My journey to being CIDP symptom free with a SCT

Welcome Blog
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It is February 4, 2014 & I am in Chicago. I am here to do some testing & meet with Dr Allen (Nero) & Dr Burt to see if I am a candidate for a Hematopoetic Stem Cell Transplant. The tests u have done are a lumbar puncture, Nerve Conduction Study, muscle Conduction study, blood work, & MRI of my spine. Tomorrow I find out if I am accepted to the clinical study :slight_smile:

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Good luck! We’re rooting for you!

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Wow! Sounds very interesting! Please keep us all posted! Good luck!

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Good luck, and please keep us posted!

Bill

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YES! Please keep us posted. There's not very much information available on this therapy, so an "insider's view" would be very welcome and appreciated!

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Heather,

I wish you all the best. I hope you are accepted and on your way to be beating this disease.

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All the best of luck! I see you are right in the middle of a huge snow in Chicago! Stay warm and know that we are all pulling for you and will be so interested in hearing how things are going. I have everything crossed for you!

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I wish you all the best in the world. You are in my thoughts and prayers. Please keep us posted throughout the study.

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I wish you the best of luck........I have done ones in Scotland [Glasgow[1985, and ones in Athens [Greece] 1988.

Let us know please!

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Heather,

Wishing you the best today. Please keep us informed as the journey continues. Oh yeh, welcome to the Midwest where it's a little colder than Florida!

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Awesome! My prayers are with you.

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I was accepted to the clinical trial today!!! Now I am waiting on my insurance to approve it :slight_smile: Dr Burt said that my insurance, Awtna has not turned anyone down yet! I am sooooo excited. I will keep everyone posted in how the process goes.

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Great news! Definitely keep us posted. It's great to hear that other treatments are being studied. Best of luck to you!

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Congratulations! Tell us everything!

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Great news! Please keep us updated, we are all cheering for you!

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Praying for you!

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Great news Heather! I'm liking this website more and more.

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Good luck, I hope your tests all turn out so that you are accepted. :)

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Good luck and hope and pray you get good results from this!! Please keep us posted on your treatment!!

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To keep everyone updated… I just got a call from my Aetna case manager & the have approved my pre transplant evaluation!!! Dr Burt’s office is coordinating my final tests for the evaluation & so far all looks good :slight_smile: