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General General GBS Discussion
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Hello Andie, I'm sorry you have had to deal wit GBS, it sucks frankly. My experience was not as severe as yours, but I am going on a year with pain in feet and burning in limbs. I am experiencing memory loss, but I believe it's due to the Lyrica I take for pain. I am wondering if the pain meds could be contributing.

Wishing you fast healing.

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yes! not as bad as writing myself little reminder notes (though that sounds like a really good idea lol). i was told it's a side effect of the medications i take, i was taking neurontin (gabapentin) but was recently switched to lyrica. i would constantly forget where i put my wallet, now i put it in exactly the same place every day. once upon a time i was a pretty organized person, now not so much.

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Definitely the meds. Dont worry, once you are off them your memory will be perfect again. I also panicked when i was on Lyrica. It totally removes you from the world. When you are able to come off it, you will be your old self again. Speedy recovery.

Jacqui

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Hi Andie,
Im new.to this Guillain Barre. I really hope u get all the answers u are looking for. I really havent had the memory issues, but in my research have read, and at a recent.visit to an autoimmune specialist I traveled to see in Utah, I have personally learned that even if not many have what you describe, autoimmunes come in 2, 3, & even 4s. 8 have 3 & possibly 4s. I just learned I have Hashimoto thyroid, Rheumatic fever and possibly autoimmune liver. I wish u the best in discovering all of your answers.
Chatty Kathy

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Hi Andie

I had GB a while ago in 2002 and was on neurontin, I had to keep taking it because of the burning and pain like you, don’t worry it will get better I started using my iPad with brain games to have the brain start concentrating .

It almost as if you have to teach your body how to remember to do things again, like a child learning new things.
I was on a respirator for 3 weeks and in rehab for 6 months and I know it can be frustrating at times but keep fighting and you’ll start to feel better soon.



Gloria P. :heart:️