Dr was clinical diagnosed me CIDP polyneuropathy. Last 10 years ago it’s much slowly progressing now I was feeling difficulty in walking time and I have am not feeling pain in leg and Aram’s till date Dr had advise prednisolone in 2018 for 6 months but prednisolone can’t help me I discussed with neurologist he said you are a CIDP patient I can’t believe I have CIDP any experience of you this is CIDP or other disease
Hi, sorry to hear of you diagnosis. I was diagnosed in March of 2017 and went through plasmapheresis and then used cellcept Still have fatigue and some balance and strength issues. It takes a long time to manage this and a good neurologist to make a plan. Get a 2nd and 3rd opinion.
Hang in there.
I am CIDP polyneuropathy patient I can’t afford of this disease treatment where I got free treatment for this disease
I think there are a number of articles talking about the high misdiagnose rate of 50%. I was told something similar by a neurologist I do not like. As the patient you are stuck when one doctor disagrees with another doctor. Just find another opinion
I am very depressed about my disease what can I do please support me here in Pakistan no one NGO work for CIDP polyneuropathy patients treatment