I am having trouble with my balance. I have bruised my ribs and have had a concussion.
Paula, call the doctor to find out why you are falling. The first 6 months into this diagnosis I had to stay on top of it constantly. It was a full time job. It's not forever. As the cidp got under control the doctor visits and medications became more manageable. But expect to spend this time to learn what works and what doesn't. Be careful not to let anything wrong go too long. It takes many months to recover. You don't want any unnecessary damage.
I don't know about others, but when I would fall it would be a kind of fold, fall. My knees would bend and it would be a vertical drop, almost perfectly straight. Right now it sounds like you need a walker and/or wheelchair. Ask to speak with a social worker if you need help getting the equipment you need.
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I'm 9 years out and still have the occasional issue. I have to watch myself on uneven surfaces. I'm not dizzy but sometimes I fall. When I first get up after sitting for an hour or two (such as at work) my legs are stiff and don't respond. I have to stretch them out. Getting up and trying to run immediately after sitting is a non-no as thats when I am likely to fall. If Istretch my legs out I'm ussually OK. Just another day with GBS residuals.
Many times falling is a sensory perception that fails to reach motor nerve units. Most sensory/motor nerves, if axons are functioning and remeylinated, can be rehabilitated with physical therapy and focused exercise.
The keyword is "FOCUSED— the rehabilitation can be very painful— but, it is a semi-sweet type of pain.
Almost a decade of a foot-drop, and slowly, with electro-current therapy, the foot WILL arise again!
Also, sensory neural nets can be redistributed within the brain with positive focus on a defective muscle, while slowly and correctly exercising a specific muscle and the surrounding and supporting muscles.
Remaining a couch potato, you end up as mashed potatoes.
mabes said:
Paula, call the doctor to find out why you are falling. The first 6 months into this diagnosis I had to stay on top of it constantly. It was a full time job. It's not forever. As the cidp got under control the doctor visits and medications became more manageable. But expect to spend this time to learn what works and what doesn't. Be careful not to let anything wrong go too long. It takes many months to recover. You don't want any unnecessary damage.
I don't know about others, but when I would fall it would be a kind of fold, fall. My knees would bend and it would be a vertical drop, almost perfectly straight. Right now it sounds like you need a walker and/or wheelchair. Ask to speak with a social worker if you need help getting the equipment you need.
Just so you know, you can reply in the same post if it's the same subject. Look for the box.... Reply to This...
The slower I move the mor issues I have so I triy to hurry from one safe place to another an take a lean break. Unfortunately I am dealing with budged disc, broken bones and torn tendos so it’s a mess. But I do smile when I fall. Mostly because the fear of falling is gone. I am already there.
Yes. Try to get exercise. I have an exercise bicycle and I try to ride 4 kms each day.in the beginning it made the pain in my feet worse but after one week the pain slowly become less. I,m able to walk the whole day, it’s only in the afternoons that my feet become dumb and the pain increase. It’s then when I take the bicycle and ride plus minus 4 kms. It surely improves the blood flow in my legs and that help to control the pain…
It could be ataxia or if you are having dizziness/vertigo that is causing the falls then it could be an inner ear problem. Either way, you really should see your doctor. I kept having vertigo and falling or having syncope (fainting) and had to do a tilt table test. I was experiencing orthostatic hypotension which is low blood pressure with position changes so I now have to change positions slowly and not turn my head suddenly. I have the most problems when someone cuts me off while walking...I can get my feet to stop, but my body keeps going forward and then I have to try to bring my body backwards and sometimes over correct which results in me falling. Thankfully today, a nurse/coworker caught me. She said, "don't worry, I've got your back...literally"....lol. Take care!