First timer here looking for some support.
Started two years ago where I had trouble typing with my right hand. My left bicep began to lose strength and muscle.
Went for an MRI and they said it was a disc issue. Cleared by an orthopedist, and he referred me to a neurologist.
EMG, nerve conduction study were inconclusive. Had some conduction block in my right arm but minor. Only nerve issues in my neck and arms. Back and legs were clear.
Dr. suspected CIDP and I had the spinal tap and bloodwork which were negative. Suspected multifocal motor neuropathy because of lack of pain. However, November last year began to have serious pain in my neck and arms and tingling.
Loss of strength in my arms and hands. Loss of muscle primarily in my biceps/forearm. Twitching, mainly in upper body. Pain shooting down both arms. Bad tingling in hands and intermittent tingling feet.
I am lucky in that I can still take care of myself and my kids. I can get dressed and drive etc. Obviously, certain things are hard for me, but I make do.
Took four rounds of IVIG, between six – eight weeks apart. Helped with tingling and pain and a little with strength. However, my neurologist didn't think it was benefiting me and switched to prednisone. On 40 mg a day for the past for two weeks.
I am going to Emory ALS Center send, where I hope they can finally rule that out. (My nuero has had that "on the table" the whole time, which is made this experience absolutely miserable.) Put it this way, I know how I feel, and I don't think it is ALS.
Looking for any similarities to what I have for support. Thanks in advance for the help