I am not paralyzed and know I am very lucky. I never knew there is mild GBS. Yet, it is very hard to get activities of daily living done due to extreme fatigue and feeling very “shaky” in my muscles. It is difficult to go out as I get so exhausted. Has anyone else had a similar diagnosis and how are you doing? Thank you for welcoming me and prayers and good wishes to everyone.
Hi Rosemarie, my daughter had mild GBS two years ago, but now she is diagnosed CIDP,its chronic GBS. I know few people with mild GBS, I think it s often mild by young people. Lots of FT and I m starting with diet that I found on internet (lots of fruit and vegetables) Don’t be afraid, be positive. I m praying for all to be strong.
Hi Rosemarie, my daughter had mild GBS two years ago, but now she is diagnosed CIDP,its chronic GBS. I know few people with mild GBS, I think it s often mild by young people. Lots of FT and I m starting with diet that I found on internet (lots of fruit and vegetables) Don't be afraid, be positive. I m praying for all to be strong.
Rosemarie kaupp said:
I have also had GBS, I was paralyzed for a while and had excruciating back pain. I opted for the IVIG treatment because I knew it would counteract the immune system problem quicker and it worked fine. I was hospitalized for 16 days but felt my rehab was the turning point to my recovery, it was intense and exhausting. They pushed me so hard some days I sweat now just thinking of it. I can remember trying to get off the floor and into a chair. It took me forever the first time and they finally had to pick me up and put me in the chair. The next time, I half way made it in and by the third time (3 different days) I made it in by myself, what an accomplishment, I was elated. Fatigue is just a part of it all, however, don't become depressed because that just complicates everything and expounds the problems. Rest whenever you can and do most of your chores in the morning when energy level is best, eat well. Get some B12 and D3, it helped me. Good luck to you. Keep posting on your progress.
Thank you so much for replying. I hope you are improving everyday. I think I have turned a corner here and am beginning to show signs of improvement--- less fatigue and tingling and aching. I felt really bad or a while. I don't remember feeling that tired on chemo. My situation as far as symptoms is a little complicated as I have a cervical fusion and a couple if degenerated discs in my neck. I think this is giving me very bad headaches and I am going to get an MRI of my neck. I started large doses of D3 and I will try to add some B12. Thanks for the suggestion.
I admire everyone's courage and determination in battling GBS and the loving care of friends and family. God bless you all and bring you to speedy and full recoveries.