Hi,
I was diagnosed last year and have reached a pattern of some sort, IVIG every 12 weeks. However, my pain management 'system' is all over the place. I don't really like thinking that I will be on co-codamol; and tramadol for the rest of my life, I was wondering if anyone knew of any other remedies-any nerve blocks? ANYTHING else I could try would be welcome!
I do feel this cycle of IVIG has not been as effective as the past 3-has anyone else found that they vary? Or might this be a deterioration? I was only diagnosed last July/August so I'm still finding my feet (excuse the awful pun!)
Thanks xxxxx