Hi. I was diagnosed in July with CIDP. When I went into hospital I was almost paralysed but IVIG worked really well and I walked out a week later. I’ve just had a second round and due for a third next week. I have quite a bit of pain in my thighs, especially in the morning and after exertion. Will this go away? Is it just my muscles getting used to being used again or is it here to stay? TIA
Thank you Ignatiusfor your informative response. I have CIDP and Ivig has helped me a lot. I am now reciving chemotherapy for cancer and was advised to hold off on any ivig for now. I am also fearful about the possible side effects of ivig. Does anyone else have these concerns? David with CIDP
Oh gosh, you’ve really been through it. I’m glad you have the diagnosis and IVIG and I hope you continue to improve.
Thank you!
Hello Jules.
I was diagnosed with CIDP in 2012 and this has been a very interesting journey for sure. CIDP is not the fun ride the marketing department sold to us in their shiny brochure! !
Can you define the “pain in the thighs”? i.e Cramps, Charley Horse, electrical tingling/pulsating, can you visually see the muscle harden?
Are you able to at the very least, contract and flex the offending muscle? Can you ‘feel’ the beginning of the ‘pain’ coming on and try to mitigate it?
if you/someone else push hard on the muscle with a finger/fist will it ‘spring’ back into movement?
Thanks
Mr Button
Haha it’s certainly not fun! The pain is constant and feels like an ache. Bottom of the quad muscles and around the knees. There’s no spasms or anything like that, and from the outside they look normal. But they ache most of the time regardless of whether I am using the muscles or not.