With my recent diagnosis I was contemplating going to the gym to begin some sort of exercise rogue to try and keep what muscles I still have working . Is this a good idea or bad?
If you are receiving treatment to stop the demyelenation, like IVIG, plasma exchange, steroids, etc, then exercise is essential and very beneficial.
In my case, once diagnosed and started on treatment, I began two months of intense in-patient physical therapy followed by 4 months of out-patient pt, followed by 3 months of weight lifting, cardio machines , and swimming. During that time,I went from total paralysis and extreme muscle wasting to looking and walking fairly normally. I have a lot of respect for the people in the physical and occupational therapy fields and would encourage you to seek out help from them, especially early on in your recovery.