The first time I had this symptom I was having an IVIG treatment and was sent to emergency for all the chest pain tests, which came back normal. I was feeling strong pressure in my chest, neck and face. This recurred but I didn’t worry since the heart tests were ok. Lately (3 months later) it has become worse, with many episodes of chest tightness throughout the day making it very uncomfortable. I have also had the feeling of a band around my neck choking me . The neurologist sent me for more cardiology testing -all normal- and a spinal MRI . I am waiting for the results to see if there is any demyelination . I suspected it was a CIDP symptom and it seems to be confirmed by all your experiences of it above. At first I thought it was a side effect of the IVIG. I am taking Pristiq, Lyrica, Plaquenil and prednisolone and have IVIG 4-weekly.
I had GBS with Miller Fisher Variant. Now diagnosed with CIDP. I have the MS hug frequently usually at night when I am tired. I was taking gabapentin but it caused short term memory problems. I am lucky because I have a great compassionate Neuro who really listens. He feels it is a symptom of CIPD but does order a brain scan annually to watch for MS.
I saw my neurologist three months ago about the same issue, I also had stopped the IVIG a year ago and this came up eight months after but also had tighter calf’s and thighs. I felt like the tin man after a rainy day. He started me on Prednisone 20mg daily for a week the 5mg daily that I’m still on. No pryas long as im on it. Hope that helps.
This is me back the squeeze I now refer to it as , had got so bad ( cramps) I had a flare up of it worsening in Feb. 2019. On the left side first got so tight I ended up at my dr. They only gave me a steroid shot, no help, next morning after being up all night, and in bad pain I went to local e.r. they gave me a shot of pain med and muscle relaxers. Yeah, easied the cramps and pain never looked at my side. One week later found myself performing c.p.r. on a friend that had a wreck and massive heart attack, and bam the pressure and spasm hit me on my right side thank you lord their was a gentleman there that releaved me and continued c.p.r. on our friend I was in severe pain for three weeks this time. Suffered it out never went to e.r. this time. But had my niece rub it for me where we noticed brusing took pictures of the bruising and knots, all my dr. Said was nothing they could do for me. I need to see a neroligest When you don’t have insurance no nero will see me cause it is not about healing people any more it’s about the money. So now I live with this squeeze to my mind section and learn to make due with what I have. Oh and my friend lived, thank god. Good day for now
I’m glad I came upon this thread. I’ve never heard this mentioned before.
I complained to my doctor about that feeling below my ribs, at my diaphragm, but she had never come across this before. It did not go away, and in time I started experiencing severe pain in my feet and lower legs, at which point she sent me to a neurologist.
After the spinal fluid draw, I was immediately put on a couple rounds of IV I G treatment. The best diagnosis anybody had was there was a viral infection within the inner wall chest lining which caused the GBS.
I still get that tight band feeling, but compared with the intense feet and leg pain, as well as the burning elsewhere, it seems minor now.
I had the gloves, socks and belt when first diagnosed in 2006. Took 1gm solumedrol per day for a week along with ivig to get rid of it. Now getting ivig x4 days every month. Whenever I can’t get my ivig on schedule, I get a flare up