Just went for physio for the first time after waiting 7 weeks to get in and ended up in tears as all of my family are sick of me “being sick and still having GBS”. The physio didn’t want to treat me because of my emotions wanting instead to refer me to mental health. My family already think I’m loonie because I got GBS in the first place and that it is all my fault. Physically I need physio as I am really stiff and my muscles are in knots. Now I can’t even get treatment because I showed the emotions. I hate feeling this way and being so emotional in this now broken down useless 65 year old stiff body! Has anyone else been labelled and expected to ’ stop it already" need an e hug!!
You need to find an understanding physical therapist. I just had PT yesterday and she totally understood because she had a similar experience with a different illness. When I run into health professionals that don't understand, I have decided to move on from them and not let them bring me down. I have def experienced this. And with family, I have decided to give them a break since they sometimes just don't understand how bad it can be. I guess it's just hard to imagine this type of problem. I never really understood until now. Hope you feel better soon. Sending an e hug!
Thank you, it helps to have a listening supportive response. E hug back and I do need to give my family some slack, definitely no fun for them either
Tarhealing said:
You need to find an understanding physical therapist. I just had PT yesterday and she totally understood because she had a similar experience with a different illness. When I run into health professionals that don’t understand, I have decided to move on from them and not let them bring me down. I have def experienced this. And with family, I have decided to give them a break since they sometimes just don’t understand how bad it can be. I guess it’s just hard to imagine this type of problem. I never really understood until now. Hope you feel better soon. Sending an e hug!
I’m so sorry to hear all of that GBS in itself puts you through the emotional ringer and how anyone could think it is within your control baffles me. I completely understand people tell me I just need to be positive I need to be more active and nobody really gets it. Now having CIPD from GBS it’s constant exhaustion. I hope you can find a good neurologist that can empathize with what your are going through and trying to cope with. If your family doesn’t understand at least everyone here does and is more than happy to provide encouragement support and insight.
thank you for your concern & support, very appreciated. Unfortunately here we have no access to a neurologist, the GP is it and mine isn’t supportive. Wish I had a Dr that would listen and be supportive. Sounds like you have good Dr.s 
Jimmyjomo said:
I’m so sorry to hear all of that GBS in itself puts you through the emotional ringer and how anyone could think it is within your control baffles me. I completely understand people tell me I just need to be positive I need to be more active and nobody really gets it. Now having CIPD from GBS it’s constant exhaustion. I hope you can find a good neurologist that can empathize with what your are going through and trying to cope with. If your family doesn’t understand at least everyone here does and is more than happy to provide encouragement support and insight.