Hydroxychloroquine and IVIG in Treating CIDP

General New Articles and Research - CIDP
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I came across this article from the NIH; https://pubmed.ncbi.nlm.nih.gov/29194677/

I shared this article with my neurologist and decided to allow me to try this therapy. I wish there were a way to quantify the results with tests/measurements but I can report reduced fatigue and improved endurance. I looking forward to my next infusion for more results.

2 Likes
2

Sounds positive Zeke
Please keep us updated

3

Very interesting. Keep us updated.

4

How often do use infuse and do you normally use Gamunex?

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This a follow-up to my post from one year ago. Sorry for the delay but it was unavoidable.

  1. The Hydroxychloroquine provided needed extension of the benefit of the IVIG therapy. My results enabled my Neurologist to prescribe this therapy to his other CIDP patients.
  2. This November marks my tenth year of treatment for CIDP. We tried several modalities of (steroids, etc.) but settled on IVIG was started after approval from Medicare (3 months)
  3. I currently receive 65 grams of IVIG (Gama Gard) every two weeks via my port. Relief is immediate however the duration of this relief seems to be lessening even with the hydroxychloroquine.
  4. My experience with symptoms is fatigue and numbness, which affects my ability to balance. Iā€™m not experiencing pain.
  5. My Orthopedic suggested that in order to remain active that I checkout using Trekking Poles (2). These poles give me a sense of stability and the energy I expended in maintaining balance is now allowing me to extend my walking from 1/4 mile to 3/4 mile.

I hope that this gives some solace to others going through this malady.