they admitted me. They did another MRI (by the way, I've had a total of elleven MRI'S!) it came back (you guessed it) normal !! So they sent me home with a follow up appointment with the new MS Specialist.
I went to that appointment discouraged and not hopeful. She did extensive Neuro exam sat me down and told me there was something wrong and she was going to find it ! Prayers answered ! I went for a spinal tap, EMG, and evoked potentials. Spinal tap showed elevated protein so I was referred to a Neuromuscular specialist who was able to diagnose me with CIDP. (predominate sensory polyneuropathy variant) When she did the spinal tap she was looking for oligoclonal bands but it was negative.......a positive result could have meant MS.
I hope this helps a little !
Ask me any questions you want, I'm here to help you!
The oligiclonal bands are a positive marker for MS. A small percentage of patients with MS have a normal MRI of the brain.
The eye symptoms (often it is pain) also goes along with many MS patients. There is, however, a lot of symptom overlap with CIDP, and some of the same treatments apply to both disorders.
With newer drugs on the market, MS is easier to treat (symptoms) than years ago. As in CIDP, thereis no current cure. A neurologist who specializes in this area will confirm your diagnosis and discuss treatment options.
Thanks for your replies I suppose you just have to learn to be patient with neuro problems! It sounds like you both have been through a lot worse than me but I think that talking with people who are going through similar health problems in the end helps you to tolerate what is going on in your own life maybe? The thing that really made me laugh was when my NHS neuro told me she couldn't understand why I was so down and told me to go to my GP and get some anti-depressants! Doctors eh? What would we do without them
Hi Chrissy, I was first diagnosed GBS in 2003. I turned off the TV one night and went to bed. I woke up the next morning and was paralyzed from the waist down. I was put in ICU, went semi comatose, and had to be ventilated. I was started on IVIG and after 10 rounds of IVIG and six months of physical therapy I was back up walking and driving. I did fine for about a year and a half then in 2005 I had a bad relapse that put me back in a wheelchair. I was rediagnosed CIDP in 2006 and was put back on IVIG. I've been getting it every three weeks now for six years. I still have mini relapses and once in awhile a bad one. Neurological disorders are very unpredictable and can be hard to diagnose. Many neurological disorders can have the same type of symptoms which can make it hard for a neurologist to get a firm diagnoses. My lumbar puncture was normal but my EMG/Nerve conduction tests were all Abnormal.
My bride of four months lost the use of her legs a year ago. She's been to 4 different neuro's and they can't figure out whats happening to her. The MRI's and the EMG/Nerve conduction tests all come back normal. She hasn't had a lumbar puncture yet, none of the neuro's thought it would do any good. All the doctor's are scratching their heads.
Hope this helps Chrissy, if you go to my profile and look for the post called "IG Living magazine" I sugest you read it. Good luck and keep us posted.
chrissyw said:Thanks for the info re IG living magazine, it's great!
mdolich said:
Hi Chrissy, I was first diagnosed GBS in 2003. I turned off the TV one night and went to bed. I woke up the next morning and was paralyzed from the waist down. I was put in ICU, went semi comatose, and had to be ventilated. I was started on IVIG and after 10 rounds of IVIG and six months of physical therapy I was back up walking and driving. I did fine for about a year and a half then in 2005 I had a bad relapse that put me back in a wheelchair. I was rediagnosed CIDP in 2006 and was put back on IVIG. I've been getting it every three weeks now for six years. I still have mini relapses and once in awhile a bad one. Neurological disorders are very unpredictable and can be hard to diagnose. Many neurological disorders can have the same type of symptoms which can make it hard for a neurologist to get a firm diagnoses. My lumbar puncture was normal but my EMG/Nerve conduction tests were all Abnormal.
My bride of four months lost the use of her legs a year ago. She's been to 4 different neuro's and they can't figure out whats happening to her. The MRI's and the EMG/Nerve conduction tests all come back normal. She hasn't had a lumbar puncture yet, none of the neuro's thought it would do any good. All the doctor's are scratching their heads.
Hope this helps Chrissy, if you go to my profile and look for the post called "IG Living magazine" I sugest you read it. Good luck and keep us posted.
chrissyw said:I have read that these bands can be a pointer to MS and coincidentally my mothers sister had MS so perhaps that is what is going on. I'll get back to you after I see the neuro tomorrow oh and I should have said I'm having another MRI of my spine, nerve conduction study and somatosensory evoked potential tests as a day case patient but still waiting for a date.
chrissyw said:Thanks for the info re IG living magazine, it's great!
mdolich said:
Hi Chrissy, I was first diagnosed GBS in 2003. I turned off the TV one night and went to bed. I woke up the next morning and was paralyzed from the waist down. I was put in ICU, went semi comatose, and had to be ventilated. I was started on IVIG and after 10 rounds of IVIG and six months of physical therapy I was back up walking and driving. I did fine for about a year and a half then in 2005 I had a bad relapse that put me back in a wheelchair. I was rediagnosed CIDP in 2006 and was put back on IVIG. I've been getting it every three weeks now for six years. I still have mini relapses and once in awhile a bad one. Neurological disorders are very unpredictable and can be hard to diagnose. Many neurological disorders can have the same type of symptoms which can make it hard for a neurologist to get a firm diagnoses. My lumbar puncture was normal but my EMG/Nerve conduction tests were all Abnormal.
My bride of four months lost the use of her legs a year ago. She's been to 4 different neuro's and they can't figure out whats happening to her. The MRI's and the EMG/Nerve conduction tests all come back normal. She hasn't had a lumbar puncture yet, none of the neuro's thought it would do any good. All the doctor's are scratching their heads.
Hope this helps Chrissy, if you go to my profile and look for the post called "IG Living magazine" I sugest you read it. Good luck and keep us posted.
I cannot stress enough that neurologists only treat the symptoms and not the cause. See if you can identify any event that triggered your immune system to react. You really need to re-examine what happened when you got flu and the chest infection, instead of wasting your time with neurologists.
Go to a bronchial/pulmonary specialist and get a full scan and find out if there is anything sinister there.
Hi Chrissy I have CIDP and was diagnosed about 6 months ago. I Was under a neuro at my local hospital for nearly 2 years who sent me for test after test but didn't really know what was wrong with me. My lumber puncture result was elevated csf protein and oligoclonal bands that matched the bands in my blood. They should have taken a blood test at the same time as the LP. If the O bands don't mirror the bands in your blood then this can point towards MS. I had a positive ANA blood test and I also have a Igm Paraprotein. My nerve conduction studies did not point towards demyelination so I was then sent for a sural nerve biopsy which also showed no demyelination but axonal degeneration and regeneration. I was told this wasn't CIDP but you never know in a years time i might get better as my axons are regenerating. By this time i could hardly walk or stand, turn in bed, wash myself or hold a cup with one hand.
I managed to get myself under a new consultant at a top neurological Hospital in London and my second nerve conduction test pointed more towards demyelination and was also told he wouldn't have sent me for a nerve biopsy because it doesn't always show up as the inflammation starts from the roots of the spine so it would have along way to travel to the ankle. He said he thought it was CIDP and started me on IVIG. I go in on Monday for my 4th treatment which does seem to help but I still have problems walking and with balance and can't stand for too long but I am much better than what I was although I still get good days and bad days.
I think the biggest problem is finding a top specialist because although there are a lot of neurologists around most are just for general neurology.
Good luck and and I hope you get some answers soon.
Yes I had a flu/swine flu combined vaccine 15th Oct 2011 was ill for a couple of days beginning Nov then Dec this. If I get back to work I have made my mind up I'm never having a vaccine again. I think it's too much of a coincidence that I had the jab and a few weeks later became so ill. I have been tested for Lyme disease but it came back negative, to be honest everything has come back negative apart from the oligoclonal bands! So I'll see what the MS neuro says this afternoon. I'll keep you posted and I hope they get to the bottom of your problem soon!
Jewels said:
Hi Chrissy, I'm in the same boat as you. I've had neuro problems for 3 months no answers. I'll mention two things. One is I asked for a two hour glucose tollarence test Fasting blood was normal but 1 hour was 146. And 2 hour was150. Normal is under 140. I doubt my number of symptoms are from this but who knows. I have to wait and an endocrinologist. Also I'm wondering if I could have late Lyme desease. My tests are negative but there's a lot of controversy about Lyme tests and long term treatment. Doctors who treat are being prosecuted for going against the guidelines of treatment. even though tons of people are helped by their treatment. There also aot of controversy about many deseases of unknown origin stemming from Lyme. I wonder if anyone here had tested for Lyme? My tests show I have 4 bands of Lyme but you need 5 to be positive. Also I had two vaccines prior to the onset of my symptoms. I'm thinking meurcy or somthing else in the vaccine. I'm at a loss. Just wanted to throw that out there. Did you have a vaccine or flu shot prior. This may have triggered it.
I'd be interested to know which hospital in London you're attending. I'm seeing a neurologist at Charing Cross which is supposed to be one of the best! How did you get another consultant? Did you tell your GP you wanted a second opinion?
I too have problems walking. I start off walking slowly and I just get slower and slower plus I feel exhausted most of the time. I'm looking forward to seeing the MS neuro this afternoon fingers crossed he will shed some light on what is going on. Hope the treatment continues to make a difference to you.
sue said:
Hi Chrissy I have CIDP and was diagnosed about 6 months ago. I Was under a neuro at my local hospital for nearly 2 years who sent me for test after test but didn't really know what was wrong with me. My lumber puncture result was elevated csf protein and oligoclonal bands that matched the bands in my blood. They should have taken a blood test at the same time as the LP. If the O bands don't mirror the bands in your blood then this can point towards MS. I had a positive ANA blood test and I also have a Igm Paraprotein. My nerve conduction studies did not point towards demyelination so I was then sent for a sural nerve biopsy which also showed no demyelination but axonal degeneration and regeneration. I was told this wasn't CIDP but you never know in a years time i might get better as my axons are regenerating. By this time i could hardly walk or stand, turn in bed, wash myself or hold a cup with one hand.
I managed to get myself under a new consultant at a top neurological Hospital in London and my second nerve conduction test pointed more towards demyelination and was also told he wouldn't have sent me for a nerve biopsy because it doesn't always show up as the inflammation starts from the roots of the spine so it would have along way to travel to the ankle. He said he thought it was CIDP and started me on IVIG. I go in on Monday for my 4th treatment which does seem to help but I still have problems walking and with balance and can't stand for too long but I am much better than what I was although I still get good days and bad days.
I think the biggest problem is finding a top specialist because although there are a lot of neurologists around most are just for general neurology.
Good luck and and I hope you get some answers soon.
I went to a number of Neurologists in London and basically they have no idea what they are doing.
CIDP is an effect not a primary illness, and you should focus on identifying the cause of your illness.
I was lucky in that I ignored all their advice and by using common sense identified the source as an ingrowing toe nail, which I had removed and I immediately started recovering. Of course my neurologist had his nose put out of joint and said it was a coincidence.
But that is the stupidity that you are up against.
So keep up the original work in trying to identify the cause.
I will send you my whole story if it will help you.
I'm under (The National Hospital for Neurology and Neurosurgery ) Queen Square Bloomsbury. My first neuro from my local hospital also worked at The National and kept saying he would ask a colleague there to see me but he never sent me. In the end I asked him to send me because I wasn't happy with his diagnosis. I also had checked out the new consultants credentials, his research interests are inflammatory neuropathies, trained in many London hospitals including Charring Cross . He also had worked at the Johns Hopkins Hospital USA, on the committee of The International Inflammatory Neuropathy Consortium and the editorial board of The Cochrane Neuromuscular Disease Group. Got an appointment with him after many phone calls and at the consultation he said he would be happy to take me as his patient if my other neuro agreed. It seemed he didn't want to pass me on. It took many phone calls and a lot of patients and bluntness to get what I wanted. My GP had also agreed to help if need be. I feel I'm very lucky and relieved to be under such a good Doctor and hospital, so don't let anyone fob you off if your not happy keep pushing until you get what you want.
Do let me know how you got on this afternoon with the MS Neuro.
chrissyw said:
Hi Sue,
I'd be interested to know which hospital in London you're attending. I'm seeing a neurologist at Charing Cross which is supposed to be one of the best! How did you get another consultant? Did you tell your GP you wanted a second opinion?
I too have problems walking. I start off walking slowly and I just get slower and slower plus I feel exhausted most of the time. I'm looking forward to seeing the MS neuro this afternoon fingers crossed he will shed some light on what is going on. Hope the treatment continues to make a difference to you.
sue said:
Hi Chrissy I have CIDP and was diagnosed about 6 months ago. I Was under a neuro at my local hospital for nearly 2 years who sent me for test after test but didn't really know what was wrong with me. My lumber puncture result was elevated csf protein and oligoclonal bands that matched the bands in my blood. They should have taken a blood test at the same time as the LP. If the O bands don't mirror the bands in your blood then this can point towards MS. I had a positive ANA blood test and I also have a Igm Paraprotein. My nerve conduction studies did not point towards demyelination so I was then sent for a sural nerve biopsy which also showed no demyelination but axonal degeneration and regeneration. I was told this wasn't CIDP but you never know in a years time i might get better as my axons are regenerating. By this time i could hardly walk or stand, turn in bed, wash myself or hold a cup with one hand.
I managed to get myself under a new consultant at a top neurological Hospital in London and my second nerve conduction test pointed more towards demyelination and was also told he wouldn't have sent me for a nerve biopsy because it doesn't always show up as the inflammation starts from the roots of the spine so it would have along way to travel to the ankle. He said he thought it was CIDP and started me on IVIG. I go in on Monday for my 4th treatment which does seem to help but I still have problems walking and with balance and can't stand for too long but I am much better than what I was although I still get good days and bad days.
I think the biggest problem is finding a top specialist because although there are a lot of neurologists around most are just for general neurology.
Good luck and and I hope you get some answers soon.
So are you saying that all of our blood tests, lumber puncture, nerve conduction studies, Mri's, nerve biopsy results could be caused by something as trivial as an ingrowing toenail ?
Gubgub said:
Hi Chrissy
I went to a number of Neurologists in London and basically they have no idea what they are doing.
CIDP is an effect not a primary illness, and you should focus on identifying the cause of your illness.
I was lucky in that I ignored all their advice and by using common sense identified the source as an ingrowing toe nail, which I had removed and I immediately started recovering. Of course my neurologist had his nose put out of joint and said it was a coincidence.
But that is the stupidity that you are up against.
So keep up the original work in trying to identify the cause.
I will send you my whole story if it will help you.
My son has CIDP and we live in England. He was thought to have GB at first. His nerve conduction tests showed poltneuropathy and his lumber puncture showed raised protein levels. He has frequent relapses which affect the strength in his shoulders and arms so that he is unable to lift them. he has IVIG every 3 weeks for four days which resolve the symptons until he relapses again just before his next treatment. He is seen at Addenbrooks in Cambridge at the peripheral nerve clinic. They also have a specialist MS clinic there. I am happy to speak to you further by email or phone if you would like. My email address is ■■■■■■■■■■■■■■■■■■■■■■■■■■ Good luck with your appointment tomorrow. Brenda
I'm under (The National Hospital for Neurology and Neurosurgery ) Queen Square Bloomsbury. My first neuro from my local hospital also worked at The National and kept saying he would ask a colleague there to see me but he never sent me. In the end I asked him to send me because I wasn't happy with his diagnosis. I also had checked out the new consultants credentials, his research interests are inflammatory neuropathies, trained in many London hospitals including Charring Cross . He also had worked at the Johns Hopkins Hospital USA, on the committee of The International Inflammatory Neuropathy Consortium and the editorial board of The Cochrane Neuromuscular Disease Group. Got an appointment with him after many phone calls and at the consultation he said he would be happy to take me as his patient if my other neuro agreed. It seemed he didn't want to pass me on. It took many phone calls and a lot of patients and bluntness to get what I wanted. My GP had also agreed to help if need be. I feel I'm very lucky and relieved to be under such a good Doctor and hospital, so don't let anyone fob you off if your not happy keep pushing until you get what you want.
Do let me know how you got on this afternoon with the MS Neuro.
chrissyw said:
Hi Sue,
I'd be interested to know which hospital in London you're attending. I'm seeing a neurologist at Charing Cross which is supposed to be one of the best! How did you get another consultant? Did you tell your GP you wanted a second opinion?
I too have problems walking. I start off walking slowly and I just get slower and slower plus I feel exhausted most of the time. I'm looking forward to seeing the MS neuro this afternoon fingers crossed he will shed some light on what is going on. Hope the treatment continues to make a difference to you.
sue said:
Hi Chrissy I have CIDP and was diagnosed about 6 months ago. I Was under a neuro at my local hospital for nearly 2 years who sent me for test after test but didn't really know what was wrong with me. My lumber puncture result was elevated csf protein and oligoclonal bands that matched the bands in my blood. They should have taken a blood test at the same time as the LP. If the O bands don't mirror the bands in your blood then this can point towards MS. I had a positive ANA blood test and I also have a Igm Paraprotein. My nerve conduction studies did not point towards demyelination so I was then sent for a sural nerve biopsy which also showed no demyelination but axonal degeneration and regeneration. I was told this wasn't CIDP but you never know in a years time i might get better as my axons are regenerating. By this time i could hardly walk or stand, turn in bed, wash myself or hold a cup with one hand.
I managed to get myself under a new consultant at a top neurological Hospital in London and my second nerve conduction test pointed more towards demyelination and was also told he wouldn't have sent me for a nerve biopsy because it doesn't always show up as the inflammation starts from the roots of the spine so it would have along way to travel to the ankle. He said he thought it was CIDP and started me on IVIG. I go in on Monday for my 4th treatment which does seem to help but I still have problems walking and with balance and can't stand for too long but I am much better than what I was although I still get good days and bad days.
I think the biggest problem is finding a top specialist because although there are a lot of neurologists around most are just for general neurology.
Good luck and and I hope you get some answers soon.
Gubgub said: You have to understand that CIDP is the body's reaction to an event that has occurred in your body. CIDP is not a disease. In my case it was an ingrowing toe-nail and my failure to react to the condition, as I did not believe it was a problem and I listened to the Neurologists.
Think back and see if you can identify anything specific that happened immediately prior to the onset of CIDP. You can see that in a number of cases people have had innoculations that have caused the onset of CIDP. What happened to you! and then try to eliminate the cause .
sue said:
Hi Chrissy,
I'm under (The National Hospital for Neurology and Neurosurgery ) Queen Square Bloomsbury. My first neuro from my local hospital also worked at The National and kept saying he would ask a colleague there to see me but he never sent me. In the end I asked him to send me because I wasn't happy with his diagnosis. I also had checked out the new consultants credentials, his research interests are inflammatory neuropathies, trained in many London hospitals including Charring Cross . He also had worked at the Johns Hopkins Hospital USA, on the committee of The International Inflammatory Neuropathy Consortium and the editorial board of The Cochrane Neuromuscular Disease Group. Got an appointment with him after many phone calls and at the consultation he said he would be happy to take me as his patient if my other neuro agreed. It seemed he didn't want to pass me on. It took many phone calls and a lot of patients and bluntness to get what I wanted. My GP had also agreed to help if need be. I feel I'm very lucky and relieved to be under such a good Doctor and hospital, so don't let anyone fob you off if your not happy keep pushing until you get what you want.
Do let me know how you got on this afternoon with the MS Neuro.
chrissyw said:
Hi Sue,
I'd be interested to know which hospital in London you're attending. I'm seeing a neurologist at Charing Cross which is supposed to be one of the best! How did you get another consultant? Did you tell your GP you wanted a second opinion?
I too have problems walking. I start off walking slowly and I just get slower and slower plus I feel exhausted most of the time. I'm looking forward to seeing the MS neuro this afternoon fingers crossed he will shed some light on what is going on. Hope the treatment continues to make a difference to you.
sue said:
Hi Chrissy I have CIDP and was diagnosed about 6 months ago. I Was under a neuro at my local hospital for nearly 2 years who sent me for test after test but didn't really know what was wrong with me. My lumber puncture result was elevated csf protein and oligoclonal bands that matched the bands in my blood. They should have taken a blood test at the same time as the LP. If the O bands don't mirror the bands in your blood then this can point towards MS. I had a positive ANA blood test and I also have a Igm Paraprotein. My nerve conduction studies did not point towards demyelination so I was then sent for a sural nerve biopsy which also showed no demyelination but axonal degeneration and regeneration. I was told this wasn't CIDP but you never know in a years time i might get better as my axons are regenerating. By this time i could hardly walk or stand, turn in bed, wash myself or hold a cup with one hand.
I managed to get myself under a new consultant at a top neurological Hospital in London and my second nerve conduction test pointed more towards demyelination and was also told he wouldn't have sent me for a nerve biopsy because it doesn't always show up as the inflammation starts from the roots of the spine so it would have along way to travel to the ankle. He said he thought it was CIDP and started me on IVIG. I go in on Monday for my 4th treatment which does seem to help but I still have problems walking and with balance and can't stand for too long but I am much better than what I was although I still get good days and bad days.
I think the biggest problem is finding a top specialist because although there are a lot of neurologists around most are just for general neurology.
Good luck and and I hope you get some answers soon.
Well it seems you have been brain washed by the Neurologists. In your reply you recognise that there is a primary cause for the onset of CIDP, which is usually described as idiopathic by Neurologists. Neurologists do not look for the cause of the condition, and the treatments are only designed to alleviate the condition. In every case, you have to try and identify the primary cause.
I wasted 5 years of my life being poisoned by chemical treatment for CIDP, whilst the idiotic Neurologists amused themselves doing tests.
I was just about to go into a wheel chair, when by accident, I identified that the cause of my CIDP was an ingrowing toenail.
If cannot be inquisitive about medical science, you should ask your doctor to bleed you, or apply leeches.
mdolich said:
Gubgub, what planet are you from? Pluto? oh thats right it is no longer a planet. The NINDS- National Institute of Neurological Disorders and Stroke, NIH - National Institute of Health, NORD - National Organization for Rare Disorders, The Office of Rare Diseases research, The Mayo Clinic, John Hopkins Medicine, Just to name a few, ALL consider it a Disorder/Disease!!!
A ingrowen toenail, come on now get serious. CIDP is where the imune system goes awry and starts to attack the nerves, eating the myelin sheathing then attacking the axon nerve itself. Yes it is on account of a prior infection or virus. Mine was due to pneumonia. A lot of cases are due to Flu vaccinations, but some are due to food poisoning or a virus like the common cold or the flu. As far as infections from cut's, scratches, etc... it is very unlikely!!! I'm not sying it can't happen, just can't see it myself and have never read or heard of a case where it has been the cause. I've been dealing with this for years now and have read and studied it quite extensively.
Suit yourself, but if CIDP is a disease, how is it spread? Defective gene etc.
We all agree that it is the body's reaction to an event., which then causes the body to attack the nervous system. Have you identified the event that triggered your condition?
If the event remains extant in the body, then the CIDP will continue. But if that event is identified and eliminated, you have a chance of recovery.
Let me give you another example of how introvert medicine is. If you go to a surgeon for a back problem, how likely is it that he will recommend a chiropracter.
I managed to identify the cause of my CIDP, and I can help others by telling my story, but you just want to sit there and feel sorry for yourself.