It seems as though hammertoes is one of the common challenges of this disease. If so, did you have this surgically corrected, and was it worth it?
Also, can you include at what age you did and what your recovery was like? My 14 year old has hammertoes and has asked about the surgery. I am hesitant due to his age and the fact that we are only 1 year into a CMT1A diagnosis. Thanks!
one of my older sisters had hers done with pins in the early 70's and they curled back again over time
I had my big toe fixed cause it was crossed over and affected my balance more. Dr. shortened bone put a pin and was so happy. First time in years I could show my toes with sandals. Guess what my body rejected the pin and it started moving out of my foot so it had to be taken out. In a very short time the toe crossed over again. Oh well still wearing sandals. Closed in shoes hurt.
I have hammertoes but not very bad. But i have hammerthubs! That's a problem. It's because my middle joints in thumb fingers are over extensives, it results with hammer thumbs. First thum joint stucks very badly.
I had all mine done at 16/17 years of age done in three years, big toes were pinned and now straight no bend. And many more surgeries since, I am not sure I would repeat them if I had a chance to do over again, was told braces before surgery???? Told by many docs they look good but to me it wasn't for looks and now at 58 I think the scare tissue causes more pain on top of CMT1A.
What a shame to go through all of this and it reverses or rejects! You are the bravest people I know!