I have read in a few places that in addition to IVIG or Plasma pheresis and physical therapy, massage was one of the things helpful in treatment for CIDP. The following sentence is from one of the sites.
"What also proved to be extremely helpful in the treatment of the people who suffers from this disease is the combination of physical therapy and massage."
Is anyone getting massage as part of their program for dealing with CIDP? Does it help? Any information will be appreciated. Thank you.
My Mom was just diagnosed. It was a long process and from what I understand, that is very common. I haven't heard about massage being used but it makes sense. Also, have you, or anyone else, had the Plasma pheresis and has it helped?
I tried IVIG and it did not work for me so I have to do Plasmaphresis. That is working for me. B
Jean’sDaughter said:
My Mom was just diagnosed. It was a long process and from what I understand, that is very common. I haven’t heard about massage being used but it makes sense. Also, have you, or anyone else, had the Plasma pheresis and has it helped?
B,
I was getting message once a week for a while till I found a treatment that worked okay. It helped me for at least 3 days after the massage I moved and felt a lot better.
I was getting massage therapy once a week for a month and i felt MUCH better for about three or four days after. I had to discontinue the treatments when medicare denied the payment of benefits. When i called and explained that my neurologist had prescribed it as "medically necessary" for my CIPD there explanation was unbelievable. They will cover massage therapy when it is billed by an "occupational" or "physical" therapist. I explained that neither of those are trained or licensed as a massage therapist! They said thats too bad because that's the only way it can be covered! Good old U.S. government!!!