Dear CMT Support Family and Friends,
March 2014 is an exciting month for Ben’s Friends, as everything seems to fall into place! But before we share the good news, we invite you to participate in a brief survey on the positive impact that getting support in a community does to one’s health and outlook. The resulting data will be used in our non-profit grant applications.
Click here to take survey now.
--------------------------------------------------------------------------------------------------
IN THIS ISSUE
--------------------------------------------------------------------------------------------------
CMT COMMUNITY HIGHLIGHTS
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
Ben’s Friends Launches Online Doctors Database
Ben’s Friends Announces Partnership with Doctors 2.0
Various Ben’s Friends Communities Celebrate Awareness Month
--------------------------------------------------------------------------------------------------
Welcome New Members
--------------------------------------------------------------------------------------------------
You have come to the right place.
Now, start connecting with your new family, add useful information to our site and familiarize yourself with the community features. Here are quick helpful tips:
1. Tell us more about yourself. Share your story on the Blog area or post a picture or video through the Media tab.
2. Explore more of the site. Use the quick Search tab for your queries and participate in the Discussions forum.
3. Stay in touch with your friends through mobile. Here's how : Just type the site URL on your browser, add /m at the end, press Enter and you are ready to go.
CMT COMMUNITY HIGHLIGHTS
--------------------------------------------------------------------------------------------------
Featured Content: Need to educate someone about CMT? Share this NY Times article
--------------------------------------------------------------------------------------------------
New York Times article featured on how you can educate someone on CMT. Check out this post by our very own dancermom.
--------------------------------------------------------------------------------------------------
Featured Member: MrW
--------------------------------------------------------------------------------------------------
MrW is a new member in the CMT Community, his story is inspiring and is still going to continue. Drop by MrW's profile and say a warm hello!
--------------------------------------------------------------------------------------------------
Picture of the Month
--------------------------------------------------------------------------------------------------
Sometimes we need to remind ourselves! Barbara H shared pic is our picture of the month.
------------------------------------------------------------------
--------------------------------------------------------------------------------------------------
Community Stat:
--------------------------------------------------------------------------------------------------
Number of Members as of March 1, 2014 : 263
BEN'S FRIENDS HIGHLIGHTS OF THE MONTH
--------------------------------------------------------------------------------------------------
Ben’s Friends Launches Online Doctors Database
--------------------------------------------------------------------------------------------------
Our online directory of over 2000 doctors knowledgeable with rare diseases is now available. This list will also be a feature of our Ben’s Friends iPhone app soon!
--------------------------------------------------------------------------------------------------
Ben’s Friends Announces Partnership with Doctors 2.0
--------------------------------------------------------------------------------------------------
Celebrate Rare Disease Day with us on February 28 by sharing our Ben’s Friends Flyer with your friends, giving out our e-book as a gift to someone affected by rare disease, and more!
--------------------------------------------------------------------------------------------------
Various Ben’s Friends Communities Celebrate Awareness Month
--------------------------------------------------------------------------------------------------
Join our Lyme Disease Support, Living with Narcolepsy, Traumatic Brain Injury Support and Nephrotic Syndrome Support as they celebrate Awareness Month for their specific conditions!