Hi everyone
Have B12 injections been suggested to you ? If yes, how often do you have and do you notice any difference.
I began getting B-12 injections every week for the first four months. Now, I get an injection once a month. I seem to have more energy.
yes i would like to know too, they want to do it to me.......but it seems everything i read is negative!!!!!!!
Hello all, I am going to give them a try. I'll let you know how I do in a couple of months.Anything has to be better than not having any treatment at all. I told my Doctor I wanted to go on Oxycotin.Between that and the Endep it helps take the pain away.Every now and then I get restless legs (and now it's started in my arms) I have to take a sleeping pill to get some sleep. The electric shocks are far and few between. Thank goodness.So if Vit b12 works I will give it a go. Happy Christmas to you all. Shirl
good question
This is new to me. What are B12 injections supposed to do for you? If it is to combat fatigue, I will definitely talk to my doctor!
If anyone tries these, please post your results.
Thanks,
Bill
I had B12 injections daily when I was in the hospital. That was for 5 weeks. After I came home, I began taking a B12 supplement. It does seem to give me energy. Try a bottle of vitamin B12 supplement and see if it helps. My neurologist always asks me if I am taking my vitamin B. He thinks it is important.
Merry Christmas to all and to all a good 2013. It has to be better than 2012.
I was smitten with GBS on Jan 18, 2012. My life has sure been different ever since.
5 weeks in hospital, 6 weeks in home rehab, 6 weeks of outpatient rehab, and 6 weeks of home exercise. I finally returned to work August 13, 2012. Every day is better than the last - as long as I do my exercises and take B12 daily, and gabapentin every 6 hours.
Cheers to all -- bob
I take b12 injections but that is because my b12 levels are low. I don’t know if you can be prescribed the injections if your levels are normal. You can take over the counter supplements and see if they help. The sublingual, under the tongue ones enter the bloodstream the quickest.
Say Bob it seems like your GBS and turned into full blown CIDP. The only differance being the time it takes to come on and to recover. Most folks with GBS recover and can remain in remission for long periods of time. Keep up the exersice, it is the most important thing you can do for GBS/CIPD. Really most other things are at best guess work, IVIG, B12, Steriods and now stem cell replacement is the flavor of the day. Good luck and have a great hoilday, I pray pain free and full of energy.
Robert Eiferd said:
I had B12 injections daily when I was in the hospital. That was for 5 weeks. After I came home, I began taking a B12 supplement. It does seem to give me energy. Try a bottle of vitamin B12 supplement and see if it helps. My neurologist always asks me if I am taking my vitamin B. He thinks it is important.
Merry Christmas to all and to all a good 2013. It has to be better than 2012.
I was smitten with GBS on Jan 18, 2012. My life has sure been different ever since.
5 weeks in hospital, 6 weeks in home rehab, 6 weeks of outpatient rehab, and 6 weeks of home exercise. I finally returned to work August 13, 2012. Every day is better than the last - as long as I do my exercises and take B12 daily, and gabapentin every 6 hours.
Cheers to all -- bob
You should be a diagnostician -- Dr Garg says I have moved from AIDP(GBS) to CIDP. I will stay there and not return to GBS if, and only if, I do my exercises and Livestrong!
My B12 was low and doc had me start on 1000mcg daily bilingual, or do injections. The daily has dose has brought my level up enough and kept it up that he has not talked about injections since 2009.
VB is important for proper absorbtion of nutrients, and a lot more than that. Sorry my brain is not workikng so hot right now. long day.
Hi Shelly66,
I swim 3 times a week but my physio has told me to up the anti with the exercise. What does exercise do for CIDP ?
Shelley66 said:
Say Bob it seems like your GBS and turned into full blown CIDP. The only differance being the time it takes to come on and to recover. Most folks with GBS recover and can remain in remission for long periods of time. Keep up the exersice, it is the most important thing you can do for GBS/CIPD. Really most other things are at best guess work, IVIG, B12, Steriods and now stem cell replacement is the flavor of the day. Good luck and have a great hoilday, I pray pain free and full of energy.
Robert Eiferd said:I had B12 injections daily when I was in the hospital. That was for 5 weeks. After I came home, I began taking a B12 supplement. It does seem to give me energy. Try a bottle of vitamin B12 supplement and see if it helps. My neurologist always asks me if I am taking my vitamin B. He thinks it is important.
Merry Christmas to all and to all a good 2013. It has to be better than 2012.
I was smitten with GBS on Jan 18, 2012. My life has sure been different ever since.
5 weeks in hospital, 6 weeks in home rehab, 6 weeks of outpatient rehab, and 6 weeks of home exercise. I finally returned to work August 13, 2012. Every day is better than the last - as long as I do my exercises and take B12 daily, and gabapentin every 6 hours.
Cheers to all -- bob
Hi Uncle Bill ....
I'm told that B12 and Vit D are essential to reduce ( weakness in gut / "attacks" on our bodies ) - apparently "low" B12 & Vit D put bodies at risk. And excellent levels help absorption of other important minerals.
I've also been told Vit B6 is excellent for neuro health and recovery ( neuro ) its been used in patients recovering from alcohol addictions. ( but a multi B is good too )
Difficult to source results - other than doctors who have/are running trials in different areas.
ALSO - Dr Wahls (MS) talks about finding everything we need in food - i found her talk brilliant and her results inspiring. Minding Your Mitochondria Dr. Terry Wahls ( TED talk )
Hope your day is special, Janie
Uncle Bill said:
This is new to me. What are B12 injections supposed to do for you? If it is to combat fatigue, I will definitely talk to my doctor!
If anyone tries these, please post your results.
Thanks,
Bill
Another good read is "Eat To Live" by Joel Fuhrman I'm not sure on spelling of authors name. Book is very informative.
Hi,
I became anemic and had an iron infusion and then B12 shots weekly for several months and am now taking iron and B12 supplements - unfortunately, I don't feel any less fatigued.
Merry Christmas and Happy New Year! Lindae
Hello everyone, I was told that B12 supplements are not absorbed in the body and that the injections (shots) are the best way. Does anybody know if this is true?
MY PCP FIRST PRESCRIBED B-12 HOTS EVERY 4-6 WKS......DID NO GOOD TILL CORRECT DIAGNOSIS OF CIDP & IVIG INFUSIONS WAS ACHIEVED. I NOW USE B-12 SUB-LINGUAL PILLS & THEY HELP NOW THAT THE INFUSIONS HAVE STOPPED THE ATTACK ON THE NERVES!!!!
Heard the same as you
shirl3 said:
Hello everyone, I was told that B12 supplements are not absorbed in the body and that the injections (shots) are the best way. Does anybody know if this is true?
This can’t be totally true - if it was, we would be unable to get B12 from food, as well. Maybe there are certain oral types that are not well absorbed, or shots are faster, or something of that nature.
I take a started taking 2000mcg to get level up and now at 1000 mcg sublingual daily and kept level up to where I do not have to take injections.
Janie said:
Heard the same as you
shirl3 said:Hello everyone, I was told that B12 supplements are not absorbed in the body and that the injections (shots) are the best way. Does anybody know if this is true?