Hello everyone. My name is Robert and I am new to this support group. Let me qualify myself first and say that I have not been told that I have G.B.S. by the military but I know I have this syndrome since I was given the swine flu shot in 1976 when I was in the service. It was not until I had my last episode in the early part of 2014 that I did research then to find out what was wrong with me. We have google now and I google '1976 swine flu shot' that I came across the 'scientific report mandated by congress' to find out why people were dying from this vaccine or started to have seizures or got G.B.S. After reading the report I thought to myself that I could have written it. One of the things that jumped out at me was the world 'episodes.' Every Time I have an episode I have weight loss of thirty to forty pounds.
My 'tingling' did not start at my feet or hands but on the right side of my chest right below the rib-cage and off center of my chest. A few months the little tingling on my chest spread across both sides of my chest, down my arms and down my legs. Within a few seconds I knew right then and there I was going to die. I had several Near Death Experiences N.D.E's by the time I was taken to main army hospital in Nurnberg German. This was in 1976. Since then I do have all the classic symptoms of G.B.S. that include the gastrointestinal symptoms along with breathing problems when I try to sleep on my back etc. I now have a private Dr. and now my primary Dr. at the V.A. seems to be more open on giving me tests that I have been asking for for years like a spinal tap to check the protein level on my lower back etc. Any comments or suggestions are welcome.