Mom is diagnosed with a very rare disease

General General GBS Discussion
1

  1. My mom is diagnosed with GBS on May 2, 2013 (around 9 pm, after having the EMG) and started the IVIg treatment on May 3 (around 2 am). It was hard looking for a large amount of money in the middle of the night to be able to purchase the first dose. Now, mom is having her fourth dose of IVIg :)

  2. What shall I do to support mom for her to recover fast? :)
2

Those are great questions. I'm sure the group has some thoughts.

3

wonderful you are here for your mom. very kind of you.

4

Indeed I am :)



Scott Orn said:

Those are great questions. I'm sure the group has some thoughts.

5

thank you so much :)



mdolich said:

hi Renae,

Here is a magazine where you can learn more about neurological disorders. This magazine has articles on GBS, CIDP and other neurological disorders. It also has articles about diagnoses, treatments, insurance problems, exercise etc... It’s called "IG Living". It's a FREE magazine subscription. It comes out Bi-monthly (every other month). It has a lot of valuable information in it. You can either read it online or have it sent to you. Also, at the GBS/CIDP Foundation International's website you can get a couple of FREE booklets on GBS and CIDP. These booklets are crammed full of valuable information. Good Luck, here's the website addresses:

http://www.igliving.com/Subscribe.aspx

http://www.gbs-cidp.org/home/get-support/resources/publications/