I have had stomach problems for years while having CIDP as well as pain and discomfort that goes from the diaphragm to the armpits. I have always put this down to undiagnosed IBS or some other stomach problems.
I mentioned these to my aunt who has MS and she suggested that as CIDP and MS are so similar in the way of symptoms and consequence that it may actually be MS hug.
Having gone to the internet knowledge of all things (GOOGLE) it seems that she may have been right when I put all my symptoms together its seem classic MS hug.
I am going to try and follow the advice for MS sufferers and see if that helps, does anyone else have the same symptoms (all of which I have had checked out at one time of another including a couple of trips to the ER and had nothing found that could be the cause)
Tight feeling in diaphragm and chest
Pain as above
Tightening around the stomach and chest like a belt has been put round and pulled tight
pain down both sides of the rib cage sometimes on one side or the other sometime both
shortness of breath
uncomfortable feeling when laying down
Forgot to add I get wheezy a lot too
Phrenic nerve controls breathing and can be CIDP affected if the anatomic nervous system is CIDPed. ALS can also present initial breathing/laying down problems... so don't assume, or you'll worry yourself into an early grave.
Here is a CIDP primer that neurologists (or a primary physician) uses to understand our lower motor-neuron (sometimes sensory) disease. The key is to read carefully, refer to links and take notes. The test is,,, well, knowing what is CIDP and what is not CIDP, and then using this information to talk intelligently to the neurologist (or this forum) to describe the seemingly ephemeral and fluctuating relapses associated with this simple (on the surface) disease; but a VERY complex cascade disease (or symptoms) of malfunctions in the humeral and interstellar soup that we are made of at the molecular level.
I have often made mistakes in assuming every ache and pain and mindf%$k was CIDP. Over 3 years (or maybe 20) I've learned that if a treatment(s) fails or become complex then the disease (CIDP) becomes many different variants of a systemic malfunction and then more and more complex— to the point where we patients become dartboards for neurologist to score with prescribed treatments, hopefully hitting closer and closer to the bull's eye of constant remission.
Really, try to research every word and then the truths of CIDP become MUCH clearer. My conclusion is that we are a soup of cells (as complex as the universe) that use electric current and this mixture is delicate, different for all of us, and extremely volatile at the cytokine level; hence the inability to understand the mechanism or the various treatments regimes; their success or failures.
Bottom line advice from me: exercise as if your life depended on it!
This was one of my first symptoms and has gradually worsened.
Pain management doctor said it would go away. I had back surgery 6
Weeks after lymphoma so I don’t know which is a symptom of what.
I have had this in ever increasing velocity over the past two months. It is becoming very scary. In my upper stomach. I feel like I cannot take a deep breath. Any help out there’s?
In other words: CIDP is a chronic and progressive disease.
Search for Google images of " MRI CIDP inflammation of the spinal nerve roots". The nerve roots are the anterior/posterior horn of the spinal column (grey matter) which are spinal tracts that reach all the way to the pyramidal tracts and beyond in your brain. Dysfunction for CIDP is from lesions in the spinal cord (anterior horn). Pain (sensory neurons) and weakness (motor neurons )and everything else to do with CIDP begins at this spinal junction. Inflammation spreads out from the motor-neurons in the spine, thereby disrupting the voltage potentials to the peripheral nerves (mostly for muscles) and the meylin wrapping and Schwann cell functions.
Gabapentin shuts off pain signals in the brain. You are wasting your money and time trying to solve a problems of spinal lesions using voodoo or OTC hyped meds. Tir-cyclic anti-depressants also work for CIDP at a very high dose, and even better when combined with high doses of Gabapentin. And of course, narcotic, opioid based meds also work.
Or, like most who realize this is a chronic and progressive condition that will beat at you forever, you learn to live with it and curse the fates of man and nature for the affliction. However, I've discovered swimming and/or vigorous exercise stimulates the natural cannabinoid/opioid receptors to call out to your natural pain killers. Vigorous is the keyword here.
BTW- ALS, MS, CIDP and a host of other diseases are motor-neuron afflictions.
I have had this in ever increasing velocity over the past two months. It is becoming very scary. In my upper stomach. I feel like I cannot take a deep breath. Any help out there's?
it hits me in the diaphragm area lot and can at times be painful at other times I randomly gasp for breath it was scary at first but after a while you learn to accept it and realise that its not going to lead to further problems or complications and it becomes just another thing you start to live with (or ignore)
Interesting. I’ve had this symptom intermittently for years. Esp. When I lie on one side.