Diagnosed CIPD a few months ago - leg totally paralyzed. Tingling in other foot. Rencently started tingling in the last three fingers of each hand. Now difficulty in using (typing, 10 key, phone, even copier) I have to backspace and retype all the time (including now). I'm curious about the last three fingers on each hand. Those fingers also cramp frequently. Why those six fingers? Has anyone else experienced this? If so, what comes next?
I'm 9 months into treatment and still have the cramping, numbness and tingling in those same fingers, mostly the ring fingers. I still sometimes have difficulty typing, but it's much better than it was.
At first, my hands were so weak I couldn't open a bottle of water or clip my finger/toe nails and had to get help doing it. I had started with only IVIG, but once I added the cortico-steroids my hand strength immediately improved. I get IVIG and Solu Medrol infusions every two weeks and I've seen almost no improvement since my hands got stronger. I went through physical therapy as long as my insurance would allow it and I have AFO braces to support my lower legs/ankles. Without them, I'm barely able to walk due to weakness and severe foot drop.
Check with your doctor to see if your treatment can be adjusted to combat the hand issues. Good luck!
Thank you for the info. I'm the same as you were - have to ask my wife to open packages (even chip bags, etc.). One day at work I tried to shred with my hands 4 pieces of paper - couldn't do it. I was shocked. A year ago I could have shredding a small phone book with my hands. Typing is killing me. I'm in accounting so all my work is with my fingers (keyboard, mouse, telephone, 10key, and copier). Dr. is working on disability paperwork. The lady completing it told my wife she couldn't imagine how I was still working. I'll admit it has been extremely difficult. Thanks again for your reply and advice!
We’re lucky to have people to help us.
I’m preparing to return to work on 2/17/14, after 4 months on disability. I’m an executive in finance and they’re giving me a whole
New dept. to run. Just to get me out of the high stress call center that I built. I’m very lucky.
I did physical therapy and got braces while I was out. You may want to look into it. Best of luck!
Thanks SSTL. Sorry to hear you suffer same symptoms but glad to know my symptoms are not atypical. Will discuss with Dr on next visit. Thank you again!
Shawn Shawn The Leprechaun said:
I'm 9 months into treatment and still have the cramping, numbness and tingling in those same fingers, mostly the ring fingers. I still sometimes have difficulty typing, but it's much better than it was.
At first, my hands were so weak I couldn't open a bottle of water or clip my finger/toe nails and had to get help doing it. I had started with only IVIG, but once I added the cortico-steroids my hand strength immediately improved. I get IVIG and Solu Medrol infusions every two weeks and I've seen almost no improvement since my hands got stronger. I went through physical therapy as long as my insurance would allow it and I have AFO braces to support my lower legs/ankles. Without them, I'm barely able to walk due to weakness and severe foot drop.
Check with your doctor to see if your treatment can be adjusted to combat the hand issues. Good luck!
I had the same thing.Would take me forever to type on the PC.I couldn`t button up my pants,couldn`t write,could barley hold a pen.It was awful.Fast forward to now and I am in complete remission.My drug of choose is "Prednisone" its really been a God send for me.I play golf every day weather permitting.No numbness in my hands or feet.I haven`t had a IVIG treatment in 3 months.Anyway good luck
demyelination of the Ulnar nerve and the palmar digital nerve would affect that side of the hand and those fingers in particular I have the same problem and also suffer severe parathesia in the posterior aspect of the elbow where the Ulnar nerve runs. An EMG would confirm the problem is mainly in the Ulnar and PD nerve's as opposed to the median nerve.
I wear sports type wrist braces when its at its worse and that seems to offer some relief
bill2503 said:
demyelination of the Ulnar nerve and the palmar digital nerve would affect that side of the hand and those fingers in particular I have the same problem and also suffer severe parathesia in the posterior aspect of the elbow where the Ulnar nerve runs. An EMG would confirm the problem is mainly in the Ulnar and PD nerve's as opposed to the median nerve.
I wear sports type wrist braces when its at its worse and that seems to offer some relief
Thank you John and Bill. Gonna repost a reply I made to someone else as fingers are, well... you know. Here goes: It has been really helpful for me to learn there are others out there with the same symptoms. I have a totally paralyzed leg and now dealing with the hand issue; and severe back, neck, and arm pain. I've been diagnosed about 6 months and IVIG for 4 (my 4th treatment tomorrow thank goodness). I don't know how I could manage without IVIG.
john1953 said:
I had the same thing.Would take me forever to type on the PC.I couldn`t button up my pants,couldn`t write,could barley hold a pen.It was awful.Fast forward to now and I am in complete remission.My drug of choose is "Prednisone" its really been a God send for me.I play golf every day weather permitting.No numbness in my hands or feet.I haven`t had a IVIG treatment in 3 months.Anyway good luck
Yes, but I called it ulnar nerve involvement. This dysfunction of fingers was diagnosed as diabetic neurolpathy until it got so bad that my career as a professional solo guitarist was destroyed ((*(**&&*!!). CIDP isn't called an insidious disease for nothing. Typing is also problematic, but one adapts. I am also a published author. I also have left leg involvement that was diagnosed originally as disk compression of L4-L5, so that leg is now beyond rejuvenation. Living on an outer island provided me with witch doctors and medicine men who shook their rattles and said incantations, meanwhile the T4s and macrophages nibbled and munched on my nerve roots for 10 years or more.
Next? Think spinal nerve roots and what they connect to... they connect to every muscle system in the body!
I have experience a separation of sensation from the last three fingers as well. The thumb and forefinger cramp and the last three burn or tingle. I don’t know why but they are grouped in the pain.