Gbs adverse event of covid vaccine

I was diagnosed with GBS twice. The first one was 9 years ago and the second one was just a month ago. It happened 5 days after my 2nd shot of the covid vaccine. The same symptoms I felt were the numbness of the tip of the fingers both hands and feet. The numbness gradually ascending and so I rushed to the hospital when I had been confined 9 years ago. The same neuro took care of me and so we started the treatment the following day - plasmapheresis. After the 3rd session or a week I was able to stand and walk my hands are too weak though but a sign of relief because the treatment shows a good response.

Now, I have almost completely recovered.

Can anybody help me with any suggestions? Since this is an adverse event of the vaccine does somehow the health Department of an LGU will be responsible or can I demand assistance from them? Before vaccination, I shared with them my medical Records but they did not say anything at all.

The ordeal that I encountered is not that easy. It affects me emotionally, physically, and financially. Good thing the company took charge of the expenses so I can be discharged to the hospital but this is something that I have to settle when I have to go back to work.

Hi Jess! I’m so glad to hear that rapid treatment has led to rapid recovery. I might start this discussion with your doctor, in terms of whether this would be considered an adverse event. My personal limited understanding is that a history of GBS is a risk factor for it to happen again, is this correct?

I’m glad that you’ve joined us here, to look for support.

Sharon from ModSupport

Hi Sharon, Thank you for taking the time to respond my post. According to my doctor, it’s rare that GBS will recur. In my case, symptoms showed 5 days after the vaccination was made. Also, the vaccine inoculated is a viral Victor which is not compatible to a person with Inflammatory Polyneuropathy history.

Hi Jess,
My neurologist has advised against my getting the vaccine because of a series of relapses with CIDP. I began with GBS, but things went down hill from there and I was rediagnosed in 2013. Your sharing your experience is very helpful for me. I do not get any vaccines including the flu vaccine.


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Hallo i am glad you are ok,i am interested wich vaccine did you received i am so concerned about this, they said to me only Pfizer but i am not sure somehow

Hello Jess. I’ve had CIDP since 2014 and was interested in your post. I had my second Pfizer jab a couple of days ago and note that it was five days after your second injection that symptoms appeared. Which COVID shot did you receive?

I have had CIDP since 2017. Took two moderna shots. 2nd shot was 4/28/21. The first shot messed with my intestinal system and although I still deal with intestinal issues no CIDP relapse.
Don’t think I’ll get the booster though.

I took a flu vaccine in 2014 and started having trouble within weeks. Finally went in because I could barely walk. Was diagnosed with CIDP. No more vaccines for me thanks.

I received the Covid vaccine 10 days ago and had a reaction the next morning. My neck up through the bottom of my face across my jaw to my ears was numb and my throat felt swollen inside with my airway restricted. I took Benadryl which started helping with that reaction. I started feeling mild numbness in my right leg and then my left arm, then torso. I had to take Benadryl every 4 hours and increase the dose because the reaction kept getting stronger. They finally called in Prednisone which gives me horrible side effects. It helped the restricted breathing feeling but I started having numbness when I swallowed. That went away but now I’m having more numbness in my legs, arms, and torso. I am getting more and more weakness. I got in with a Neurologist tomorrow. Seven years ago, I had what was believed to be a mild case of GBS following a TDAP vaccine but was never diagnosed. I recovered without treatment eventually. I received lots of PT and got better in 3-6 months. I recovered even more over the next 2-5 years. I’m so scared about this reaction. How bad can a second reaction be? I’m terrified about ending up on a ventilator. Should I expect a similar path? It has definitely been different this time but harsher at times in different ways. I am not familiar with relapses and looking for information.

I don’t get on here as often as I should. I’m almost 40 years removed from my GBS bout. It was not shot related. But, I have only had the shingles vaccine and never a flu shot. I was very hesitant to get a covid shot. My family doctor wanted me to but understood my reluctance. I’m not anti-vaccine but am very much against mandating it. Forcing someone to inject an experimental substance into them is just wrong. Let us make our own informed choice.
After numerous hospital admitting’s and deaths of people I know, I figured I would end up in the hospital on machines for a long time given my underlying conditions, one being lingering GBS issues. I did not want to burden my family with such things. So I did get the Moderna 2 shot. I decided to take the risk of GBS over sever covid. My choice after weighing information. I would never say flat out, “Get the shot”. Not so sure about the booster. Really not sure if they say that you have to keep receiving a shot yearly. The “science” and goals keep moving.
I hope everyone is having a Merry Christmas. Without Christ, I doubt I would have gotten thru GBS as well 40 years ago.